Maybe this something Karla should discuss with Dr. Zachary while in Chicago today. Why not right??
Thank you Linda, super interesting and almost a relief that someone is trying something to help hernia patients!!!
Bev
>----- Original Message -----
From: Linda Halford <libra1945@hotmail.com>
To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com>
Sent: Monday, September 18, 2000 10:11 AM
Subject: Re: HELP ME PLEASE
> Dear Bev,
>
> Dr. Bernd-Uwe Sevin, Oncologist, OBgyn, Mayo Clinic, Jacksonville, FL,
> previously taught medicine for approximately 20 years at the University of
> Miami, FL. He has used "Dura Mater" to repair hernias and has written
> articles about its use. What is it? Lining from the brain of a deceased
> person. If you call Dr. Sevin at (904) 952-200/953-2216, he will send you
> information on the use of "Dura Mater." As far as I know, he is the only
> doctor who uses it. A friend of mine who had herniated a few times after
> having had a Tram Flap, had it placed in her. Gloria can be reached at
> e-mail: Glory9743@aol.com.
>
> >From: "Bernie and Beverly Doucette" <bnb@cybrzn.com>
> >Reply-To: adhesions@obgyn.net
> >To: Multiple recipients of list ADHESIONS
> ><adhesions@mail.medispecialty.com>
> >Subject: Re: HELP ME PLEASE
> >Date: Mon, 18 Sep 2000 09:00:02 -0500
> >
> >It is brain matter, :-)
>> >----- Original Message -----
> >From: Karla <ifirgit@webcntrl.com>
> >To: Multiple recipients of list ADHESIONS
> ><adhesions@mail.medispecialty.com>
> >Sent: Sunday, September 17, 2000 9:42 PM
> >Subject: Re: HELP ME PLEASE
> >
> > > Linda,
> > >
> > > Perhaps you could answer a question for me? What is Dura Mater? I
have
> >had
> > > umpteen zillion hernia procedures since 1991 (I am not exaggerating
> > > either...well, maybe not quite a zillion). I am in the process of
> >having
> > > some sort of special synthetic wall made especially for me that will
be
> >put
> > > in and expanded over a matter of time. Then once it is to where they
> >want
> > > it to be they will bring it down (from my upper abdomen) after they
have
> > > done my urinary revision. I have been everywhere in search of
> > > help...including Mayo...and nobody could come up with any solutions
> >other
> > > than this doctor at the University of Chicago.
> > >
> > > Karla
> > >
>> > > ----- Original Message -----
> > > From: Linda Halford <libra1945@hotmail.com>
> > > To: Multiple recipients of list ADHESIONS
> ><adhesions@mail.medispecialty.com>
> > > Sent: Sunday, September 17, 2000 9:23 PM
> > > Subject: Re: HELP ME PLEASE
> > >
> > > > Dear Deb,
> > > >
> > > > What is a Synchromed Infusion System? My pain specialist has
> >suggested
> > > the
> > > > Morphine Pump implant. I had my abdomen secured with "Dura Mater"
> >after
> > > it
> > > > herniated a thrid time. Dr. Bernd-Uwe Sevin a Mayo Clinic
> > > OBgyn/Oncologist
> > > > surgeon performed it.
> > > >
> > > > I would not want to have surgery to remove adhesions if it is not a
> > > > permanent solution. From what I have learned about Dr. Reich's
> > > > "Adhesionlysis" procedure, adhesions do not return. His theory is
> >"the
> > > > solution to the pollution is dilution." This makes sense to me.
> > > >
> > > > I look forward to hearing from you soon. Thanks!
> > > >
> > > > Linda Halford, Jacksonville, FL
> > > >
> > > > >From: "dstevens" <ddoffice@noln.com>
> > > > >Reply-To: adhesions@obgyn.net
> > > > >To: Multiple recipients of list ADHESIONS
> > > > ><adhesions@mail.medispecialty.com>
> > > > >Subject: HELP ME PLEASE
> > > > >Date: Fri, 15 Sep 2000 10:43:05 -0500
> > > > >
> > > > >HI! My name is Debbie and I have the same concerns as many of you
do!
> > > First
> > > > >how does one know when to actually go through another surgerical
> > > procedure
> > > > >and with whom? I had adhesions removed in 1988 and was painfree
until
> > > 1998!
> > > > >At that time I had a Labroscopy that removed major sheaths of
> >adhesions
> > > > >(pictures shown had no view of any organs as the adhesions were so
> > > thick!).
> > > > >Then 2 months later I had a hernia operation, the doctor used the
> > > Sepramesh
> > > > >to patch it. I had some relief for a couple of weeks, not
> >painfree-just
> > > > >relief, then I had increased pain! Eventually I had a laproscopy
> >which
> >I
> > > > >had my right ovary removed and more adhesions removed!! I was put
on
> > > Lupron
> > > > >therapy as there were signs of Endometriosis. I was told I could be
> >on
> > > > >Lupron for only 6 months when it was terminated the pain became
> > > > >excrutiating again. Then this past Nov I had a hysterectomy done,
> >which
> > > > >should have killed the pain as I was told that my left ovary was
> > > completely
> > > > >imbedded in my pelvic bone!! The doctor did use Interceed to help
> >stop
> > > > >future adhesions! But unfortunately I had no relief!! Now I have
been
> > > > >without a job for almost a year as the pain has held me from being
> >able
> > > to
> > > > >do much activity, be it sitting, standing, or walking, the only
> >position
> > > > >that I have relief is in a lounging position with my legs up!! Now
my
> > > > >question: Will I ever be able to rid of this problem and get back
to
> >a
> > > > >normal life?? My pain specialist is considering placing a
SynchroMed
> > > > >Infusion System in my body! The problem I see with this is the
> >knowledge
> > > > >that I'll be returning for miny surgeries every couple of years to
> >replce
> > > > >the product when the battery dies!! Currently I am fighting to get
> > > > >disability and have been worned that it will be a hard fight. They
> >give
> > > me
> > > > >an attitude with the assessment as we know the old school says
> >adhesions
> > > > >don't cause pain!!!! If one goes through another operation, which
can
> > > cause
> > > > >more adhesions, how can it be diagnosed that it's adhesions causing
> >the
> > > > >pain unless they go operate again to see if that is causing the
> >pain???
> > > As
> > > > >I see it, I'm getting into a cycle of operations to see if I still
> >have
> > > > >adhesions and if whatever barrier is useed actually worked!!
> > > > >PLease help give some confidence or support that if I do have
another
> > > > >operation the pain will subside!!
> > > > >Thanks
> > > > >Deb
> > > >
> >http://www.hotmail.com.
> > > >
> > > > to the unsubscribe form at
> >http://www.adhesions.org/forums/listcmds.htm
> > >
> > > to the unsubscribe form at
http://www.adhesions.org/forums/listcmds.htm
> >
>