Whoops, Heidi made info mistake, please read
From: Dawn (dawn@naisp.net)
Sat Apr 12 07:01:01 2003
Jimminy crickets! I sent you the wrong way...not enough coffee...very
early...I did not mean uero/gyn...I was thinking of the darn
uerogynocologist. Dr. Kruschinski can be found under Endo/Gyn in the
sponser section...follow the link to his website and read his approach
to adhesiolysis.
Love,
Dawn
>Dear Heidi,
>Boy, I know how you feel. Are you having bowel problems too? Thats
>probably why the docs want you off vicodan. Most pain killers given the
>ARD sufferer are narcotic and cause bowel motility problems ...an awful
>catch 22. I was also put on duragesic patch and wow it made a world of
>difference. I also started having problems urinating though...then to
>self cathing all the time. Not good! The ureo/gyn said I had nerve
>damage. I started to waste away.....off to Germany and my hero...Dr.
>Daniel Kruschski. When he preformed my adhesiolysis he found my poor
>bladder attached to my liver and streched across to my bowels. 36 hours
>after surgery I asked to leave to hospital as I felt brand new
>again....still having problems peeing...Dr. K. said take off the
>patch...well I was terrified to but when I did I had no more problems
>peeing anymore. You see if you read the insert of the patch you will
>find one of the side effects is urinary retention from my experience it
>is big time retention. Before I went to germany I had gone to ER
>locally as I could not pee at all...they cathed me and told me to come
>off the patch...I did...then tests at the uero/gyn...after it was
>decided it was nerve damage they said go back on the patch and well the
>next thing I know I was in Germany. Between the distortion of my
>bladder internally with the addition of the patch and the side effect of
>urinary retention...all the pushing in the world would not produce pee.
>As to being addicted to the patch..I know many worry about this...
>The first time they told me to take it off it was difficult and I went
>thru tollerable but frustrating withdrawl symptoms but the second time I
>went off...48 hour after surgery with Dr. Kruschinki I took the patch
>off and never looked back, no withdrawl, I was no longer in pain! I am
>happy to say that thru the slew of meds I was on I am down to only 3
>pills a day total and will soon be weaned off pain meds and others soon.
>Sounds like you have a good doc that believes in your pain if you are
>given duragesic patch. If this was your surgeon as well then they are
>pretty sure I would imagine that you are in pain when they saw the mess
>caused by ARD inside you. Dearest Heidi, Please, when you feel well
>enough or have someone willing...get your operative report and read
>through it. Secure your surgical consent form too while your at
>it...always good to have for every one.
>You will see better exactly what happened to you during surgery....I
>find you get a little chat from your surgeon after you wake up from
>surgery...while you are throwing up or whatever post surgical la la
>state you are in, they usually tell you how well the operation went and
>they'll see you in 6 weeks for a check up....hmmm. Thats usually good
>enough for most folks but...
>I think you'll be surprised by your op report. If you do find yourself
>soon in pain again I would not hesitate to get the best and highest
>success rate adhesiolysis from Dr. K. in Germany...you will see his
>information in the sponsor section under Uero/Gyn. Contact Lisa ( his
>IAS liason with contact info in the sponsor information) and send your
>op reports to him.
>He'll tell you if he can help you...most likely he can. I worry so that
>many have adhesiolysis here in the states as they are desparate to be
>out of pain. We in the states are no where near being able to perform a
>proper adhesiolysis and for now all hope for relief lies it Germany...it
>is your best chance to become pain free and adhesion free...for less
>that the price of say a hyundai. The highest success rate of all, the
>best surgeon who preform adhesiolysis, gassless laparoscapy ( the gas
>itself can cause adhesion growth)...I can't say enough about that..no
>gas pain after surgery and of course proper application of spray gel. If
>I can be of further service to you please do not hesitate to caonact me.
>Love,
>Dawn
>>
>--
>I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.
>
--
I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.