HELP ME PLEASE

From: dstevens (ddoffice@noln.com)
Fri Sep 15 10:40:54 2000


HI! My name is Debbie and I have the same concerns as many of you do! First how does one know when to actually go through another surgerical procedure and with whom? I had adhesions removed in 1988 and was painfree until 1998! At that time I had a Labroscopy that removed major sheaths of adhesions (pictures shown had no view of any organs as the adhesions were so thick!). Then 2 months later I had a hernia operation, the doctor used the Sepramesh to patch it. I had some relief for a couple of weeks, not painfree-just relief, then I had increased pain! Eventually I had a laproscopy which I had my right ovary removed and more adhesions removed!! I was put on Lupron therapy as there were signs of Endometriosis. I was told I could be on Lupron for only 6 months when it was terminated the pain became excrutiating again. Then this past Nov I had a hysterectomy done, which should have killed the pain as I was told that my left ovary was completely imbedded in my pelvic bone!! The doctor did use Interceed to help stop future adhesions! But unfortunately I had no relief!! Now I have been without a job for almost a year as the pain has held me from being able to do much activity, be it sitting, standing, or walking, the only position that I have relief is in a lounging position with my legs up!! Now my question: Will I ever be able to rid of this problem and get back to a normal life?? My pain specialist is considering placing a SynchroMed Infusion System in my body! The problem I see with this is the knowledge that I'll be returning for miny surgeries every couple of years to replce the product when the battery dies!! Currently I am fighting to get disability and have been worned that it will be a hard fight. They give me an attitude with the assessment as we know the old school says adhesions don't cause pain!!!! If one goes through another operation, which can cause more adhesions, how can it be diagnosed that it's adhesions causing the pain unless they go operate agai n to see if that is causing the pain??? As I see it, I'm getting into a cycle of operations to see if I still have adhesions and if whatever barrier is useed actually worked!! PLease help give some confidence or support that if I do have another operation the pain will subside!! Thanks Deb

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