Re: toni-fears

From: toni welsh (
Tue Oct 26 08:56:40 1999

At Mon, 25 Oct 1999, teresa hunt wrote: >
>JJ and Toni:
>The hot bathes do help. My family laughs and makes fun of me. They
>sometimes even ask "Are you gonna live in there?", funny to them. I usually
>go to bed afterwards.. They think I am sulling because they made fun of the
>screaming and grunting. They just don't understand what a BM does to us. I
>get worried because since I cut down on the pericolace I only have bm's
>every 4-6 days (not good) I have some duplac syrup. My GI says it causes
>the bowel to swell more. aka more pain. It's got to point nothing works
>even the citrcell. The pain patches help the pain but I've had one BM since
>I've started them. Gas is getting harder to pass. Thanks for
>>From: (Jaynie Jarvis)
>>To: Multiple recipients of list ADHESIONS <>
>>Subject: Re: toni-fears
>>Date: Mon, 25 Oct 1999 12:45:02 -0500
>>At Mon, 25 Oct 1999, toni welsh wrote:
>> >
>> >At Mon, 25 Oct 1999, Gina wrote:
>> >>
>> >>Hi Toni,
>> >>I sure do understand your fears & why you have them! (It is same for me
>> >>in my family with bowel problems, and cancer running in the family and I
>> >>have pretty much had everything my mom had so far, and she died of
>> >>cancer at 52. I'm 36).
>> >>
>> >>I am sure you are telling your docs of your family history correct? I am
>> >>surprised that you aren't seeing a GI doc regularly to monitor your
>> >>situation? I think if it were me, I would insist on being followed-up.
>> >>know a few years ago I had severe IBS (that I now believe was caused by
>> >>adhesions). I was seeing a specialist almost monthly for years for this
>> >>problem, I was followed VERY closely. No one even mentioned adhesions
>> >>then, or I could have been saved 8 years of suffering from it. The
>> >>adhesions on my bowels were removed in my last surgery 6 weeks ago.
>> >>
>> >>2 weeks ago I had serious bowel troubles, and pain and pressure. I am
>> >>convinced I have new adhesions, this time on my lower intestines in
>> >>pelvic area. It took me a week of taking laxatives, and an ER visit,
>> >>plus an enema morning and night daily, before I started to get relief.
>> >>would suggest you try enemas also. It is less destructive than
>> >>laxatives.
>> >>Also try metamucil 2x a day, follow each glass with a FULL glass of
>> >>water. Try to get away from laxatives such as senna, x-lax, etc. Those
>> >>make things worse and don't promote a healthy bowel environment at all.
>> >>Also if you could eat a salad every day, it would help.
>> >>
>> >>My bowels are now moving daily, but are a little sluggish (takes 3 days
>> >>to eliminate a specific meal). I believe the zantac prescription I take
>> >>for the suspected stomach ulcer, is causing the little bit of sluggish
>> >>bowel constipation I still have. Today I am seeing a doc to switch
>> >>medicines (tagamet supposedly doesn't have that side effect, zantac
>> >>does).
>> >>
>> >>Hope this helps?
>> >>Gina
>> >>
>> >>>yesterda I could
>> >>>not even walk and to try to move the pain and costricting pain was
>> >>>terrible. I have not gone to the bathroom for awhile, and I do think
>> >>>that was part of the problem, but some of my drs just do not listen to
>> >>>me, if I do not take a laxative of some sort, and they tell me senekot
>> >>>being a vegetable laxative, will not hurt my bowel, I do not go. I am
>> >>>feeling now my bowel has become reliant on laxatives.
>> >>>
>> >>>last week I took it on monday night, and the cramps kept me awak for 3
>> >>>hours, and finally I did go, but it hurts to ave a bowel movement.
>> >>>People who do not ave this problem do not understand the terrible pain.
>> >>>For a lot of people it is just normal to go everyday. They do not
>> >>>understand my fear, My mother dies after an epeisode kind of a bowel
>> >>>obstruction, but I know now she had a different situatio. her bowel
>> >>>died, and te blood supply was cut off to her bowel, and the drs kept
>> >>>telling her it was the flu. Well she had 3 surgeries in 3 days 6 hours
>> >>>long, and we lost her. She was very ill and I know this. We did not
>> >>>know it then, she trusted her drs. WRONG!
>> >>>
>> >>>Well we lost another family member, he was 70 years old, but he had a
>> >>>colonoscopy in June, and the dr DID tell him he could not get the scope
>> >>>in, and he did have a blockage, well he was told to see a surgeon, and
>> >>>he didn't. he got sicl on a Sunday, and they had to remove 7 inches of
>> >>>his bowel, but he had already develped an infection, they put a
>> >>>temporarycolostomy on him and gave him 48 hours and they would have to
>> >>>go back in, well 28 hours later they performed emergency urgery again,
>> >>>and he died he next night. Tis WAS a bowel obstruction that killed him
>> >>>
>> >>>My feras a so real and strong, and I am extremely scared of ANYMORE
>> >>>surgery unless there is an obstruction, but when you have this happen
>> >>>your family so many times, and crohns disease in your son and sister
>> >>>fears are greater, I am scared, and very scared. Today I am feeling
>> >>>better, but I am convinced that I am ahving partial obstructions at
>> >>>times, do to the extreme pain I get at times. Do any of you understand
>> >>>this fear, or am I crazy?
>> >>>
>> >>>I hope today finds you all happy, I am to the poit now where I do not
>> >>>even feel like going out too often, and that is not me. I guess I just
>> >>>want to feel good again, and time keeps going on. when is some one
>> >>>going to find a way to help us. Boy I did not expect this to be so
>> >>>long, sorry!
>> >>>
>> >>>Love to all,
>> >>>Toni
>> >
>> >Gina, thank you so uch for your caring post. I have been treated fir
>> >IBS for years, they changed te Levbid Itook for raninitide, it is a
>> >generic for zantac. On top of that being constipating I have been on
>> >narcotics for 7 months now. Seems every med I take it is constipating,
>> >cannnot win.
>> >
>> >This morning I woke up with severe cramping , and still my bowels have
>> >not moved. When I get those cramping pains and they are very strong, I
>> >wait a little while, and even though it s very painful just to tr to
>> >relief it, the gas is extremely hardto get out. This is all that has
>> >come ut so far, not to sound gross, but that is the only way to explain
>> >this to drs. I drank a large glass of prune juice which should work for
>> >me soon. But this is why I feel I ave had partal obstructions, due to
>> >the terrible hard pains after a laxative, I had 4 senekot and 2 colace
>> >before bed. It works for awhile, then I go back on duphalc which is a
>> >prescription syrup, this is safe to take forever, but it works for
>> >awhile too, then I have to depend on something else. I sometimes feel
>> >so discouraged I cannot tand it Gina, but something keeps us going. Now
>> >the thought that something may work for us someday. By the waywith all
>> >this on my mid, I am prod to say it is now a full month for no
>> >cigarettes, it got rough Saturday, but I made it through tat day! Back o
>> >the patch, it DOES help! I hope you feel better soon, Gina, I care too!
>> >
>> >Toni
>>Toni, for some tempory pain relief a hot bath might help sooth bowel
>>pain. I know it sounds like take an aspirin and call me in the morning!
>>Someone should probably be home in case you can't get out.Good luck and
>>keep us posted. Funny aren't we!But who else would understand but us.
>>My family all claps when I finally go.It is a celabration and a big joke
>>to them. Not to me, I usually have to go back to bed for awhile. JJ

yes it is awful, teresa, I went over 10 days onc time last year, I ended up in ER, but it is awful. If I did not take all this junk, I just would not go. I knew the duphalac was reacting weird, but my GI drs do not believe all the pain from not going, like I said I am lucky to have the pain clinic and my gyn. We can't win, the meds help some but then our bowels wouldn't move. I dont know where te pain clinic will go from here they think I am satisfied with the pain control, well only sometimes!


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