My dear friend, I have missed you too, very much. I had stopped writing to you because I wasn’t getting any replies to my emails and presumed you were back in hospital. I haven’t spent a lot of time here on the IAS board because of illness, tests and a heavier workload from bombo.
I received news on Friday that upset me greatly and made me think instantly of you, I missed you and wanted so much to chat with you on msn. As you know I have been using in-out catheters on and off since my hysterectomy in 2000, but didn’t know that I needed to do it regularly until earlier this year. I had a urodynamics test while I was in hospital for six weeks, prior to my first surgery for this year. For some reason (probably because I was so ill & communication lines were crossed) I didn’t receive instructions for the follow-up for that test.
During my most recent hospital admission and another surgery, Jason managed to chase down the results of the test and organise for me to see the Professor as the follow-up I should have had earlier. Anyway I had been told in hospital there was a possibility that the catheters would only be a temporary thing. I clung to that hope (I know you understand) that this would be the case. Last Friday after enduring other invasive procedures I finally had that consultation with Prof. Millard (Urologist) and he gave me the news I was dreading, I do indeed have permanent damage and catheters would be a part of daily life forever.
I thought of you and the problems you have faced and endured due to your bladder… Karla I miss our chats so much and I am so sorry that you have to endure such pain and indignities. I feel as though I am following in your footsteps to some extent but at the same time, because you have shared your story with so many others and with me you have helped me to understand how serious things are for and how careful I must be.
I am sorry that you are finding yourself in and out of hospital now and I know how hard it must be for you. You are never far from my thoughts Karla and I miss you very much. I will send you a personal email soon my friend; I have so much news to share with you. I want to wait until after my follow-up consultation with my bowel specialist on Friday in Sydney sigh I am really starting to HATE Friday’s! LOL
I look forward to reading future posts from you sharing your wealth of knowledge and personal experiences with adhesions, doctors and life….
Love & warm gentle hugs, Jo
-- Joanne Eslick Founder Australian Adhesions Support Group http://www.bombobeach.com NSW Australian Co-ordinator of International Adhesions Society http://www.adhesions.org
-- I am not a medical person, and all my messages are based on personal experience. I am a fellow adhesions sufferer reaching out to help others.