Perhaps you could answer a question for me? What is Dura Mater? I have had umpteen zillion hernia procedures since 1991 (I am not exaggerating either...well, maybe not quite a zillion). I am in the process of having some sort of special synthetic wall made especially for me that will be put in and expanded over a matter of time. Then once it is to where they want it to be they will bring it down (from my upper abdomen) after they have done my urinary revision. I have been everywhere in search of help...including Mayo...and nobody could come up with any solutions other than this doctor at the University of Chicago.
-- Karla
>----- Original Message ----- From: Linda Halford <libra1945@hotmail.com> To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com> Sent: Sunday, September 17, 2000 9:23 PM Subject: Re: HELP ME PLEASE
> Dear Deb, > > What is a Synchromed Infusion System? My pain specialist has suggested the > Morphine Pump implant. I had my abdomen secured with "Dura Mater" after it > herniated a thrid time. Dr. Bernd-Uwe Sevin a Mayo Clinic
OBgyn/Oncologist > surgeon performed it. > > I would not want to have surgery to remove adhesions if it is not a > permanent solution. From what I have learned about Dr. Reich's > "Adhesionlysis" procedure, adhesions do not return. His theory is "the > solution to the pollution is dilution." This makes sense to me. > > I look forward to hearing from you soon. Thanks! > > Linda Halford, Jacksonville, FL > > >From: "dstevens" <ddoffice@noln.com> > >Reply-To: adhesions@obgyn.net > >To: Multiple recipients of list ADHESIONS > ><adhesions@mail.medispecialty.com> > >Subject: HELP ME PLEASE > >Date: Fri, 15 Sep 2000 10:43:05 -0500 > > > >HI! My name is Debbie and I have the same concerns as many of you do! First > >how does one know when to actually go through another surgerical procedure > >and with whom? I had adhesions removed in 1988 and was painfree until 1998! > >At that time I had a Labroscopy that removed major sheaths of adhesions > >(pictures shown had no view of any organs as the adhesions were so thick!). > >Then 2 months later I had a hernia operation, the doctor used the Sepramesh > >to patch it. I had some relief for a couple of weeks, not painfree-just > >relief, then I had increased pain! Eventually I had a laproscopy which I > >had my right ovary removed and more adhesions removed!! I was put on Lupron > >therapy as there were signs of Endometriosis. I was told I could be on > >Lupron for only 6 months when it was terminated the pain became > >excrutiating again. Then this past Nov I had a hysterectomy done, which > >should have killed the pain as I was told that my left ovary was completely > >imbedded in my pelvic bone!! The doctor did use Interceed to help stop > >future adhesions! But unfortunately I had no relief!! Now I have been > >without a job for almost a year as the pain has held me from being able to > >do much activity, be it sitting, standing, or walking, the only position > >that I have relief is in a lounging position with my legs up!! Now my > >question: Will I ever be able to rid of this problem and get back to a > >normal life?? My pain specialist is considering placing a SynchroMed > >Infusion System in my body! The problem I see with this is the knowledge > >that I'll be returning for miny surgeries every couple of years to replce > >the product when the battery dies!! Currently I am fighting to get > >disability and have been worned that it will be a hard fight. They give me > >an attitude with the assessment as we know the old school says adhesions > >don't cause pain!!!! If one goes through another operation, which can cause > >more adhesions, how can it be diagnosed that it's adhesions causing the > >pain unless they go operate again to see if that is causing the pain??? As > >I see it, I'm getting into a cycle of operations to see if I still have > >adhesions and if whatever barrier is useed actually worked!! > >PLease help give some confidence or support that if I do have another > >operation the pain will subside!! > >Thanks > >Deb >