Re: HELP ME PLEASE

From: Bernie and Beverly Doucette (bnb@cybrzn.com)
Mon Sep 18 13:24:22 2000


As long as it helps, why not!! As we know from experience, what works for those surgeons who dare to be different, is what will eventually help those whom other surgeons have not helped!!

Maybe this something Karla should discuss with Dr. Zachary while in Chicago today. Why not right??

Thank you Linda, super interesting and almost a relief that someone is trying something to help hernia patients!!!

Bev

>----- Original Message -----
From: Linda Halford <libra1945@hotmail.com> To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com> Sent: Monday, September 18, 2000 10:11 AM Subject: Re: HELP ME PLEASE

> Dear Bev,
>
> Dr. Bernd-Uwe Sevin, Oncologist, OBgyn, Mayo Clinic, Jacksonville, FL,
> previously taught medicine for approximately 20 years at the University of
> Miami, FL. He has used "Dura Mater" to repair hernias and has written
> articles about its use. What is it? Lining from the brain of a deceased
> person. If you call Dr. Sevin at (904) 952-200/953-2216, he will send you
> information on the use of "Dura Mater." As far as I know, he is the only
> doctor who uses it. A friend of mine who had herniated a few times after
> having had a Tram Flap, had it placed in her. Gloria can be reached at
> e-mail: Glory9743@aol.com.
>
> >From: "Bernie and Beverly Doucette" <bnb@cybrzn.com>
> >Reply-To: adhesions@obgyn.net
> >To: Multiple recipients of list ADHESIONS
> ><adhesions@mail.medispecialty.com>
> >Subject: Re: HELP ME PLEASE
> >Date: Mon, 18 Sep 2000 09:00:02 -0500
> >
> >It is brain matter, :-)

>> >----- Original Message -----
> >From: Karla <ifirgit@webcntrl.com>
> >To: Multiple recipients of list ADHESIONS
> ><adhesions@mail.medispecialty.com>
> >Sent: Sunday, September 17, 2000 9:42 PM
> >Subject: Re: HELP ME PLEASE
> >
> > > Linda,
> > >
> > > Perhaps you could answer a question for me? What is Dura Mater? I
have > >had
> > > umpteen zillion hernia procedures since 1991 (I am not exaggerating
> > > either...well, maybe not quite a zillion). I am in the process of
> >having
> > > some sort of special synthetic wall made especially for me that will
be > >put
> > > in and expanded over a matter of time. Then once it is to where they
> >want
> > > it to be they will bring it down (from my upper abdomen) after they
have > > > done my urinary revision. I have been everywhere in search of
> > > help...including Mayo...and nobody could come up with any solutions
> >other
> > > than this doctor at the University of Chicago.
> > >
> > > Karla
> > >

>> > > ----- Original Message -----
> > > From: Linda Halford <libra1945@hotmail.com>
> > > To: Multiple recipients of list ADHESIONS
> ><adhesions@mail.medispecialty.com>
> > > Sent: Sunday, September 17, 2000 9:23 PM
> > > Subject: Re: HELP ME PLEASE
> > >
> > > > Dear Deb,
> > > >
> > > > What is a Synchromed Infusion System? My pain specialist has
> >suggested
> > > the
> > > > Morphine Pump implant. I had my abdomen secured with "Dura Mater"
> >after
> > > it
> > > > herniated a thrid time. Dr. Bernd-Uwe Sevin a Mayo Clinic
> > > OBgyn/Oncologist
> > > > surgeon performed it.
> > > >
> > > > I would not want to have surgery to remove adhesions if it is not a
> > > > permanent solution. From what I have learned about Dr. Reich's
> > > > "Adhesionlysis" procedure, adhesions do not return. His theory is
> >"the
> > > > solution to the pollution is dilution." This makes sense to me.
> > > >
> > > > I look forward to hearing from you soon. Thanks!
> > > >
> > > > Linda Halford, Jacksonville, FL
> > > >
> > > > >From: "dstevens" <ddoffice@noln.com>
> > > > >Reply-To: adhesions@obgyn.net
> > > > >To: Multiple recipients of list ADHESIONS
> > > > ><adhesions@mail.medispecialty.com>
> > > > >Subject: HELP ME PLEASE
> > > > >Date: Fri, 15 Sep 2000 10:43:05 -0500
> > > > >
> > > > >HI! My name is Debbie and I have the same concerns as many of you
do! > > > First
> > > > >how does one know when to actually go through another surgerical
> > > procedure
> > > > >and with whom? I had adhesions removed in 1988 and was painfree
until > > > 1998!
> > > > >At that time I had a Labroscopy that removed major sheaths of
> >adhesions
> > > > >(pictures shown had no view of any organs as the adhesions were so
> > > thick!).
> > > > >Then 2 months later I had a hernia operation, the doctor used the
> > > Sepramesh
> > > > >to patch it. I had some relief for a couple of weeks, not
> >painfree-just
> > > > >relief, then I had increased pain! Eventually I had a laproscopy
> >which
> >I
> > > > >had my right ovary removed and more adhesions removed!! I was put
on > > > Lupron
> > > > >therapy as there were signs of Endometriosis. I was told I could be
> >on
> > > > >Lupron for only 6 months when it was terminated the pain became
> > > > >excrutiating again. Then this past Nov I had a hysterectomy done,
> >which
> > > > >should have killed the pain as I was told that my left ovary was
> > > completely
> > > > >imbedded in my pelvic bone!! The doctor did use Interceed to help
> >stop
> > > > >future adhesions! But unfortunately I had no relief!! Now I have
been > > > > >without a job for almost a year as the pain has held me from being
> >able
> > > to
> > > > >do much activity, be it sitting, standing, or walking, the only
> >position
> > > > >that I have relief is in a lounging position with my legs up!! Now
my > > > > >question: Will I ever be able to rid of this problem and get back
to > >a
> > > > >normal life?? My pain specialist is considering placing a
SynchroMed > > > > >Infusion System in my body! The problem I see with this is the
> >knowledge
> > > > >that I'll be returning for miny surgeries every couple of years to
> >replce
> > > > >the product when the battery dies!! Currently I am fighting to get
> > > > >disability and have been worned that it will be a hard fight. They
> >give
> > > me
> > > > >an attitude with the assessment as we know the old school says
> >adhesions
> > > > >don't cause pain!!!! If one goes through another operation, which
can > > > cause
> > > > >more adhesions, how can it be diagnosed that it's adhesions causing
> >the
> > > > >pain unless they go operate again to see if that is causing the
> >pain???
> > > As
> > > > >I see it, I'm getting into a cycle of operations to see if I still
> >have
> > > > >adhesions and if whatever barrier is useed actually worked!!
> > > > >PLease help give some confidence or support that if I do have
another > > > > >operation the pain will subside!!
> > > > >Thanks
> > > > >Deb
> > > >

> >http://www.hotmail.com.
> > > >
> > > > to the unsubscribe form at
> >http://www.adhesions.org/forums/listcmds.htm
> > >
> > > to the unsubscribe form at

http://www.adhesions.org/forums/listcmds.htm > >
>


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