Re: Congenital Adhesions

From: Amy (
Sat Aug 30 21:48:17 2008

Thanks for responding Kathi.

I've never suffered any trauma (like being punched or in a car accident). The only problem with PID is that when they discovered my adhesions in 2002, I did NOT have endemetriosis or adhesions in my pelvic region - only in my abdomen. So, I wouldn't think that was my cause either. I'm really at a loss...

My biggest problem though, is not being able to find a doctor who specializes in adhesions. I've been pouring over the internet in the last week trying to find one in my area, without any success. I just don't know where to look next.

God Bless! Amy

At Tue, 05 Aug 2008, wrote: >
>I have heard that pelvic inflammatory disease can cause adhesion, and
trauma to the abdomen, like being punched or car accident any significant force to the abdomen. I hope this helps. >Kathi
>-----Original Message-----
>From: IAS Admin (Tracy) <>
>To: Multiple recipients of list ADHESIONS <>
>Sent: Fri, 1 Aug 2008 10:33 pm
>Subject: Congenital Adhesions
>From: (Amy)
>Subject: Congenital Adhesions
>In 2002 I had a lapriscopy to determine the source of my abdominal &
>pelvic pain (and because I had ceased to have bowel movements and my
>urine was quickly disappearing as well). I couldn't eat because it
>literally felt like a chain was being pulled through my intestines.
>I had not had ANY abdominal surgeries prior to that date. They found
>that my abdomen was covered with adhesions (Spider-web like) - adhered
>to the abdominal wall, my kidney and my bowel. My bowels and kidney
>were twisted (strangulated). The OB/GYN didn't even know what he was
>looking at and had to call a Urologist in to tell him what it was and
>what to do. They were cut. I was sent home after my day-surgery
>procedure and told to come for a follow up 10 days later. They told me
>nothing else except "The doctor believes he's fixed it."
>10 days later, he gave me pictures of the adhesions & explained. (He
>didnt apologize for not believing me prior to the lapriscopy) and
>basically said "They'll probably grow back." I was promptly sent home.
>Now.... 6 years later..... I believe they are back to haunt me again.
>Is there anyone else here who is familiar with congenital adhesions? The
>doctors are all stunned and can't understand why I have them, and
>basically dismiss me.... I went to the ER last week only to discover
>that I also have a Fibroid on my uterus. They sent me home with pain
>meds and told me to see my doctor.
>Eating is becoming difficult again... I'm reading up, trying to eat a
>"low residue" diet and see what happens, while I wait for my OB/GYN
>Any advice?
>Any knowledge to share on congential adhesions?
>I don't want to feel the way I did 6 years ago... but, I don't want to
>live in misery with half that pain - not bad enough for surgery and too
>much to be healthy.... I don't know where to start.
>God Bless!
>North Carolina

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