Re: HELP ME PLEASE

From: Bernie and Beverly Doucette (bnb@cybrzn.com)
Mon Sep 18 08:52:33 2000


It is brain matter, :-)

>----- Original Message -----
From: Karla <ifirgit@webcntrl.com> To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com> Sent: Sunday, September 17, 2000 9:42 PM Subject: Re: HELP ME PLEASE

> Linda,
>
> Perhaps you could answer a question for me? What is Dura Mater? I have
had > umpteen zillion hernia procedures since 1991 (I am not exaggerating
> either...well, maybe not quite a zillion). I am in the process of having
> some sort of special synthetic wall made especially for me that will be
put > in and expanded over a matter of time. Then once it is to where they want
> it to be they will bring it down (from my upper abdomen) after they have
> done my urinary revision. I have been everywhere in search of
> help...including Mayo...and nobody could come up with any solutions other
> than this doctor at the University of Chicago.
>
> Karla
>

>> ----- Original Message -----
> From: Linda Halford <libra1945@hotmail.com>
> To: Multiple recipients of list ADHESIONS
<adhesions@mail.medispecialty.com> > Sent: Sunday, September 17, 2000 9:23 PM
> Subject: Re: HELP ME PLEASE
>
> > Dear Deb,
> >
> > What is a Synchromed Infusion System? My pain specialist has suggested
> the
> > Morphine Pump implant. I had my abdomen secured with "Dura Mater" after
> it
> > herniated a thrid time. Dr. Bernd-Uwe Sevin a Mayo Clinic
> OBgyn/Oncologist
> > surgeon performed it.
> >
> > I would not want to have surgery to remove adhesions if it is not a
> > permanent solution. From what I have learned about Dr. Reich's
> > "Adhesionlysis" procedure, adhesions do not return. His theory is "the
> > solution to the pollution is dilution." This makes sense to me.
> >
> > I look forward to hearing from you soon. Thanks!
> >
> > Linda Halford, Jacksonville, FL
> >
> > >From: "dstevens" <ddoffice@noln.com>
> > >Reply-To: adhesions@obgyn.net
> > >To: Multiple recipients of list ADHESIONS
> > ><adhesions@mail.medispecialty.com>
> > >Subject: HELP ME PLEASE
> > >Date: Fri, 15 Sep 2000 10:43:05 -0500
> > >
> > >HI! My name is Debbie and I have the same concerns as many of you do!
> First
> > >how does one know when to actually go through another surgerical
> procedure
> > >and with whom? I had adhesions removed in 1988 and was painfree until
> 1998!
> > >At that time I had a Labroscopy that removed major sheaths of adhesions
> > >(pictures shown had no view of any organs as the adhesions were so
> thick!).
> > >Then 2 months later I had a hernia operation, the doctor used the
> Sepramesh
> > >to patch it. I had some relief for a couple of weeks, not painfree-just
> > >relief, then I had increased pain! Eventually I had a laproscopy which
I > > >had my right ovary removed and more adhesions removed!! I was put on
> Lupron
> > >therapy as there were signs of Endometriosis. I was told I could be on
> > >Lupron for only 6 months when it was terminated the pain became
> > >excrutiating again. Then this past Nov I had a hysterectomy done, which
> > >should have killed the pain as I was told that my left ovary was
> completely
> > >imbedded in my pelvic bone!! The doctor did use Interceed to help stop
> > >future adhesions! But unfortunately I had no relief!! Now I have been
> > >without a job for almost a year as the pain has held me from being able
> to
> > >do much activity, be it sitting, standing, or walking, the only
position > > >that I have relief is in a lounging position with my legs up!! Now my
> > >question: Will I ever be able to rid of this problem and get back to a
> > >normal life?? My pain specialist is considering placing a SynchroMed
> > >Infusion System in my body! The problem I see with this is the
knowledge > > >that I'll be returning for miny surgeries every couple of years to
replce > > >the product when the battery dies!! Currently I am fighting to get
> > >disability and have been worned that it will be a hard fight. They give
> me
> > >an attitude with the assessment as we know the old school says
adhesions > > >don't cause pain!!!! If one goes through another operation, which can
> cause
> > >more adhesions, how can it be diagnosed that it's adhesions causing the
> > >pain unless they go operate again to see if that is causing the pain???
> As
> > >I see it, I'm getting into a cycle of operations to see if I still have
> > >adhesions and if whatever barrier is useed actually worked!!
> > >PLease help give some confidence or support that if I do have another
> > >operation the pain will subside!!
> > >Thanks
> > >Deb
> >

http://www.hotmail.com. > >
>


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