At Thu, 24 Apr 2003, Nina wrote:
>
>Just contacted Nestle Nutritionals in England. Waiting for an email
>back. Asked if there has been any evidence to show that TGF-B2 would
>help with our situation, and if so what would be a clinically beneficial
>amount and where can we get it. The supplement for people w/ Chrohns is
>300 kcal per 8 oz, w/ a theraputic dose being 2-4 servings a day for
>Chrohns. That's an awful lot of extra kcal. Boyfriend has horrendous
>Chrohns and AS and says it tastes just like milk. Supposedly the
>hormone is from unpasturized milk and cow colestrum, yummy. Wonder if
>we can't get it somehow in pill form. The liquid supplement also
>requires MD supervision, which an MD most likely will not agree to w/out
>a clinical trial proving eficacy in abdominal adhesions. Also asked if
>they felt Omega3 would help, recommended clinical dose, and how to
>obtain that.
>
>We'll wait and see how much of this info they can give us w/ out being
>bound up legally.
>
>At Thu, 24 Apr 2003, Sue wrote:
>>
>>All I can say, is I read something that after a lap, the adhesions can
>>reform and attach in 7-10 days, I have a lap done in march and had 10 days
>>will no pain, now they are back. it is very frustration.
>>
>>I would like to look up more info on this fatty Omegas Hey I will try
>>anything that may help!
>>
>>--
>>Sue
>>
>>>>>----- Original Message -----
>>From: "Nina" <jeanninemonfre@yahoo.com>
>>To: "Multiple recipients of list ADHESIONS"
>><adhesions@mail.medispecialty.com>
>>Sent: Thursday, April 24, 2003 4:24 PM
>>Subject: Omega-3 fatty Acids
>>
>>> OK, so I am the new kid on the block, and have a question that I could
>>> not find an answer to while searching the database. Seems to me that
>>> all our adhesions are, in simplest terms, is an uncontrolled and
>>> exagerated inflammatory response. For whatever reason our bodies are
>>> saying, hey, there's something we have to heal here. If this is the
>>> case has anybody had any luck with Omega-3 Fatty Acid (EPA)
>>> supplementation to help reduce the inflammatory response? Studies show
>>> it helps in some types of arthritis. Another micro is TGF-B2 (don't ask
>>> me where it can be gotten in sole supplement form) that is known to
>>> significantly decrease the inflammatory response in people with Chrohns,
>>> not only in the GI tract but also in those w/ AS in the ligaments and
>>> connective tissue strictures.
>>>
>>> Has anybody had any luck with oral micro supplementation as an attempt
>>> to control the source of the growth? Or am I just dreaming a simple
>>> dream?
>>>
>>> I also read somewhere that prophelactic use of antihistimines, steroids,
>>> and anti-inflammatories can help inhibit growth. Has anybody had any
>>> luck with this method. My concern is being only 2 weeks post lap I want
>>> to be as proactive as possible WITH PROVEN METHODS in heping to minimize
>>> future growth. Seems to me the method my OB suggested of placing me
>>> into early menopause really hasn't worked well for most that are writing
>>> in.
>>>
>>> Thank you all for your patience with all my questions,
>>>
>>> Nina
>>>
-- I have no history of abdom. surgery; have had a few cysts Fall 2002- extreme pain and constant bloating 1/2/03- laparoscopy, hysteroscopy, and D&C 2/12/03- TAH/BSO for adhesions caused by non-symptomatic endometriosis (only dx'ed on pathology report) Now?- rigid belly; abdominal pain, tenderness and bloating; plus continuing bowel problems likely caused by new adhesions