Re: teresa-Question on adhesions

From: Gina (
Sun Oct 24 09:55:20 1999

Hi Teresa, What new meds that really work??? Tell all! :-) Yes I have noticed the people giving the most advise on how to deal with adhesions, have never had one themselves. There should be a rule about that! LOL Hugs, Gina

At Sat, 23 Oct 1999, teresa hunt wrote: >
>Hi Gina: I have a bad few days and hevan't been on-line. (Getting adjusted
>to the new meds which REALLY WORK). Family and friends don't know what will
>make your pain and adhesions better unless they have experienced them
>personally. That old saying about walking a mile in my shoes goes for
>adhesions too!!! Keep the faith and it's NEVER too late to do something
>about it. Teresa
>>From: (Gina)
>>To: Multiple recipients of list ADHESIONS <>
>>Subject: Question on adhesions
>>Date: Thu, 21 Oct 1999 10:06:19 -0500
>>I am new here, though by all rights I should have been here 18 years ago
>>because that's when my adventure with adhesions began. Only I didn't
>>know it (and docs didn't dx it) til I had surgery 8/12/99. Now I am
>>known as "adhesion prone". Yippeeee! (BTW, I have a weird sense of
>>humor, better to laugh than cry most days).
>>Anyway, it wasn't til after my 2nd surgery (9/15/99) that I researched
>>adhesions and found out it was possible to prevent them with exercise
>>immediately after surgery, or with barriers, etc. No one told me--even
>>though they knew I was adhesion prone. So I laid flat for 2 weeks solid
>>"resting", hardly ever moving because I was told not to "over-do" it,
>>etc. Now I find out it was the worst thing I could have done! It "set"
>>my new adhesions permanently doing that, I think?
>>Anyway I am getting tired of everyone (friends & family) telling me the
>>best thing for adhesions is exercise. Sure in the beginning that might
>>be true to keep them from attaching. But at 5 weeks post-op, when they
>>have already started to harden and be permanently attached, most
>>exercise hurts!!! ALOT! I can walk for a short time comfortably, but any
>>bending, twisting, tummy and lower back area stuff is excruciating.
>>Are they right? Should I be trying to exercise through the pain to
>>detach them? Are my new adhesions permanent at 5 weeks, and hard? Is
>>there anything I can do besides surgery and pills, to get rid of the
>>pain and the adhesions at 5 weeks post-op?
>>My doc who did the surgery told me that yes I do have new adhesions
>>again in pelvic area, and I will just have to live with chronic pain. He
>>told me that at 2 & 1/2 weeks post-op! He gave up. He said no one will
>>operate to remove adhesions only, just because it hurts. He also said
>>in my case any surgery to remove adhesions would make more (even
>>laprascopy since that was how these last 2 surgeries were done, and both
>>created new adhesions). I am not ready to accept "chronic pain" when it
>>seems early enough to do SOME thing about them?

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