Re: I had my medications...need support please.

From: Dawn (
Sat Apr 12 04:30:02 2003

Dear Heidi, Boy, I know how you feel. Are you having bowel problems too? Thats probably why the docs want you off vicodan. Most pain killers given the ARD sufferer are narcotic and cause bowel motility problems awful catch 22. I was also put on duragesic patch and wow it made a world of difference. I also started having problems urinating though...then to self cathing all the time. Not good! The ureo/gyn said I had nerve damage. I started to waste to Germany and my hero...Dr. Daniel Kruschski. When he preformed my adhesiolysis he found my poor bladder attached to my liver and streched across to my bowels. 36 hours after surgery I asked to leave to hospital as I felt brand new again....still having problems peeing...Dr. K. said take off the patch...well I was terrified to but when I did I had no more problems peeing anymore. You see if you read the insert of the patch you will find one of the side effects is urinary retention from my experience it is big time retention. Before I went to germany I had gone to ER locally as I could not pee at all...they cathed me and told me to come off the patch...I did...then tests at the uero/gyn...after it was decided it was nerve damage they said go back on the patch and well the next thing I know I was in Germany. Between the distortion of my bladder internally with the addition of the patch and the side effect of urinary retention...all the pushing in the world would not produce pee. As to being addicted to the patch..I know many worry about this... The first time they told me to take it off it was difficult and I went thru tollerable but frustrating withdrawl symptoms but the second time I went off...48 hour after surgery with Dr. Kruschinki I took the patch off and never looked back, no withdrawl, I was no longer in pain! I am happy to say that thru the slew of meds I was on I am down to only 3 pills a day total and will soon be weaned off pain meds and others soon. Sounds like you have a good doc that believes in your pain if you are given duragesic patch. If this was your surgeon as well then they are pretty sure I would imagine that you are in pain when they saw the mess caused by ARD inside you. Dearest Heidi, Please, when you feel well enough or have someone willing...get your operative report and read through it. Secure your surgical consent form too while your at it...always good to have for every one. You will see better exactly what happened to you during surgery....I find you get a little chat from your surgeon after you wake up from surgery...while you are throwing up or whatever post surgical la la state you are in, they usually tell you how well the operation went and they'll see you in 6 weeks for a check up....hmmm. Thats usually good enough for most folks but... I think you'll be surprised by your op report. If you do find yourself soon in pain again I would not hesitate to get the best and highest success rate adhesiolysis from Dr. K. in will see his information in the sponsor section under Uero/Gyn. Contact Lisa ( his IAS liason with contact info in the sponsor information) and send your op reports to him. He'll tell you if he can help you...most likely he can. I worry so that many have adhesiolysis here in the states as they are desparate to be out of pain. We in the states are no where near being able to perform a proper adhesiolysis and for now all hope for relief lies it is your best chance to become pain free and adhesion free...for less that the price of say a hyundai. The highest success rate of all, the best surgeon who preform adhesiolysis, gassless laparoscapy ( the gas itself can cause adhesion growth)...I can't say enough about gas pain after surgery and of course proper application of spray gel. If I can be of further service to you please do not hesitate to caonact me. Love, Dawn >
>Hello. I hope everyone is doing well. I had my laparoscopy done
>Thursday. Well, let me back up a few days. I went to the new pain
>doctor. He is so nice. Understood that I was indeed in a lot of pain.
>Asked if I would like for him to take over all my pain medications and I
>said yes. He told me to get off of the Vicodin. He instead wants me on
>Norco 10 mg and I can take no more then 8 a day right now. He also gave
>me Duragesic 25MCG/HR DIS JANS patches. I am not sure what those
>patches are but I know that for the first time in I don't know how many
>years I woke up in a small amount of pain. I was so happy! But then at
>the same time, scared because what if for some reason this doctor gets a
>hold of my old doctors and he sees that they never thought I was in that
>much pain? I have never been out of this pain before and I guess now I
>am getting paniced because I don't want to ever go back in that much
>pain again. Does that make any sense? Finally finding a doctor who says
>he will help you means getting the quality of my life back! Yes, it will
>be expensive because my insurance will only pay 80% and the medications
>are very expensive, but my life is worth that! And, I could possible
>work once these medications regulate my pain to a tolerable level. I
>suppose I need someone to calm me down and tell me that this isn't a
>dream and that someone is really going to help me.
>Okay, the next day, I had to get a root canal. My tooth is still in
>pain! UGH! The doctor told me to take Vicodin and the pain dr said nope
>take the Norco. Still taking the Norco and the patches. Wednesday
>night, the night before my surgery, I can't go pee! What the heck??
>Thursday morning, still can't pee very much. Get to the hospital and I
>tell the doctors. They put me under and gave me some meds for the
>possible urianry infection and put in a cathitar. I wake up with the
>cathater in and they take it out and told me to try to pee. I tried and
>I couldn't. The put the cath back in and I peed 400mg! They took the
>cath back out and, nope, couldn't pee again. Put it back in and, yep,
>there I go pee. So they had me go home with the cath in me. I was
>going fine in the cath at home until about the AM on Friday morning.
>Couldn't hardly pee at all. Had to go to the ER and they took the cath
>out and I peed a little bit on my own. I can go now without the cath,
>but I sit there for about 15 min until I fee like I went all I could go.
>Anyone ever had this problem?
>I go to the OBGYN tomorrow, and she said she removed a cyst on my left
>ovary. I am SO sore by my belly buttinand there is another cut on the
>right side.
>Any help on these concerns of mine I would really appreciate.
>Thank you all so much.
>Heidi Jo

I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.

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