Re: frustration and adhesions
From: Toni Welsh (welsh@mail.fuse.net)
Thu Apr 22 08:51:18 1999
At Wed, 21 Apr 1999, CYNDY HAMILTON wrote:
>
>Toni Welsh wrote:
>>
>> This is the most frustrating thing I have ever had to go through in my
>> life, and I am so sick and tired of all the drs including the pain
>> center has told me I may have to live with it! I feel the same about
>> surgery(laparotomy), I will never go through that again(Ihope), but as
>> far as a lap, I would hope the drs could get in to maybe remove SOME of
>> these adhesions.
>>
>> The last laparotomy was very hard on me, I was in terrible pain, and
>> develped an ileus, and was sick for 2 days until it resolved, I was
>> miserable, and was in the hospital a week, the surgery in april was not
>> that bad and I was only there 3 days, the gyn said that each time they
>> manipulate the bowel, it slows it down more everytime, and more
>> complications can arise, that is why they are trying to stay away from
>> ANY surgery for quite some time. He told my husband he would be willing
>> to do a lap but he will not touch the abdomen for awhile, so I have to
>> be patient and he talked too about the new barriers that may be
>> available by the end of the year. I do get some relief from the pain
>> center, but the pulling and pain in the lower abdomen, and legs and
>> groin area, I am not pain free, I would give anything to be painfree,
>> and I wish the drs would quit telling me i have to learn to live with
>> this, maybe they mean for alittle while, all I know is they say more
>> surgery could make matters worde, and I know my gyn is fed up with me
>> complaining, but he was the only one who seemed to understand til the
>> pain center, I am sorry this is so long, just had some time I thought I
>> would write my frustrations, thinking it may help me feel better, I hate
>> to keep telling my husband, I am sure he gets tired of hearing about it,
>> but I am gettng tired of living it!
>>
>> Hope you are all doing okay, and if you need to talk you can email me,
>> my computer is very slow, but I will try to answer if I can help anyone!
>>
>> Toni
>
>Hi Toni...
>My name is Cyndy...I am a 39 year old adhesion suffer....my husband
>and I are at a frustration level....I have had many,many surguries
>and the adhesions are so bad that the drs. tried the lap..scope and
>they could not penatrate through the adhesions....so they sent me home
>and here i sit 4 years later and many doctors later....they all start
>out the same....you know the routine...they want to help....then they
>give you pain meds....then they want you to try and not take the pain
>meds.....then you SUFFER and then they (the doctors) get tired of you
>and the cycle begins all over again...
>So in addition to being in PAIN you have to play games with the
>doctors...... I am so,so tired of all of this
> THERE HAS TO BE SOMETHING OUT THERE FOR ALL OF
>US.... SOMETHING ON THE CUTTING EDGE...THAT CAN HELP.....
>
>THANKS CYNDY
Cyndi,
i was wondering how many surgeries you have had, my sister has had alot
more than I have and she NEVER has compllained about pain from
adhesions. Were yours gyn related?
I have had 6 laparotomies, and 4 laps, but the last 4 years were 3
laparotmies, and 3 laps. the other ones were many years ago, staryed
with c section 22 years ago.
But when the gyn did my hysterectomy, I had massive adhesion I knew
nothing about that was 4 years ago.
Toni