Millie

From: jenny low (jenklow@hotmail.com)
Tue Feb 27 00:26:22 2001


Hi Millie,

How are you doing? I was wondering about when you had your hysterectomy done. Did the doctor discuss with you at all about the type of surgery that you were supposed to be having done? What type of surgery did you sign the consent form for? I don't want you to beat yourself up for allowing this woman doctor to open you up. I have been there and done that myself. I hated myself for years after I had a tubal ligation. It was not something I wanted. I was pushed into it by family members and a doctor who told me I could go into kidney failure if I got pregnant again. I should not of listened and done something I really didn't want to do. And what did I get out of it but periods that lasted 2 weeks and came every 2 weeks. When I had the tubal reversed I got adhesions. So it is just has been a never ending battle. But I had to learn to forgive myself. I listened thinking that what everyone wanted me to do was in my best interest. I have learned since that that is not always so. IT has made me a stronger person because now no one pushes me into anything that I am not ready to do. I don't believe that it is any different with you. I believe that you allowed this doctor to open you up thinking it was in your best interest, that she was helping you. Isn't that true? You thought she was someone you could trust. We should be able to trust our doctor. So don't blame yourself now. She failed you not you failed you. So don't hold that against yourself. You need to forgive you. Sometimes it is hardest to forgive ourselves. I know it took me years to forgive myself. And sometimes I still struggle with it. I am just sorry that your doctor failed you and that you have to endure so much pain physically as well as emotionally. Remember that it is not your fault. I hope you can find some peace in what I have said. I also hope that you find a doctor who can build your faith and trust back up in doctors. Not all doctors are bad. You met the ones there in Scranton. I don't think they were pushing you aside. I think they just want the average time for healing to pass so they can know for sure that it is adhesions that reformed and not just that you haven't completely healed from your surgery. It might do you more damage in the long run if they went in before you had time to heal. I really believe they were looking out for your best interests. So be comforted in that. I have never met these doctors but with all the good I have heard and read about them, I don't think there could be any other reason why they might make you wait. Now if your doctor did your hysterectomy without your consent and without explaining in detail what she was doing, then I would think you have grounds for a law suit. Even though I have had numerous surgeries my doctor always goes over all the risks anyway. He even tells me "I know you have been through this up teen million times...but these are the risks and this is what I am doing". And they also go over it in the hospital. I have consent forms from my doctor and consent forms from the hospital. SO find out exactly what you consented to and go from there. I hope I can be of some help to you. I hope your pain has ceased. I'm thinking about you.

Love, Jenny

>From: "Millie" <milliem@citlink.net>
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Re: Millie: some help with your anger
>Date: Sun, 25 Feb 2001 16:04:31 -0600
>
>Dear Trace,
>Thanks for the suggestions. This morning I thought I'd die when I tried to
>have a bm. It was awful. I took a Dulcolax suppository, and 3 Tbsp. Haleys
>M O with water. I finally went some, but the pains get worse. I went to see
>Dr. Redan, but my luck- he said he couldn't do anything right now. He
>looked
>at the scar, and pressed around. He said to wait a few months. I am to the
>point that I don't know what to do. I think I need to find new Drs. Yes, I
>was abused. The male nurse practitioner asked me in January - "Did you have
>your uterus yanked out yet?"
>I should have ran the other way then. I went back to their e.r., and the
>Dr.
>was not nice. He told me it is colic. I asked how he'd know without not
>running any tests. I told him that I am going to have to get away from them
>and find new Drs. I told him I know the surgery was unneeded. He got real
>smart and said, "YOU signed for it!~!" I told him we were supposed to have
>agreed that I wanted her to check for endo, and fix what she could of that,
>and she was going to check left ovary for adhesions, & cysts. She only
>wrote possible hyst.
>There's nothing on the pre op, or post op that showed the need for a hyst.
>Both said - chronic pelvic pain, endometriosis(she wrote 'minimal') and
>history of pelvic adhesions. Dr. Redan's medical assistant asked me why she
>took everything, and I said I also wonder. I saw Dr. Redan give him a
>funny
>look. Do you think he either figured for the money, or for some other
>reason. I saw the look he gave his helper.
>Millie

>>----- Original Message -----
>From: "niko" <nicko69@dingoblue.net.au>
>To: "Multiple recipients of list ADHESIONS"
><adhesions@mail.medispecialty.com>
>Sent: Sunday, February 25, 2001 12:26 AM
>Subject: Millie: some help with your anger
>
> > Hi MIllie,
> >
> > Millie I see your anger in your messages, and we all sympathize
>immensely.
> > Most of us have dealt with the same situations at one time or another. I
> > used to believe that my anger kept me going. I was angry at the doctors,
> > angry at my body, angry at anyone who would listen really. I have learnt
> > alot from this board. One of the best revelations I have made is NOT to
>be
> > angry anymore, You see it makes my condition 100% worse. I cannot take
>back
> > what has been done to my body. It's unfair sometimes. It really is. My
> > situation needn't have ended up with nearly 30 operations.
> >
> > Acceptance of things I cannot change releases the tension you will feel.
>The
> > stress you are putting yourself under will be felt throughout your body.
>You
> > do need time to let your body heal from your hysterectomy. It is a very
> > major operation as unneccessary as it may well have been.
> > I was able to communicate better with my doctors when I wasn't so angry.
>It
> > enabled me to explore my options without any accusations and defenses
>they
> > put up to me.
> >
> > Irritable Bowel is often misdiagnosed with adhesions, but it is also a
>real
> > complaint. I take "Colofac", and it relaxes my bowel when it becomes
> > irritated. I do not have irritable bowel symtoms from food, but from the
> > operations. I only realised the extent of irratability when the tablets
> > relaxed it. I know it sounds like doctors are "palming" your pain off,
>but
>I
> > think it is worth entertaining this idea with the problems you are
> > experiencing. Drink lots of water as it flushes your system and hydrates
> > your bowel. A dehydrated bowel causes so much pain. I know this for a
>fact.
> >
> > When we are in constant pain, it makes you extremely edgy. It brings out
>the
> > worst in anyone. How could it not? I don't think anyone truly
>understands
> > until they've lived with it for awhile. You will have plenty of time
>when
> > you are strong enough, to deal with these insensitive doctors.
> >
> > What was Dr. Redan's suggestions for helping your bowel movements?
> >
> > Millie, I truly hope that you find some relief, I really do. You have
>been
> > mistreated and abused.
> >
> > I wish I could give you something to make it all right again, but I
> > can't.... so the next best thing is our support.
> >
> > Your pain pal
> > Trace xo
> >

>> > ----- Original Message -----
> > From: "Millie" <milliem@citlink.net>
> > To: "Multiple recipients of list ADHESIONS"
> > <adhesions@mail.medispecialty.com>
> > Sent: Sunday, 25 February 2001 12:35
> > Subject: Re: Re:Robin
> >
> > > Dawn'
> > > I read your note about the pain from adhesions. It is a terrible
>thing.
>I
> > > have not been right since I had the TAH in January. She tried to say
>it's
> > > irritable bowel. She laughed it off. Last night I wentback to the e.r.
>of
> > > that hospital, and I had the same e.r. dr. I saw a few days after
>surgery.
> > > He wasn't too happy that I came back. All he did was bloodwork, and
>tried
> > > to say it is a colic. Bull!! Then he came back in, and was kind of
> > > nasty,when he asked me why I didn't take the medicine she prescribed.
>I
> > told
> > > him that what she prescribed was Bentyl, which is constipating, and so
>is
> > > Effexor. I told him I am angry that she took everything but 1 ovary
>when
> > > there was nothing really wrong with the organs. He got a bit snotty
>and
> > > said, "well, you must have signed forit." I'd like to report him., if
>I
> > knew
> > > where. Also, sometime before I had the surgery , the male nurse
> > practitioner
> > > asked ,"Did you get your uterus ripped out yet?" He should be
>reported.
>Of
> > > course, if if isn't on paper in a Drs. report, it doesn't exist in
>their
> > > eyes. I am having even more problems going. I went to see Dr. Redan,
> > > yesterday, but I came away even more discouraged, because he said to
>wait
> > 3
> > > months to be sure you're healed, then maybe he'd take a look. He
>looked
>at
> > > the incision, and pressed around it some.
> > > He was very nice, but I only saw him for 10 minutes at the most, after
> > going
> > > 60 miles. After hurrying to fax in forms to them, to supposedly be set
>up
> > > for the adhesiolysis. I have had more pain today. The little bit of
>stool
> > I
> > > do pass, is small, painful, and it gets worse.Even to pass gas. I
>don't
> > want
> > > to end up with an ostomy. Did you ever have a n.g. tube? Are they
>really
> > > painful to have inserted, or uncomfortable?
> > > How would you feel if a Dr. or nurse practitioner said that to you?
>What
> > > would you do?
> > > Millie

>> > > ----- Original Message -----
> > > From: <Cheechiebomb@aol.com>
> > > To: "Multiple recipients of list ADHESIONS"
> > > <adhesions@mail.medispecialty.com>
> > > Sent: Saturday, February 24, 2001 1:55 PM
> > > Subject: Re:Robin
> > >
> > > > Hi Robin
> > > >
> > > > I am new here too.I had 2 c-sections in 1988 and one in 1990
>Ihad
> > my
> > > gal
> > > > bladder removed during my second pregancy. I had my tubes tied in
>1991
> > > then
> > > > in 1992 I had my right ovaries removed becauseof cysts then in 1994
>I
> > had
> > > a
> > > > complete hystrectomy and I had lap in may of 2000 for my adhesions
>on
>my
> > > > instestines and small bowel then in August of 2000 dr wilson opened
>me
> > up
> > > > along my c-section cut to try to give me some releif but here I am
>again
> > > 31
> > > > years old I can not eat and the pain is unbearable my insurance has
> > > changed
> > > > and now I am dealing with someone who knows less than I do about
> > adhesions
> > > I
> > > > have to deal without any pain releif and I cry almost contsantly
>when
>it
> > > gets
> > > > real bad I go to the er and the head dr there knows how it feels
>because
> > > his
> > > > grandmother suffered for years with adhesions. So hang in there and
> > don't
> > > > give up. I hang on to a thread of hope that someone will help me.
>Tired
> > > and
> > > > feeling useless in Tenn. I wish you luck and will keep you close to
> > heart
> > > in
> > > > my prayers.
> > > >
> > > > wishing you the best
> > > >
> > > > Dawn
> > > >
> > > > to the unsubscribe form at
>http://www.adhesions.org/forums/listcmds.htm
> > >
> > > to the unsubscribe form at
>http://www.adhesions.org/forums/listcmds.htm
> >
>


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