Karla
>----- Original Message -----
From: Bernie and Beverly Doucette <bnb@cybrzn.com>
Sent: Monday, September 18, 2000 1:25:18 PM
To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com>
Subject: Re: HELP ME PLEASE
> As long as it helps, why not!! As we know from experience, what works for
> those surgeons who dare to be different, is what will eventually help
those
> whom other surgeons have not helped!!
>
> Maybe this something Karla should discuss with Dr. Zachary while in
Chicago
> today. Why not right??
>
> Thank you Linda, super interesting and almost a relief that someone is
> trying something to help hernia patients!!!
>
> Bev
>> ----- Original Message -----
> From: Linda Halford <libra1945@hotmail.com>
> To: Multiple recipients of list ADHESIONS
<adhesions@mail.medispecialty.com>
> Sent: Monday, September 18, 2000 10:11 AM
> Subject: Re: HELP ME PLEASE
>
> > Dear Bev,
> >
> > Dr. Bernd-Uwe Sevin, Oncologist, OBgyn, Mayo Clinic, Jacksonville, FL,
> > previously taught medicine for approximately 20 years at the University
of
> > Miami, FL. He has used "Dura Mater" to repair hernias and has written
> > articles about its use. What is it? Lining from the brain of a
deceased
> > person. If you call Dr. Sevin at (904) 952-200/953-2216, he will send
you
> > information on the use of "Dura Mater." As far as I know, he is the
only
> > doctor who uses it. A friend of mine who had herniated a few times
after
> > having had a Tram Flap, had it placed in her. Gloria can be reached at
> > e-mail: Glory9743@aol.com.
> >
> > >From: "Bernie and Beverly Doucette" <bnb@cybrzn.com>
> > >Reply-To: adhesions@obgyn.net
> > >To: Multiple recipients of list ADHESIONS
> > ><adhesions@mail.medispecialty.com>
> > >Subject: Re: HELP ME PLEASE
> > >Date: Mon, 18 Sep 2000 09:00:02 -0500
> > >
> > >It is brain matter, :-)
>> > >----- Original Message -----
> > >From: Karla <ifirgit@webcntrl.com>
> > >To: Multiple recipients of list ADHESIONS
> > ><adhesions@mail.medispecialty.com>
> > >Sent: Sunday, September 17, 2000 9:42 PM
> > >Subject: Re: HELP ME PLEASE
> > >
> > > > Linda,
> > > >
> > > > Perhaps you could answer a question for me? What is Dura Mater? I
> have
> > >had
> > > > umpteen zillion hernia procedures since 1991 (I am not exaggerating
> > > > either...well, maybe not quite a zillion). I am in the process of
> > >having
> > > > some sort of special synthetic wall made especially for me that will
> be
> > >put
> > > > in and expanded over a matter of time. Then once it is to where
they
> > >want
> > > > it to be they will bring it down (from my upper abdomen) after they
> have
> > > > done my urinary revision. I have been everywhere in search of
> > > > help...including Mayo...and nobody could come up with any solutions
> > >other
> > > > than this doctor at the University of Chicago.
> > > >
> > > > Karla
> > > >
>> > > > ----- Original Message -----
> > > > From: Linda Halford <libra1945@hotmail.com>
> > > > To: Multiple recipients of list ADHESIONS
> > ><adhesions@mail.medispecialty.com>
> > > > Sent: Sunday, September 17, 2000 9:23 PM
> > > > Subject: Re: HELP ME PLEASE
> > > >
> > > > > Dear Deb,
> > > > >
> > > > > What is a Synchromed Infusion System? My pain specialist has
> > >suggested
> > > > the
> > > > > Morphine Pump implant. I had my abdomen secured with "Dura Mater"
> > >after
> > > > it
> > > > > herniated a thrid time. Dr. Bernd-Uwe Sevin a Mayo Clinic
> > > > OBgyn/Oncologist
> > > > > surgeon performed it.
> > > > >
> > > > > I would not want to have surgery to remove adhesions if it is not
a
> > > > > permanent solution. From what I have learned about Dr. Reich's
> > > > > "Adhesionlysis" procedure, adhesions do not return. His theory is
> > >"the
> > > > > solution to the pollution is dilution." This makes sense to me.
> > > > >
> > > > > I look forward to hearing from you soon. Thanks!
> > > > >
> > > > > Linda Halford, Jacksonville, FL
> > > > >
> > > > > >From: "dstevens" <ddoffice@noln.com>
> > > > > >Reply-To: adhesions@obgyn.net
> > > > > >To: Multiple recipients of list ADHESIONS
> > > > > ><adhesions@mail.medispecialty.com>
> > > > > >Subject: HELP ME PLEASE
> > > > > >Date: Fri, 15 Sep 2000 10:43:05 -0500
> > > > > >
> > > > > >HI! My name is Debbie and I have the same concerns as many of you
> do!
> > > > First
> > > > > >how does one know when to actually go through another surgerical
> > > > procedure
> > > > > >and with whom? I had adhesions removed in 1988 and was painfree
> until
> > > > 1998!
> > > > > >At that time I had a Labroscopy that removed major sheaths of
> > >adhesions
> > > > > >(pictures shown had no view of any organs as the adhesions were
so
> > > > thick!).
> > > > > >Then 2 months later I had a hernia operation, the doctor used the
> > > > Sepramesh
> > > > > >to patch it. I had some relief for a couple of weeks, not
> > >painfree-just
> > > > > >relief, then I had increased pain! Eventually I had a laproscopy
> > >which
> > >I
> > > > > >had my right ovary removed and more adhesions removed!! I was put
> on
> > > > Lupron
> > > > > >therapy as there were signs of Endometriosis. I was told I could
be
> > >on
> > > > > >Lupron for only 6 months when it was terminated the pain became
> > > > > >excrutiating again. Then this past Nov I had a hysterectomy done,
> > >which
> > > > > >should have killed the pain as I was told that my left ovary was
> > > > completely
> > > > > >imbedded in my pelvic bone!! The doctor did use Interceed to help
> > >stop
> > > > > >future adhesions! But unfortunately I had no relief!! Now I have
> been
> > > > > >without a job for almost a year as the pain has held me from
being
> > >able
> > > > to
> > > > > >do much activity, be it sitting, standing, or walking, the only
> > >position
> > > > > >that I have relief is in a lounging position with my legs up!!
Now
> my
> > > > > >question: Will I ever be able to rid of this problem and get back
> to
> > >a
> > > > > >normal life?? My pain specialist is considering placing a
> SynchroMed
> > > > > >Infusion System in my body! The problem I see with this is the
> > >knowledge
> > > > > >that I'll be returning for miny surgeries every couple of years
to
> > >replce
> > > > > >the product when the battery dies!! Currently I am fighting to
get
> > > > > >disability and have been worned that it will be a hard fight.
They
> > >give
> > > > me
> > > > > >an attitude with the assessment as we know the old school says
> > >adhesions
> > > > > >don't cause pain!!!! If one goes through another operation, which
> can
> > > > cause
> > > > > >more adhesions, how can it be diagnosed that it's adhesions
causing
> > >the
> > > > > >pain unless they go operate again to see if that is causing the
> > >pain???
> > > > As
> > > > > >I see it, I'm getting into a cycle of operations to see if I
still
> > >have
> > > > > >adhesions and if whatever barrier is useed actually worked!!
> > > > > >PLease help give some confidence or support that if I do have
> another
> > > > > >operation the pain will subside!!
> > > > > >Thanks
> > > > > >Deb
> > > > >
> >
> > >http://www.hotmail.com.
> > > > >
> > > > > to the unsubscribe form at
> > >http://www.adhesions.org/forums/listcmds.htm
> > > >
> > > > to the unsubscribe form at
> http://www.adhesions.org/forums/listcmds.htm
> > >
http://www.adhesions.org/forums/listcmds.htm
> >
http://www.hotmail.com.
> >
>