dear toni,
i dont know if u remember me but we use to correspond on the endo
forum..i know exactly how u feel.i had a full hysterectomy and had to go
thru a neurectomy where they cut a nerve because it was trapped in
adhesions...i still have pain .did u have a full hyst...are u still in
pain? what are the drs. doing for u?please email me any time
your friend
ann barberAt Thu, 22 Apr 1999, Toni Welsh wrote:
> >At Wed, 21 Apr 1999, CYNDY HAMILTON wrote: >> >>Toni Welsh wrote: >>> >>> This is the most frustrating thing I have ever had to go through in my >>> life, and I am so sick and tired of all the drs including the pain >>> center has told me I may have to live with it! I feel the same about >>> surgery(laparotomy), I will never go through that again(Ihope), but as >>> far as a lap, I would hope the drs could get in to maybe remove SOME of >>> these adhesions. >>> >>> The last laparotomy was very hard on me, I was in terrible pain, and >>> develped an ileus, and was sick for 2 days until it resolved, I was >>> miserable, and was in the hospital a week, the surgery in april was not >>> that bad and I was only there 3 days, the gyn said that each time they >>> manipulate the bowel, it slows it down more everytime, and more >>> complications can arise, that is why they are trying to stay away from >>> ANY surgery for quite some time. He told my husband he would be willing >>> to do a lap but he will not touch the abdomen for awhile, so I have to >>> be patient and he talked too about the new barriers that may be >>> available by the end of the year. I do get some relief from the pain >>> center, but the pulling and pain in the lower abdomen, and legs and >>> groin area, I am not pain free, I would give anything to be painfree, >>> and I wish the drs would quit telling me i have to learn to live with >>> this, maybe they mean for alittle while, all I know is they say more >>> surgery could make matters worde, and I know my gyn is fed up with me >>> complaining, but he was the only one who seemed to understand til the >>> pain center, I am sorry this is so long, just had some time I thought I >>> would write my frustrations, thinking it may help me feel better, I hate >>> to keep telling my husband, I am sure he gets tired of hearing about it, >>> but I am gettng tired of living it! >>> >>> Hope you are all doing okay, and if you need to talk you can email me, >>> my computer is very slow, but I will try to answer if I can help anyone! >>> >>> Toni >> >>Hi Toni... >>My name is Cyndy...I am a 39 year old adhesion suffer....my husband >>and I are at a frustration level....I have had many,many surguries >>and the adhesions are so bad that the drs. tried the lap..scope and >>they could not penatrate through the adhesions....so they sent me home >>and here i sit 4 years later and many doctors later....they all start >>out the same....you know the routine...they want to help....then they >>give you pain meds....then they want you to try and not take the pain >>meds.....then you SUFFER and then they (the doctors) get tired of you >>and the cycle begins all over again... >>So in addition to being in PAIN you have to play games with the >>doctors...... I am so,so tired of all of this >> THERE HAS TO BE SOMETHING OUT THERE FOR ALL OF >>US.... SOMETHING ON THE CUTTING EDGE...THAT CAN HELP..... >> >>THANKS CYNDY > >Cyndi, > >i was wondering how many surgeries you have had, my sister has had alot >more than I have and she NEVER has compllained about pain from >adhesions. Were yours gyn related? > >I have had 6 laparotomies, and 4 laps, but the last 4 years were 3 >laparotmies, and 3 laps. the other ones were many years ago, staryed >with c section 22 years ago. > >But when the gyn did my hysterectomy, I had massive adhesion I knew >nothing about that was 4 years ago. > >Toni