Re: please help, I am so scared
From: khickey (khickey@mciworld.com)
Tue Dec 7 14:31:15 1999
Alicia, I am so glad you posted to the board. I myself had endometriosis
from the ages of 14-20, when I had a complete hysterectomy. I was very
richly blessed by God, to be able to have 2 beautiful boys before my
surgery. I was told the pain I was experiencing was in my head, I was
depressed, needed psychiatric care, and a host of other things. I had one
doctor who finally saw that there most certainly was a problem, and it was
one that needed to be taken care of immediately. When he got inside of my
abdomen, there were scar tissues attached to 90 % of my organs within the
pelvic and abdomen area. I had surgery in 1983, and have had 18 total since
that date. I am now experiencing problems again, but I feel the new
products on the market are going to be a big help to us with adhesions. I
am presently using several different pain killers, but manage to get through
each day, with the grace of God, and the support of a wonderful family.
Alicia, take some time for yourself, and sit down and look at the family and
friends, that God has blessed you with in your life, and make the decision
to not allow yourself to feel you are a "burden" to anyone. They all love
you, and yet probably don't know what to do to help you, and therefore may
not call or be with you as much as they used to before the surgery and the
pain. Tell them how you feel, and let them know how they can help you.
Don't ever feel you are a burden to anyone. I have lived with pain from
adhesions for over 20 years now, and I have bad and good days, but each of
them are there for a reason. I always tell myself, that there are people
with more pain than me today, so I must go on. I am holding down a good job
tutoring at the local high school here in my town for the time being, but
hope to be able to collect SSI disability in the near future. I am not sure
if this will help my pain, but it will give me a chance to possibly help
others with this disease in some way.
I am sorry you are in so much pain, and the weight does become a problem
for those of us who must be inactive. Hopefully you will find something you
can do to increase (gradually) your activity level.
I hope something I have said will make a difference for you. I know how
scary this disease is, and I am right there with you with your fears. If
you want to talk to me further, let me know. I can't help you with a doctor
in that area. I am in the Dayton/Cinci area. Wishing you best of luck. I
will mention a prayer for you. God Bless, Kim Hickey
-----Original Message-----
From: alicia <nesaby@arthlink.net>
To: Multiple recipients of list ADHESIONS <adhesions@talk.obgyn.net>
Date: Tuesday, December 07, 1999 8:18 AM
Subject: please help, I am so scared
>hello everyone,
>I am new to this board. I had two laps over the summer for
>endometriosis. Then I was still in chronic and constant pain evertime I
>moved or walked. I thought it was regrowth of the endo. (sharp
>knifelike pulling pains) however, my doctor went in on laparoscopy #3
>and found my ovary and bladder were scarred with tissue to my cavity
>walls. Now the surgery was done about two weeks ago and I have the same
>pain as before.
>
>these are my biggest fears
>1. I have more scar tissue and this surgery did not work
>2. this will never end..i.e. more surgery=more scarring
>3. I have gained so much weight due to a lack of activity from this
>pain--it hurts less if I don't stand or walk on my feet and my muscles
>must be atrophying
>4. my doctor is running out of patience and seems to believe part of
>the problem is that I have a low pain tolerance...I need some sort of
>specialist I guess who will take me more seriously.
>5. I just feel like no one understands me or these fears and I am
>nothing more then a burden to my frineds, spouse and family
>
>does anyone know of any doctor who could help me..the closer the
>better...i live in Albany (upstate) new york, US
>
>my e-mail is
>nesaby@earthlink.net
>
>thank you all
>alicia
>