Re: frustration and adhesions.....ann

From: Toni Welsh (welsh@mail.fuse.net)
Mon Apr 26 10:25:17 1999


At Fri, 23 Apr 1999, ann wrote: >
>dear toni,
>i dont know if u remember me but we use to correspond on the endo
>forum..i know exactly how u feel.i had a full hysterectomy and had to go
>thru a neurectomy where they cut a nerve because it was trapped in
>adhesions...i still have pain .did u have a full hyst...are u still in
>pain? what are the drs. doing for u?please email me any time
>your friend
>ann barberAt Thu, 22 Apr 1999, Toni Welsh wrote:
>>
>>At Wed, 21 Apr 1999, CYNDY HAMILTON wrote:
>>>
>>>Toni Welsh wrote:
>>>>
>>>> This is the most frustrating thing I have ever had to go through in my
>>>> life, and I am so sick and tired of all the drs including the pain
>>>> center has told me I may have to live with it! I feel the same about
>>>> surgery(laparotomy), I will never go through that again(Ihope), but as
>>>> far as a lap, I would hope the drs could get in to maybe remove SOME of
>>>> these adhesions.
>>>>
>>>> The last laparotomy was very hard on me, I was in terrible pain, and
>>>> develped an ileus, and was sick for 2 days until it resolved, I was
>>>> miserable, and was in the hospital a week, the surgery in april was not
>>>> that bad and I was only there 3 days, the gyn said that each time they
>>>> manipulate the bowel, it slows it down more everytime, and more
>>>> complications can arise, that is why they are trying to stay away from
>>>> ANY surgery for quite some time. He told my husband he would be willing
>>>> to do a lap but he will not touch the abdomen for awhile, so I have to
>>>> be patient and he talked too about the new barriers that may be
>>>> available by the end of the year. I do get some relief from the pain
>>>> center, but the pulling and pain in the lower abdomen, and legs and
>>>> groin area, I am not pain free, I would give anything to be painfree,
>>>> and I wish the drs would quit telling me i have to learn to live with
>>>> this, maybe they mean for alittle while, all I know is they say more
>>>> surgery could make matters worde, and I know my gyn is fed up with me
>>>> complaining, but he was the only one who seemed to understand til the
>>>> pain center, I am sorry this is so long, just had some time I thought I
>>>> would write my frustrations, thinking it may help me feel better, I hate
>>>> to keep telling my husband, I am sure he gets tired of hearing about it,
>>>> but I am gettng tired of living it!
>>>>
>>>> Hope you are all doing okay, and if you need to talk you can email me,
>>>> my computer is very slow, but I will try to answer if I can help anyone!
>>>>
>>>> Toni
>>>
>>>Hi Toni...
>>>My name is Cyndy...I am a 39 year old adhesion suffer....my husband
>>>and I are at a frustration level....I have had many,many surguries
>>>and the adhesions are so bad that the drs. tried the lap..scope and
>>>they could not penatrate through the adhesions....so they sent me home
>>>and here i sit 4 years later and many doctors later....they all start
>>>out the same....you know the routine...they want to help....then they
>>>give you pain meds....then they want you to try and not take the pain
>>>meds.....then you SUFFER and then they (the doctors) get tired of you
>>>and the cycle begins all over again...
>>>So in addition to being in PAIN you have to play games with the
>>>doctors...... I am so,so tired of all of this
>>> THERE HAS TO BE SOMETHING OUT THERE FOR ALL OF
>>>US.... SOMETHING ON THE CUTTING EDGE...THAT CAN HELP.....
>>>
>>>THANKS CYNDY
>>
>>Cyndi,
>>
>>i was wondering how many surgeries you have had, my sister has had alot
>>more than I have and she NEVER has compllained about pain from
>>adhesions. Were yours gyn related?
>>
>>I have had 6 laparotomies, and 4 laps, but the last 4 years were 3
>>laparotmies, and 3 laps. the other ones were many years ago, staryed
>>with c section 22 years ago.
>>
>>But when the gyn did my hysterectomy, I had massive adhesion I knew
>>nothing about that was 4 years ago.
>>
>>Toni
>
>--
>annmbarber@yahoo.com
>

Hi ann,

i have had a hysterectomy, and last ovary removed last year, I am not pain free, at all, I am concerned about ORS, and all the gyn will do is estrogen check, I have quit taking it, and I have NO menopausal symtoms, but ALOT of right sided pain where the last ovary was VERY stuck.

I will write you later I have to go see my grandmaother now!

Toni


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