Re: Need to talk-To Tami

From: Tami (
Tue Jul 23 17:35:33 2002

Dear Jenny, I went for 18 hours before I was able to urinate. I called my Urologists office and spoke with the nurse, who talked to the Dr. and called me back. She said He said this was normal after the cystoscopy. And that it will get better after each treatment. I go for 5 more weeks. She said if I go over 24 hours and have the urge that I need to go then to call him 24 hrs a day. But I will try all the things you suggested. I think its probably all the pain meds I am on also are contributing. These meds are making me crazy. I am hallucinating, and saying some really weird stuff, and as soon as I say it I realize that was stupid to say...I've cried alot because I think I am losing my mind. Sounds like you have been thru hell also. I live in Las Vegas, Nevada now. I lived in Port Lavaca Texas for about 7 years and went to Houston for treatment a long time ago. Sorry, wish I knew a doctor there to help you. I also start and stop when I am urinating and really have to push hard. It's like when a man has a prostate infection. This has been the roughest week for me, and I can't hardly stay on the computer very long. I can say that the Methadone has helped me somewhat with the pain, but when I started taking the Neurontin (My DR doubled dosed it) with it I get crazy in the head. Any way thanks for listening and hang in there, we'll get thru this somehow. Love, Tami At Tue, 23 Jul 2002, Jenny wrote: >
>I am sorry about you having problems too. Have you tried pouring warm
>water over yourself while you are trying to go or putting your hand
>under warm water? You can even get a straw and blow bubbles in a glass
>of water. These are things I have used after surgery. I usually have
>to push to go. That is probably why my bladder has prolapsed for a
>second time. I had a cystoscopy in November because I told them that I
>had to push to empty my bladder. That urologist told me everything
>looked fine and that I wasn't forming kidney stones (I have a strong
>history of that too.). Within 2 months I was passing stones at my house
>and by April my bladder had prolapsed for the second time. The
>urologist my gyn sent me to in May also did a cystoscopy. He said that
>my urethra has scarring and is smaller than the normal female. Then he
>ran a CT and said I have a stone in the left kidney. Also when I am
>urinating, I am going full speed and all the sudden the flow just stops.
>It is really strange. They ran a test on me where I had electrodes
>inside and out and they measured the flow. I was really glad when it
>showed exactly what I was talking about. But they can't tell me why it
>is doing that right now. I got an appointment with my gyn for Aug 2. My
>husband took me out to dinner last night and shopping to get my mind
>busy. I talked to him about how I felt I am in this alone sometimes. I
>mean I know he can't go to every Dr.'s appointment that I have because
>he would be taking off way too much. It's just I really need him for
>this one. He is going to try his best to go with me.
>I sure hope you are okay and able to urinate. Do you live here in
>Houston or close by? Maybe we could talk. Let me know that you are
>doing okay.
>Love and big hugs,
>At Mon, 22 Jul 2002, Tami wrote:
>>Dear Jenny,
>>I can totally understand what you are going thru. I once had surgery in
>>Houston at Hermann Hospital with a Herman Hospital Dr. He moved to the
>>East Coast somewhere. I did however see several Doctors from that
>>group, like back in 1987. I don't remember any of the other Doctors
>>names, Sorry. But you might try that group of Gyns from there. They
>>were great with me and the Hospital was good too, if you can say a
>>hospital is good ! HA! I wish I knew some doctors down there. I had the
>>bladder scope done last week, and didn't really have any problems
>>before. But now its been bad. I have really push and concentrate to
>>even urinate. I tried to go early this morning and couldn't go. I have
>>been drinking water and iced tea all day and still I can not go. It's
>>almost 4:30PM my time. I am worried now that there might be something
>>wrong with the bladder or kidneys.
>>Well good luck and keep us posted on what's going on with you,

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