Re: Problems Urinating-To Tami

From: Karla (
Wed Jul 24 17:49:56 2002

I want to clarify something that I said regarding bladder problems. I just went back and reread my posting to Jenny and Tami and realized how very easily my message could be misinterpreted.

I made the statement that if you are having bladder problems it is very likely to be caused by adhesions. What I should have said is that if you are experiencing bladder problems you should see a urologist to have things looked into. But, don't be afraid to draw the line. Don't allow them to do a lot of invasive testing. If you are an adhesion sufferer it is very likely that your problem could be caused by adhesions around your bladder. As in everything else finding a urologist who acknowledges adhesions being a cause of bladder problems is rare. Hope this clears things up.


Somewhere up in the stars................. My angel and me!

>----- Original Message ----- From: "Karla" <> To: "Multiple recipients of list ADHESIONS" <> Sent: Wednesday, July 24, 2002 11:48 AM Subject: Re: Problems Urinating-To Tami

> Jenny and Tami, > > When I first developed my bladder problems and way before my bladder was > removed, my initial problem was being unable to urinate at all. I went for > over 36 hours without peeing before they would catherize myself. Jenny, if > your doctors are catherizing you after not going to the bathroom for only > four hours then something is wrong. A lot of people can and will go all day > long without urinating....I used to go to school at 7:30am and not go until > after dinner at night without any for them to take such action > after so short a period of time seems awful drastic to me. > > Tami, I would like to know what procedures they are doing to you too. > Please be very careful in what you allow them to do to your bladder. They > can and will put you through some very painful tests that you don't really > need. Adhesions can and do affect the bladder. They will wrap themselves > around the entire bladder putting an intense pressure on. It is very > painful, but all of the testing and other things these doctors want to do > make things worse. If you are having bladder problems chances are that > adhesions are wrapped around your bladder. Nothing any urologist does is > going to make it any better....short of a "good" adhesiolysis. > > Jenny, I wanted to say Welcome Back! I haven't seen or heard from you in > ages. Hope things are at least manageable for you. > > God's warmest blessings, > > Karla > > Somewhere up in the stars................. > My angel and me! > > >

>> ----- Original Message ----- > From: "Jenny" <> > To: "Multiple recipients of list ADHESIONS" > <> > Sent: Wednesday, July 24, 2002 7:56 AM > Subject: Problems Urinating-To Tami > > > Dear Tami, > > > > Gosh girl! I can't believe you went 18 hours without urinating! If you > > had been in the hospital, they would of catheterized you after about 4 > > hours. That really worries me. What exactly are the treatments that > > they are doing for you, if you don't mind me asking. I am on alot of > > pain medications too although I had trouble with the flow of urine > > stopping before I was taking so many. My adhesiolysis surgeries have > > lasted me about 6 months before I am in tons of pain again. I am now > > taking Oxycontin and also Neurontin 400mg three times a day. I haven't > > noticed the Neurontin making me crazy in the head like what you are > > saying. That is a drug usually given to people with epilepsy for > > seizures, but also used for nerve damage problems. I have gained alot > > of weight since I started taking it. It might be the Methodone, but you > > never know. Drugs can affect each person differently. Have you had any > > weight gain with the Neurontin? I also take a muscle relaxer because I > > clench my jaws so much from the pain that I get sick muscle tension > > headaches and keep knots in my back and shoulders. Many times they lead > > to muscle spasms. Then I also take Sonata which is something that is > > supposed to help me sleep. It sometimes makes me forgetful though. I > > had read that on the printout from the pharmacy, and it sure is true. I > > have done the same thing with saying crazy things. In fact my kids told > > me that one night when we were sitting up late at night I turned to my > > son and daughter and said "I'm gonna kiss you between them big ole brown > > eyes." That may not sound so funny to you but they said I sounded really > > hick when I said it. Plus I was eating banana chips and was saying that > > I wish there was enough for everyone to go around. My daughter said > > there was some on my lips and I told her that I was saving them for her. > > They were tickling my nose with fringe from a blankey and hitting me > > with a pillow. I don't remember a thing. I surely felt like a fool > > when they were telling me what I said and did. But there is nothing I > > could do about it. I hate not being in control of myself. But we will > > get through this too. I sure wish you were here so we could be more of > > a support to each other. Well I haven't slept at all....again, so I am > > going to try and lay down. I will talk to you soon. > > > > Love and Hugs! > > Jenny > > > > At Tue, 23 Jul 2002, Tami wrote: > > > > > >Dear Jenny, > > >I went for 18 hours before I was able to urinate. I called my > > >Urologists office and spoke with the nurse, who talked to the Dr. and > > >called me back. She said He said this was normal after the cystoscopy. > > >And that it will get better after each treatment. I go for 5 more > > >weeks. She said if I go over 24 hours and have the urge that I need to > > >go then to call him 24 hrs a day. But I will try all the things you > > >suggested. I think its probably all the pain meds I am on also are > > >contributing. These meds are making me crazy. I am hallucinating, and > > >saying some really weird stuff, and as soon as I say it I realize that > > >was stupid to say...I've cried alot because I think I am losing my mind. > > >Sounds like you have been thru hell also. I live in Las Vegas, Nevada > > >now. I lived in Port Lavaca Texas for about 7 years and went to Houston > > >for treatment a long time ago. Sorry, wish I knew a doctor there to > > >help you. I also start and stop when I am urinating and really have to > > >push hard. It's like when a man has a prostate infection. This has > > >been the roughest week for me, and I can't hardly stay on the computer > > >very long. I can say that the Methadone has helped me somewhat with the > > >pain, but when I started taking the Neurontin (My DR doubled dosed it) > > >with it I get crazy in the head. > > >Any way thanks for listening and hang in there, we'll get thru this > > >somehow. > > >Love, > > >Tami > > >

Enter keywords:
Returns per screen: Require all keywords: