Hi Kris, Thanks for the info about the Celious Plexis Block. Sorry to hear it didn't do the trick for you. I know about your surgeries, but wasn't aware that your Gallbladder had also been removed. Since mine was removed back in 2007, my pain got much worse, and has really intensified in that area. It is very scary, it makes me wonder what's next? or is it really adhesions. I never really had much pain on my right side except ovary pain when I had a cyst rupture, and bled into the ovary. I know that 2 weeks wasn't very long for pain relief, plus you were more than likely still very sore from your surgeries. I'm sorry that you have been through so much in just a few short months. Just not fair! The last time I went to the E.R. for adhesion pain, I sat there for 3-1/2 hours. I went up to the counter and said that my pain was so excruciating, that I was leaving to go home. I could no longer sit on those hard uncomfortable chairs. I came home went through the same routine, and saw my family Doc the next day. Unbelieveable. I am tired of having to be tough, and deal with this pain. When I am around family, or friends that I don't see often, I actually get embarrassed when my pain is so intense, and I am doubling over. My Aunt that is 84 said on the phone last night, "you better take it easy" you don't want your Dad to see you ill when he comes up to visit in July. As if I can turn it off. People just do not get it and that frustrates me more than anything else. You take care, rest and if you have to bite the bullet and go in to the E.R. then Do IT!! maybe they will all get so sick of us, they will try to help solve our illness with A.R.D. Sometimes all I want to do is sit and cry, whine, and feel sorry for myself. It is so childish but it helps cleanse my soul to turn around and try to be strong again. Take care everyone. I enjoy all of our conversations very much. Cheryl D.
>----- Original Message -----
From: IAS Admin (Tracy) To: Multiple recipients of list ADHESIONS Sent: Tuesday, June 09, 2009 4:00 PM Subject: Adhesions & Pain (Celiac Plexus Nerve Block) From: firstname.lastname@example.org (Kris) Subject: Re: Adhesions & Pain (Celiac Plexus Nerve Block)
At Thu, 4 Jun 2009, IAS Admin wrote:
>Hi! It's Kris in MN. I had a Celiac lexus Nerve Block about 3 months ago.
It kinda helped for about 3 days. Everyone is different, though, and it may be helful for you. I had adhesions removed in March. During that surgery, they found a large, right sided ovarian cyst. The cyst was removed. My ovary needed to come out as well, but they didn't have signed consent. I had surgery again on the 4th of May to have the ovary and my gall bladder removed. The gall bladder was because I continued to have the same kind of pain after the March surgery. THe adhesions hd returned. They removed them again. Most of them were in the area of my gall bladder. That's the area of my worst pain. I had about a 2 week break from pain, but now it's back worse than ever. I've been fighting going to the ER all weekend, but am going to give up the battle. You guys know how tough it is. Hang in there, all! >From: email@example.com [mailto:firstname.lastname@example.org] On Behalf Of
>HERB F DIXON
>Sent: Thursday, June 04, 2009 2:39 PM
>Subject: Re: Adhesions & Pain
>Caryn, You are so far the only person that has said they have has the
>Celious Plexis Block. What is it? How is it used, how long did it help? Or
>did it help at all? That is my next step. I am suppose to have ins.
starting >this month, don't know what has happened, so I have to get on the phone. I
>have had Intercostal nerve blocks 4 times. They did not help, actually
>seemed to increase the pain. You say that you are thinking about
getting one >of the visceral nerves cut but, the drawback would be not knowing if you
>were having a Heart attack, bowel blockage etc. There are other ways to
tell >when something is going wrong with your body, heart, bowels etc. I am very
>interested in this procedure. Imagine no more PAIN, pain meds,having a
>Normal life, sleeping through the night, actually being able to attend
>functions and not canceling the last minute, I could go on and on..I am
>excited for you, and hope that your visit goes well. Let me know how
>your Dr. app't goes. Good luck,Take care, Cheryl D. One more question? Can
>having the nerve cut cause phantom nerve pain? Like when someone looses a
>limb? I have been telling my husband about you as I am writing and that is
>his question. Thanks :)
>Subject: Re: Adhesions & Pain
>My doctor is Abdelkadar Hawasli. His office is in St. Clair Shores, MI and
>he operates out of St. John Hospital in Detroit.
>He told me I'd most likely be back for more lysis of adhesions because my
>body produces so many.
>I do have a glimpse of hope though. Over the years I've been twice to two
>different pain clinics. They tried the usual celius plexus block and
>something else, but it didn't do any good. Finally one of the doctors
there >told me the real fix for me was have one of my visceral nerves cut so that
I >wouldn't feel any pain from my insides. He implied it was borderline
>unethical and that I would have a hard time finding a doctor to do it since
>I wouldn't know if I were to have a heart attack or bowel obstruction.
>Well I brought this up to Dr. Hawasli and he's sending me to a thorasic
>surgeon who does robotic surgery and told me to tell him that he would
>operate with him to cut my splanatic (or sympathic) nerve. He did tell me
>the criteria is high for such a procedure, but he is willing. He even
>personally spoke to the thorasic surgeon so he knows all about me. My
>appointment is June 12th. I'm hopeful they have something to offer me.
>This is something I've waited for all my life.
>Wish me luck!