Re: frustration and adhesions

From: ann (
Fri Apr 23 08:54:22 1999

dear toni, i dont know if u remember me but we use to correspond on the endo forum..i know exactly how u feel.i had a full hysterectomy and had to go thru a neurectomy where they cut a nerve because it was trapped in adhesions...i still have pain .did u have a full hyst...are u still in pain? what are the drs. doing for u?please email me any time your friend ann barberAt Thu, 22 Apr 1999, Toni Welsh wrote: >
>At Wed, 21 Apr 1999, CYNDY HAMILTON wrote:
>>Toni Welsh wrote:
>>> This is the most frustrating thing I have ever had to go through in my
>>> life, and I am so sick and tired of all the drs including the pain
>>> center has told me I may have to live with it! I feel the same about
>>> surgery(laparotomy), I will never go through that again(Ihope), but as
>>> far as a lap, I would hope the drs could get in to maybe remove SOME of
>>> these adhesions.
>>> The last laparotomy was very hard on me, I was in terrible pain, and
>>> develped an ileus, and was sick for 2 days until it resolved, I was
>>> miserable, and was in the hospital a week, the surgery in april was not
>>> that bad and I was only there 3 days, the gyn said that each time they
>>> manipulate the bowel, it slows it down more everytime, and more
>>> complications can arise, that is why they are trying to stay away from
>>> ANY surgery for quite some time. He told my husband he would be willing
>>> to do a lap but he will not touch the abdomen for awhile, so I have to
>>> be patient and he talked too about the new barriers that may be
>>> available by the end of the year. I do get some relief from the pain
>>> center, but the pulling and pain in the lower abdomen, and legs and
>>> groin area, I am not pain free, I would give anything to be painfree,
>>> and I wish the drs would quit telling me i have to learn to live with
>>> this, maybe they mean for alittle while, all I know is they say more
>>> surgery could make matters worde, and I know my gyn is fed up with me
>>> complaining, but he was the only one who seemed to understand til the
>>> pain center, I am sorry this is so long, just had some time I thought I
>>> would write my frustrations, thinking it may help me feel better, I hate
>>> to keep telling my husband, I am sure he gets tired of hearing about it,
>>> but I am gettng tired of living it!
>>> Hope you are all doing okay, and if you need to talk you can email me,
>>> my computer is very slow, but I will try to answer if I can help anyone!
>>> Toni
>>Hi Toni...
>>My name is Cyndy...I am a 39 year old adhesion husband
>>and I are at a frustration level....I have had many,many surguries
>>and the adhesions are so bad that the drs. tried the lap..scope and
>>they could not penatrate through the they sent me home
>>and here i sit 4 years later and many doctors later....they all start
>>out the know the routine...they want to help....then they
>>give you pain meds....then they want you to try and not take the pain
>>meds.....then you SUFFER and then they (the doctors) get tired of you
>>and the cycle begins all over again...
>>So in addition to being in PAIN you have to play games with the
>>doctors...... I am so,so tired of all of this
>i was wondering how many surgeries you have had, my sister has had alot
>more than I have and she NEVER has compllained about pain from
>adhesions. Were yours gyn related?
>I have had 6 laparotomies, and 4 laps, but the last 4 years were 3
>laparotmies, and 3 laps. the other ones were many years ago, staryed
>with c section 22 years ago.
>But when the gyn did my hysterectomy, I had massive adhesion I knew
>nothing about that was 4 years ago.


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