New here- Here is

From: Timmerri (timmerriat@aol.com)
Mon Feb 12 18:00:10 2001


HI I am new to this forum. I have had adhesions since 1995. I have had 5 surgies to remove them - "Lysis" and the most recent on Nov. 30th, 2000. I am hurting again. My back is the worst, and the left abdominal side. What do we do? Keep having surgeries, or just do pain medicines? I hate to go back to the doctor again. Should I look into a pain specialist Doctor? Has anyone gottten disability with this condition? Is it hard too? Please any info will be gladly accepted and very thank ful ! I am desperate. Thank You TIMMERRI Received: from mail.hemc.net (user49.unus.net [63.69.63.49] (may be forged)) by mail.medispecialty.com (8.9.3/8.9.3) with ESMTP id TAA10298 for <adhesions@adhesions.org>; Mon, 12 Feb 2001 19:07:37 -0600 Received: from argent (unverified [63.69.63.194]) by mail.hemc.net (Vircom SMTPRS 4.5.186) with SMTP id <B0000165474@mail.hemc.net> for <adhesions@adhesions.org>; Mon, 12 Feb 2001 19:52:44 -0500 Message-ID: <004001c09556$08b85c80$9f8f553f@hemc.net> From: "edward vinson" <argent@hemc.net> To: <adhesions@adhesions.org> References: <200102091542.JAA13008@mail.medispecialty.com> Subject: Re: ADHESIONS digest 821 Date: Mon, 12 Feb 2001 19:43:50 -0500 Organization: homebase MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit X-Priority: 3 X-MSMail-Priority: Normal X-Mailer: Microsoft Outlook Express 5.50.4522.1200 X-MimeOLE: Produced By Microsoft MimeOLE V5.50.4522.1200

I see a lot of entries addressing gas build up. I have also seen messages about Phazyme. I would just like to ad I have been taking Phazyme since 1985 and it does help. At times I have tested going without it and it DID NOT work. If you haven't tried it you may want to give it a shot anyway. I think it comes out in something like 188 mg, I am not sure about the dosage but I take the max. I would suggest ONLY taking Phazyme, during research I found out that Peppermint Oil can cause gas and a lot of the other medications that claim to work like Phazyme have peppermint oil in them. I guess in short don't take anything for gas that has peppermint oil from what I have read. Good health to all, ann-georgia

>----- Original Message -----
From: "Adhesions Society" <adhesions@adhesions.org> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Friday, February 09, 2001 10:42 AM Subject: ADHESIONS digest 821

> ADHESIONS Digest 821
>
> Topics covered in this issue include:
>
> 1) Re: Kate...about Ensure
> by "Janet Karam" <jkaram4@home.com>
> 2) Re: Adhesions.to Angela..
> by angela.k.mullins@bcs.bellsouth
> 3) Re: Adhesions...
> by "Janet Karam" <jkaram4@home.com>
> 4) Aunts (Denise) Adhesions
> by angela.k.mullins@bcs.bellsouth (Angi)
> 5) Re: surgery in germany
> by lbrown@utvinternet.com
> 6) Help me find a doctor in Ohio....
> by anonymous@medispecialty.com (Roni Rospert)
> 7) Zoe, enzume treatments
> by "edward vinson" <argent@hemc.net>
> 8) Re: Aunts (Denise) Adhesions
> by Mary Wade <acbcsrt@kansas.net>
> 9) Re: Crazy enzyme treatment suggestion?!
> by paindoc2000@yahoo.com (MLWhitworth, MD)
> 10) Accupuncture
> by "Teresa Waldrop" <twaldro3@bellsouth.net>
> 11) Re: Kate...about Ensure
> by "Robyne Hinks" <rhinks@eisa.net.au>
> 12) Here is to 'HANGING IN'
> by PJtweetyRn@aol.com (Pam Markford)
> 13) Need Helen's Help
> by ifirgit@new.rr.com (Karla)
> 14) Re: Kate...about Ensure
> by "Kate Murphy" <katemm@mindspring.com>
> 15) Re: Here is to 'HANGING IN'
> by "Kate Murphy" <katemm@mindspring.com>
>
> ----------------------------------------------------------------------
>
> ----------------------------------------------------------------------
> Date: Thu, 8 Feb 2001 08:46:22 -0800
> ----------------------------------------------------------------------
> From: "Janet Karam" <jkaram4@home.com>
> To: <adhesions@adhesions.org>
> Subject: Re: Kate...about Ensure
> Message-ID: <002301c091ee$ab99c800$54e8b718@aurora1.co.home.com>
> MIME-Version: 1.0
> Content-Type: text/plain;
> charset="iso-8859-1"
> Content-Transfer-Encoding: 7bit
>
> Thanks Kate,
>
> It's soy based. At this point it probably doesn't mater what I drink or
> eat...even if I sipped water all day with nothing else, I'm sure I'd be
> uncomfortably bloated.
>
> Most likely it's the partial blockages you mentioned, and the build up of
> gas.
>
> Have a good day, thanks for always being so helpful.
>
> Love,
>
> Janet
>
> ------------------------------
>
> ------------------------------
> Date: Thu, 8 Feb 2001 09:46:22 -0600 (CST)
> ------------------------------
> From: angela.k.mullins@bcs.bellsouth
> To: ADHESIONS@OBGYN.NET
> Subject: Re: Adhesions.to Angela..
> Message-ID: <200102081546.JAA07241@mail.medispecialty.com>
>
> At Thu, 8 Feb 2001, Robin wrote:
> >
> >Dear Angela,
> >Your aunt needs to find a surgeon that specializes in adhesions. There
> >are some that are often mentioned on this board. The one in Germany and
> >there are some in PA. At least she has a dr that is willing to
> >prescribe pain medications to help with the pain. Sometimes patients
> >can't even get that kind of help. Let us know what city & state she
> >lives in, maybe someone can offer more help for her.
> >Robin
> >
> >At Thu, 8 Feb 2001, angela.k.mullins@bcs.bellsouth wrote:
> >>
> >>At Sun, 11 Jun 2000, Helen Dynda wrote:
> >>>
> >>>ADHESIONS:
> >>>
> >>>A.) What are adhesions? Adhesions are fibrous bands connecting
structures that are normally separate. Adhesions develop as normal tissue responds to some form of injury. > >>>
> >>>B.) Why are adhesions a problem? Adhesions can lead to a variety of
complications which include pelvic pain, infertility, bowel obstruction and prolonged operative and recovery times. > >>>
> >>>C.) Why do adhesions form? Some of the causes of adhesion formation
are: > >>>
> >>>** Trauma is frequently a major contributor to the formation of
adhesions. It has been shown that adhesions which form or develop after surgery are a result of the body's normal healing process. > >>>
> >>>** During a surgical procedure blood flow often must be disrupted by
the cutting, coagulation or tying of sutures. This disruption can result in ischemia (lack of blood supply). This can also lead to inflammation and cause adhesion formation. > >>>
> >>>** Foreign Bodies can also cause an inflammatory reaction in the body.
A foreign body can be suture material, lint from sponges, or talc from gloves. Local cells respond to the foreign body causing cells to release factors that incite an inflammatory reaction and adhesions may result. > >>>
> >>>** Hemorrhage or bleeding brings blood products into the operating
field. The raw surfaces from the operation plus the blood from tissues can enhance the formation of adhesions. > >>>
> >>>** Infection from a variety of sources, endometriosis, or pelvic
inflammatory disease can cause inflammation which results in adhesion formation. > >>>
> >>>D.) What can be done?
> >>>Surgeons have developed microsurgical techniques that minimize trauma,
ischemia, foreign bodies, hemorrage, raw surfaces and infection to reduce adhesion formation. > >>>
> >>>1.) Microsurgical Techniques - Important surgical practices include:
> >>>
> >>>** minimization of tissue handling
> >>>
> >>>** use of delicate instruments
> >>>
> >>>** use of magnification
> >>>
> >>>** constant wetting of all tissues
> >>>
> >>>These principles are important to keep the formation of adhesions to a
minimum. > >>>
> >>>Due to the inevitability of adhesion formation, surgeons have
concentrated their efforts on intervening at varying points in the pathway of adhesion formation. > >>>
> >>>As a result, the use of various adjuvants has been employed to reduce
adhesion formation. These agents can act at one or more of the stages of adhesion formation. There are several ways to try to impact on the formation of adhesions either with chemical methods or barrier methods. > >>>
> >>>2.) Chemical Methods
> >>>The use of various drugs has been evaluated in an effort to reduce the
postoperative incidence of adhesions. To date no well-controlled study has documented the efficacy of these drugs. > >>>
> >>>3.) Barrier methods
> >>>The use of a barrier between raw tissue surfaces appears to be one of
the most promising methods of adhesion prevention. Barriers mechanically separate the surgical surfaces and keep those surfaces apart. The first surgical adjuvant specifically indicated for the reduction of adhesions in gynecologic pelvic surgery over raw services has been approved by the Food and Drug Administration in the United States. > >>>
> >>>[] NOTE: You can access the above article at the following Url:
> >>>
> >>>1.) click: INTERCEED
> >>>
> >>>2.) Click: "What are adhesions?"
> >>>
> >>>http://www.ethiconinc.com/womens_health/faq/index.htm
> >>
> >>--
> >>I was reading your ariticle about adhesions. I have a aunt who is 29
years old. She has had between 15 to 20 surgerys in 7 years. She has internal scar tissue that is so bad, the doctors said, "its like a cob web spreading inside her." > >>They are now giving her Oxycotton (synthetic herion) for the pain. And
is treating her like a cancer patient. I dont know what to do for her. I have called Doctors and hospitals in her area. They all treat me as though they had no clue what Im talking about. If you have any suggestions Please let me know > >>
> >>Sincerely,
> >>Angela
> >>
>
> --
> My aunt lives in Portsmouth Ohio. Its a small town in Ohio.I live ia
Altanta Ga and I think I have found a Doctor here for her. His name is Dr McKernan in Marrietta GA he speacilizes in removing of adhesions. His website is http://www.mindspring.com/~videosur > I am still looking into this. I am getting references and seeing this Drs
profile. > Thanks for your concern
> Angela
>
> ------------------------------
>
> ------------------------------
> Date: Thu, 8 Feb 2001 08:58:45 -0800
> ------------------------------
> From: "Janet Karam" <jkaram4@home.com>
> To: <adhesions@adhesions.org>
> Subject: Re: Adhesions...
> Message-ID: <002b01c091f0$66273d00$54e8b718@aurora1.co.home.com>
> MIME-Version: 1.0
> Content-Type: text/plain;
> charset="iso-8859-1"
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>
> Hi Angela,
>
> Has your aunt seen this site? If she hasn't try to have her visit the
site. > We have all had different journeys, and are all at different stages with
> this disease. The toughest part for many of us is the loneliness of the
> journey, so finding a site like this makes us not feel so alone and
> hopeless.
>
> I only found the IAS site a few weeks ago...not only is there tons of
great > information, there is a wealth of love and support.> I was reading your
> ariticle about adhesions. I have a aunt who is 29 years old. She has had
> between 15 to 20 surgerys in 7 years. She has internal scar tissue that
is > so bad, the doctors said, "its like a cob web spreading inside her."
>
> You and your aunt are welcome to e-mail me privately anytime.
>
> I have surgery scheduled at the Adhesions Clinic in PA March 15, there are
> surgeons there who specialize in advanced laparoscopic procedures to
remove > adhesions.
>
> I am touched by your letter, I hope that you know that you help your aunt
> just by being ther, and for believing her.
>
> Love,
>
> Janet
>
> ------------------------------
>
> ------------------------------
> Date: Thu, 8 Feb 2001 11:23:30 -0600 (CST)
> ------------------------------
> From: angela.k.mullins@bcs.bellsouth (Angi)
> To: ADHESIONS@OBGYN.NET
> Subject: Aunts (Denise) Adhesions
> Message-ID: <200102081723.LAA12942@mail.medispecialty.com>
>
> Thank you for your comments. Its nice to know that there is people out
> there. Janet I hope your surgery goes well on March 15. I will keep
> you in my prayers. My aunt (Denise) is not educated on email. I need
> to teacher her. But, with her living in Ohio and me in Georgia its
> hard. I will however, print the messages and fax them to her.
> She means the world to me. She wanted me to ask you all, "after you
> have surgery what is the chances of adhensions coming back?"
> Janet having this surgery in March. Will it take away your pain? Do you
> have any information on what they will do and how it will benefit you?
> If so privately email me and I will give you my Fax number. Its nice to
> able to speak with someone that knows something about this. Im just
> trying to get all the information I can.
>
> Im afraid that my aunt(Denise) is going deeper into depression. I cant
> let that happen to her.
> Please keep her in your prayers. I know with Gods help things will work
> out for her.
>
> --
> I was reading your ariticle about adhesions. I have a aunt who is 29 years
old. She has had between 15 to 20 surgerys in 7 years. She has internal scar tissue that is so bad, the doctors said, "its like a cob web spreading inside her." > They are now giving her Oxycotton (synthetic herion) for the pain. And is
treating her like a cancer patient. I dont know what to do for her. I have called Doctors and hospitals in her area. They all treat me as though they had no clue what Im talking about. If you have any suggestions Please let me know >
> Sincerely,
> Angela
>
> ------------------------------
>
> ------------------------------
> Date: Thu, 8 Feb 2001 14:16:18 -0600 (CST)
> ------------------------------
> From: lbrown@utvinternet.com
> To: ADHESIONS@OBGYN.NET
> Subject: Re: surgery in germany
> Message-ID: <200102082016.OAA01944@mail.medispecialty.com>
>
> Hi Jennifer
>
> I had surgery with Dr Korell in Germany in October/November of last
> year. He is a lovely man and very easy to talk to.
>
> I just want to wish you all the very best for your surgery. My prayers
> will be with you
>
> Give Elke a hug for me. She's an angel.
>
> Love
>
> Lynne.
> Northern Ireland.
>
> At Wed, 7 Feb 2001, jennifer wrote:
> >
> >Hi, I just wanted to let everyone know that I've booked a surgery date
> >with Dr. Korell in germany for March 8th. I read the message from Elke
> >about Mary and hope the other surgeries go well. I talked to Mary
> >before she left and she was in good spirits. I will let everyone know
> >how my surgery goes. I have adhesions in my right lower quadrant that
> >attaches my bowel to my abdominal wall. I have had seven surgeries in
> >the past and hope this one will be my last. I am so glad I found this
> >web site and thank everyone who has helped me along the way.
> >
> >--
> >Jennifer
> >
>
> ------------------------------
>
> ------------------------------
> Date: Thu, 8 Feb 2001 14:19:59 -0600 (CST)
> ------------------------------
> From: anonymous@medispecialty.com (Roni Rospert)
> To: ADHESIONS@OBGYN.NET
> Subject: Help me find a doctor in Ohio....
> Message-ID: <200102082019.OAA04888@mail.medispecialty.com>
>
> Can anyone recommend a doctor or clinic in Northern Ohio who is informed
> on the newest methods in caring for bowel blockages caused by adhesions.
> A week ago was my third emergency surgery for a blocked bowel, the
> second within 6 months. I have a very good surgeon and a GI specialist
> and this still happened to me again.
>
> I am really bummed out. These surgeries were really bad and I will have
> a lifelong problem of diarhea to contend with. I'd also like any
> suggestions from all of you in managing a shortened bowel.
>
> Roni
>
> ------------------------------
>
> ------------------------------
> Date: Thu, 8 Feb 2001 15:31:19 -0500
> ------------------------------
> From: "edward vinson" <argent@hemc.net>
> To: <adhesions@adhesions.org>
> Subject: Zoe, enzume treatments
> Message-ID: <002a01c0920e$189b4400$888f553f@hemc.net>
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> Zoe,
>
> I agree with all the questions that Jenny asked. I would love to know > availability, route of administration, etc. I am emailing my doctor as > soon as I am done with this site to ask him about the enzyme treatments.
>
> Thanks for sharing, I have NEVER heard of this treatment before but I am > up for anything at this point!
>
> Thanks again,
> ann-georgia
>
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> <DIV><FONT face="Times New Roman">Zoe,</FONT></DIV>
> <DIV><FONT face="Times New Roman"></FONT>&nbsp;</DIV>
> <DIV><FONT face="Times New Roman">I agree with <STRONG>all</STRONG> > the
> questions that Jenny asked.&nbsp; I would love to know availability, > route of
> administration,&nbsp;etc.&nbsp; I am emailing my doctor as soon as I am > done
> with this site to ask him about the enzyme treatments.</FONT></DIV>
> <DIV><FONT face="Times New Roman"></FONT>&nbsp;</DIV>
> <DIV><FONT face="Times New Roman">Thanks for sharing, I have NEVER > heard of this
> treatment before but I am up for anything at this point!</FONT></DIV>
> <DIV><FONT face="Times New Roman"></FONT>&nbsp;</DIV>
> <DIV><FONT face="Times New Roman">Thanks again,</FONT></DIV>
> <DIV><FONT face="Times New Roman">ann-georgia</FONT></DIV>
> <DIV><FONT face="Times New Roman"></FONT>&nbsp;</DIV>
> <DIV><FONT face="Times New Roman"></FONT>&nbsp;</DIV></BODY></HTML>
>
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>
> ------------------------------
>
> ------------------------------
> Date: Thu, 8 Feb 2001 20:18:34 -0600
> ------------------------------
> From: Mary Wade <acbcsrt@kansas.net>
> To: adhesions@adhesions.org
> Subject: Re: Aunts (Denise) Adhesions
> Message-ID: <200102090218.f192IWR22532@tuttle.kansas.net>
> Mime-Version: 1.0
> Content-Type: text/plain; charset="us-ascii"
>
> Dear Angi,
>
> I was so touched by your reaching out to help your aunt. I had a much
loved > aunt...whose influence still touches me daily even though she died 30
years > ago. Because a close aunt/niece relationship is a choice...not an
> obligation....it's particularly sweet to me. My story is on the quilt, as
> are the stories of many others on the board. Feel free to email me
> personally, if you wish. I had "bad-ass" endometriosis which made
adhesions > and a general mess. I had surgery in Dec with Drs. Reich and Redan in PA.
> Feeling MUCH better! Every story is different. I was a good candidate
for > their procedures and so am really pretty confident that this is going to
> last. I wish I had my Aunt Um back...for just a bit...to show her the kind
> of love you are offering your aunt. Thanks. Mary
>
> At 12:57 PM 2/8/01 -0600, you wrote:
> >Thank you for your comments. Its nice to know that there is people out
> >there. Janet I hope your surgery goes well on March 15. I will keep
> >you in my prayers. My aunt (Denise) is not educated on email. I need
> >to teacher her. But, with her living in Ohio and me in Georgia its
> >hard. I will however, print the messages and fax them to her.
> >She means the world to me. She wanted me to ask you all, "after you
> >have surgery what is the chances of adhensions coming back?"
> >Janet having this surgery in March. Will it take away your pain? Do you
> >have any information on what they will do and how it will benefit you?
> >If so privately email me and I will give you my Fax number. Its nice to
> >able to speak with someone that knows something about this. Im just
> >trying to get all the information I can.
> >
> >Im afraid that my aunt(Denise) is going deeper into depression. I cant
> >let that happen to her.
> >Please keep her in your prayers. I know with Gods help things will work
> >out for her.
> >
> >--
> >I was reading your ariticle about adhesions. I have a aunt who is 29
years > old. She has had between 15 to 20 surgerys in 7 years. She has internal
> scar tissue that is so bad, the doctors said, "its like a cob web
spreading > inside her."
> >They are now giving her Oxycotton (synthetic herion) for the pain. And is
> treating her like a cancer patient. I dont know what to do for her. I
have > called Doctors and hospitals in her area. They all treat me as though they
> had no clue what Im talking about. If you have any suggestions Please let
me > know
> >
> >Sincerely,
> >Angela
> >
>
> ------------------------------
>
> ------------------------------
> Date: Thu, 8 Feb 2001 21:35:13 -0600 (CST)
> ------------------------------
> From: paindoc2000@yahoo.com (MLWhitworth, MD)
> To: ADHESIONS@OBGYN.NET
> Subject: Re: Crazy enzyme treatment suggestion?!
> Message-ID: <200102090335.VAA23855@mail.medispecialty.com>
>
> I use serracea (extract of the Pitcher plant) in the form of Serapin
> (High Chemical Co) and hyaluronidase (Wydase) for scar tissue. The
> Serapin is injectable peripherally but some use it in the epidural
> space...I am unsure of the degree if its use here...
> The Wydase is used as part of epiduroscopy or the Racz procedure to help
> with lysis of adhesions in the epidural space. It is an injectable
> agent in the epidural space. In the past there were studies reporting
> its use in arachnoiditis, but later it was found some of those patients
> became worse after an intrathecal injection of Wydase...
> MLWhitworth, MD
> At Thu, 8 Feb 2001, Zoe wrote:
> >
> >Thanks Jenny,
> >I'll asked today and get back to you.
> >Z
> >
> >At Thu, 8 Feb 2001, jenny low wrote:
> >>
> >>Hi Zoe,
> >>
> >>I've never heard of either of those enzymes. How are they administered?
Are > >>they oral or by injections? Ask if they are available in the states?
> >>Do you have to have a prescription or is it something you could get at a
> >>health food store? I don't know. Just thought I would throw in some
> >>questions that you could ask. I hope you find out something good!
> >>
> >>Hugs,
> >>Jenny
> >>
> >>>From: anonymous@medispecialty.com (Zoe)
> >>>Reply-To: adhesions@adhesions.org
> >>>To: Multiple recipients of list ADHESIONS
> >>><adhesions@mail.medispecialty.com>
> >>>Subject: Crazy enzyme treatment suggestion?!
> >>>Date: Wed, 7 Feb 2001 11:35:38 -0600
> >>>
> >>>Hi all,
> >>>I was talking to a Pharmacologist today and he said that the enzyme
> >>>"Serratia Paptidase" is very effective for breaking down surgical
> >>>adhesions! He also named the enzyme " Hyaluronidase" as a treatment
too. > >>>Have any of you heard about this at all? He seemed to think that it was
> >>>definately a way to go rather than surgery.
> >>>Please comment.
> >>>He's only around for a week so I need to pick his brains as much as
> >>>possible about it. So please send me any questions you might have.
> >>>Cheers,
> >>>Zoe
> >>>
> >>>--
> >>>Zoe (UK)
> >>>

> >Zoe (UK)
> >
>
> ------------------------------
>
> ------------------------------
> Date: Thu, 8 Feb 2001 23:54:31 -0600
> ------------------------------
> From: "Teresa Waldrop" <twaldro3@bellsouth.net>
> To: <adhesions@adhesions.org>
> Subject: Accupuncture
> Message-ID: <003a01c0925c$c6d3f500$a4c5d6d1@hppav>
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> I haven't written much in the past few days due to the pain. I have been > trying to keep up with everything. I wanted to tell everyone that I used > acupuncture for a while to help. It was wonderful for the first 3-4 > months. Actually, she was the one that told me that I needed to go back > to my gyn. because she felt that there was something going wrong with my > appendix. About a month after that I had surgery (again!) and my doctor > had to remove my appendix because it was folded in half and connected > with adhesions. She was surprised that I didn't have my appendix taken > out when I had my total abdominal hysterectomy. I know how much it > helped me for a while and I would definitely recommend that everyone > give it a try. It takes about 3-4 visits before you notice a change. I > was surprised how it helped me. I used to think that stuff like that was > wacky. I hope that you can understand what I'm trying to get across. I > know that I am jumping back and forth. You all know what the pain med. > do to your brain when trying to think and type at the same time. I go > back to my doctor Monday to talk to him about helping me with my > decision about the PA doctors. Wish me luck. Especially since my > doctor's nurse is smarting off to me about refilling my pain medicine. I > told her that if she had another suggestions that may help with my pain > that I would be glad to try them, but until then I needed my medicine or > she needed to let my talk to the doctor. Finally then she said that she > would let me have "one last refill". I hate being at the mercy of others > just to be able to get through a day without screaming from pain. Who do > these people think they are? Why can they control how bad I do or do not > hurt? If the doctor could fix this I wouldn't need their help.
> Here's to Priceless Days for us all !!!!!! - Teresa
>
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> <DIV><FONT face=Arial size=2>I haven't written much in the past few > days due to
> the pain. I have been trying to keep up with everything. I wanted to > tell
> everyone that I used acupuncture for a while to help. It was wonderful > for the
> first 3-4 months. Actually, she was the one that told me that I needed > to go
> back to my gyn. because she felt that there was something going wrong > with my
> appendix. About a month after that I had surgery (again!) and my doctor > had to
> remove my appendix because it was folded in half and connected with > adhesions.
> She was surprised that I didn't have my appendix taken out when I had my > total
> abdominal hysterectomy. I know how much it helped me for a while and I > would
> definitely recommend that everyone give it a try. It takes about 3-4 > visits
> before you notice a change. I was surprised how it helped me. I used to > think
> that stuff like that was wacky. I hope that you can understand what I'm > trying
> to get across. I know that I am jumping back and forth. You all know > what the
> pain med. do to your brain when trying to think and type at the same > time. I go
> back to my doctor Monday to talk to him about helping me with my > decision about
> the PA doctors. Wish me luck. Especially since my doctor's nurse is > smarting off
> to me about refilling my pain medicine. I told her that if she had > another
> suggestions that may help with my pain that I would be glad to try them, > but
> until then I needed my medicine or she needed to let my talk to the > doctor.
> Finally then she said that she would let me have "one last refill". I > hate being
> at the mercy of others just to be able to get through a day without > screaming
> from pain. Who do these people think they are? Why can they control how > bad I do
> or do not hurt? If the doctor could fix this I wouldn't need&nbsp;their > help.
> </FONT></DIV>
> <DIV><FONT face=Arial size=2>Here's to Priceless Days for us all > !!!!!!&nbsp; -
> Teresa</FONT></DIV></BODY></HTML>
>
> ------=_NextPart_000_0037_01C0922A.7B2555E0--
>
> ------------------------------
>
> ------------------------------
> Date: Fri, 9 Feb 2001 18:01:04 +1000
> ------------------------------
> From: "Robyne Hinks" <rhinks@eisa.net.au>
> To: <adhesions@adhesions.org>
> Subject: Re: Kate...about Ensure
> Message-ID: <001901c0926e$78b29040$84e515cb@robynehinks>
> MIME-Version: 1.0
> Content-Type: text/plain;
> charset="iso-8859-1"
> Content-Transfer-Encoding: 7bit
>
> Dear Janet I have most of my bowel removed and a Professor of
> gastroenterology told me the worst thing I can do for my body is to take
soy > products.They are very hard to digest and when you have a sluggish
> bowel,lazy bowel bowel obstructions or partial obstructions then you
should > stay clear of them.I also heard this from another bowel surgeon as well
and > I took some soy milk and I did suffer bad but I dont know whether it was
> coincidence or not.Love always Robyne

>> ----- Original Message -----
> From: Janet Karam <jkaram4@home.com>
> To: Multiple recipients of list ADHESIONS <adhesions@forum.obgyn.net>
> Sent: Friday, February 09, 2001 1:47 AM
> Subject: Re: Kate...about Ensure
>
> > Thanks Kate,
> >
> > It's soy based. At this point it probably doesn't mater what I drink or
> > eat...even if I sipped water all day with nothing else, I'm sure I'd be
> > uncomfortably bloated.
> >
> > Most likely it's the partial blockages you mentioned, and the build up
of > > gas.
> >
> > Have a good day, thanks for always being so helpful.
> >
> > Love,
> >
> > Janet
> >
>
> ------------------------------
>
> ------------------------------
> Date: Fri, 9 Feb 2001 06:08:46 -0600 (CST)
> ------------------------------
> From: PJtweetyRn@aol.com (Pam Markford)
> To: ADHESIONS@OBGYN.NET
> Subject: Here is to 'HANGING IN'
> Message-ID: <200102091208.GAA31207@mail.medispecialty.com>
>
> Dear Teresa and all of us,
> Remember that unfortunately there are still medical personel that are
> obliviious to the amount of pain that adhesion cause! Save your energy
> and pray for them to get educated. (Can you believe I am a nurse
> talking about other nurses this way!) But if the shoe fits then not only
> wear it but learn to wear it the right way! Teresa concentrate with
> talking to your doctor and DO NOT waste your precious energy with the
> nurse. I would however, mention to your doctor the nurse's attitude
> towards your pain medication request so that you are not confronted with
> that attitude again! NO one deserves to be treated like that when you
> are suffering, especially. Please don't get discouraged just use it for
> FYI in the future when you call ask the receptionist if you could leave
> a message to have the doctor to call you back if the nurse can't have a
> change of heart! Hang in thee and continue to write to us many if not
> all of us know how you feel and some days that knowledge is priceless,
> right ! Now on a positive note I think we all should also share our
> "Priceless Days" maybe a couple of stories a day sure would lift spirits
> don't you all think? Something to think about for all of us. I am going
> to try to remember all of my priceless moments today!
> Here is a smile to yours!!!!!! :)
>
> --
> In Loving Friendship,
> Pam Markford
>
> ------------------------------
>
> ------------------------------
> Date: Fri, 9 Feb 2001 07:30:01 -0600 (CST)
> ------------------------------
> From: ifirgit@new.rr.com (Karla)
> To: ADHESIONS@ADHESIONS.ORG
> Subject: Need Helen's Help
> Message-ID: <200102091330.HAA11732@mail.medispecialty.com>
>
> Helen,
>
> I was wondering if you could either send me or post the Patient's Bill
> of Rights...particularly as it pertains to the right to receiving proper
> treatments. I have a new computer and do not have access to anything
> stored on the old computer. Thank you
>
> Karla
>
> ------------------------------
>
> ------------------------------
> Date: Fri, 9 Feb 2001 09:35:03 -0500
> ------------------------------
> From: "Kate Murphy" <katemm@mindspring.com>
> To: adhesions@adhesions.org
> Subject: Re: Kate...about Ensure
> Message-ID: <3A83B9C7.8173.4276C0D@localhost>
> MIME-Version: 1.0
> Content-type: text/plain; charset=US-ASCII
> Content-transfer-encoding: 7BIT
>
> On 9 Feb 2001, at 1:53, Robyne Hinks wrote:
>
> > Dear Janet I have most of my bowel removed and a Professor of
> > gastroenterology told me the worst thing I can do for my body is to take
soy > > products.They are very hard to digest and when you have a sluggish
> > bowel,lazy bowel bowel obstructions or partial obstructions then you
should > > stay clear of them
>
> Robyn,
>
> Thanks for this information. I have avoided Soy because of its
> estrogen like properties. I have had breast cancer and avoid
> estrogen. However, it is used in lots of products for the lactose
> intolerant and is often suggested as an alternative.
>
> Knowing that it is difficult to digest is important. Thanks.
>
> Kate
> Kate Murphy
> katemm@mindspring.com
>
> ------------------------------
>
> ------------------------------
> Date: Fri, 9 Feb 2001 09:35:03 -0500
> ------------------------------
> From: "Kate Murphy" <katemm@mindspring.com>
> To: adhesions@adhesions.org
> Subject: Re: Here is to 'HANGING IN'
> Message-ID: <3A83B9C7.8174.4276B6B@localhost>
> MIME-Version: 1.0
> Content-type: text/plain; charset=US-ASCII
> Content-transfer-encoding: 7BIT
>
> On 9 Feb 2001, at 6:09, Pam Markford wrote:
>
> >Now on a positive note I think we all should also share our
> > "Priceless Days" maybe a couple of stories a day sure would lift spirits
> > don't you all think? Something to think about for all of us. I am going
> > to try to remember all of my priceless moments today!
> > Here is a smile to yours!!!!!! :)
>
> Several years ago I started a Gratitude Journal which I pick up and
> then forget about every few months. This particular journal is a
> calendar book with dates that can be "recirculated" -- that is, they
> are not tied to a particular day of the week.
>
> My goal now is to fill all the pages. February is empty. I must
> have had the journal at the bottom of the pile that month for the
> past two years.
>
> So I begin again writing for February 8th: Rollies successful heart
> surgery, 7 years of no cancer (had appointment with gyn-onc on
> Tuesday that was completely routine), a pink peony candle, Nancy
> and Jim (two folks from church who bring a meal each week, talk,
> and help with a chore or two around the house),Tom! (Tom's my
> husband. The exclamation point is for so many special things.)
>
> In September sometime, (who knows there are no yearly dates) I
> wrote: A completely quiet day to look forward, Internet: a place to
> connect, get things done for future if I can't move easily, the Lake
> cold enough to calm and refresh me in a time of exhaustion and
> fear ...
>
> Get a pretty journal or calendar -- they're cheap now if you can find
> one for 2001. Every day write down 3 to 5 things that you are
> grateful for. Writing them down will cheer you, reading them again
> will strengthen you.
>
> Six whacks of a wet piece of spagetti for not remembering to do
> this EVERY day.
>
> Love from Kate
> Kate Murphy
> katemm@mindspring.com
>
> ------------------------------
>
> ------------------------------
> End of ADHESIONS Digest 821
> ------------------------------
> ***************************

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