>----- Original Message -----
From: "toni welsh" <twelsh1@hotmail.com>
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Wednesday, February 21, 2001 10:43 PM
Subject: Re: Facing surgery #2...
> At Wed, 21 Feb 2001, Millie wrote:
> >
> >Toni, I am near hysterics right now. I am crying so hard that I can
hardly
> >see to type this. I have had a burning sensation in the lower abdomen all
> >day, since I had a little bit of loose stool this morning. I am so beside
> >myself right now that it iisn't funny. I am so sorry to know about your
> >Mom. That's horrible. Toni, if you don't mind me asking - how did your
Mom
> >get when she had the volvulus/ Did she vomit/ I am so scared of that,too.
> >Nobody knows. I only took 2 sips of the phosphosoda early this morning. I
> >only had a little loose stool, and it was hard to expel that. My left
side
> >burns like crazy. Like loose stool lays there and irritates. I know she
> >didn't remove the endometriosis. Probably the adhesions are back 10 fold,
> >too. And she called me her colicky baby. God help me. Did your Mom have a
> >n.g. tube? Did they know what caused the twist?
> > Love,
> >Millie
>> >----- Original Message -----
> >From: "toni welsh" <twelsh1@hotmail.com>
> >To: "Multiple recipients of list ADHESIONS"
> ><adhesions@mail.medispecialty.com>
> >Sent: Wednesday, February 21, 2001 4:22 PM
> >Subject: Re: Facing surgery #2...
> >
> >> At Wed, 21 Feb 2001, Millie wrote:
> >> >
> >> >Toni,
> >> > did you
> >ever
> >> >have problems with moving your bowels? I took a few sips of Fleets
> >> >phosphosoda this morning and could not tolerate it. I almost got
sick. I
> >> >had a few very small watery bm.s, but it's even hard to get them out.
Did
> >> >you ever have any blockages in the bowels ? I only
> >pray
> >> >to God that's not where I'm headed. I am so afraid of tubes. I hear
they
> >are
> >> >awful to have put in. Did you ever have one?
> >> >Millie
>> >> >----- Original Message -----
> >> >From: "toni welsh" <twelsh1@hotmail.com>
> >> >To: "Multiple recipients of list ADHESIONS"
> >> ><adhesions@mail.medispecialty.com>
> >> >Sent: Wednesday, February 21, 2001 11:25 AM
> >> >Subject: Re: Facing surgery #2...
> >> >
> >> >> At Wed, 21 Feb 2001, karen wrote:
> >> >> >
> >> >> >Hi all,
> >> >> >
> >> >> >Hope everyone is having a good day.
> >> >> >
> >> >> >Just wanted to update things and get advice from those who would be
> >kind
> >> >> >enough to give it.
> >> >> >
> >> >> >I saw my new gyn for the second time on Monday. My US results
> >revealed
> >> >> >that they could not find my left ovary (again). A year ago it was
> >> >> >adhered to the bowel along with endo there and in the cul de sac.
> >After
> >> >> >Lupron and during still had pain. Which brings me here. He wants
to
> >do
> >> >> >a lap, possible oopherectomy, possible laporotomy and also have the
> >> >> >surgeon there to check for the hernia which he is trying to r/o.
Also
> >> >> >mentioned if the endo and adhesions were real bad that he would
> >> >> >recommend a hysto, however, not do it a that time because we needed
to
> >> >> >discuss further about HRT or not, risks, etc.
> >> >> >
> >> >> >Well needless to say, after thinking (in the car of course, why do
we
> >> >> >always do that?) I called his office back and told him that if he
> >thinks
> >> >> >he has to do a hysto to do it then, why subject me to yet another
> >> >> >surgery? Duh? So my husband and I are going back in on Friday to
speak
> >> >> >with him again.
> >> >> >
> >> >> >The hard thing for me is this surgery is based on a lot of what
if's.
> >> >> >Nothing is cut and dry with these diseases (endo and adhesions).
They
> >> >> >don't know anything until they get in and see what is going on.
This
> >is
> >> >> >my second surgery within a year. I have heard success stories and
> >> >> >failed stories about hysto's. I am trying very hard to make
informed
> >> >> >decisions, it is so hard to keep a level head during all of this.
Not
> >> >> >to mention, my husband is worried, upset at another surgery, and
> >> >> >frustrated like myself.
> >> >> >
> >> >> >Well thank you for listening, all. I am thankful to have a place
to
> >> >> >vent. My mom can't understand why I am always on the computer
looking
> >> >> >for and reading any info I can. She thinks it does more harm than
> >good.
> >> >> >I do have somewhat of a medical backround and so this is natural
for
> >me.
> >> >> >I told her that it helps to have people who are going through the
same
> >> >> >thing who can understand. And also as Helen puts it, "knowledge is
> >> >> >power". Thanks to Helen and everyone else for being here.
> >> >> >
> >> >> >--
> >> >> >Karen
> >> >>
> >> >> Karen,
> >> >>
> >> >> That is what alot of people told me too, when I was searching for
> >people
> >> >> who understand, and the ONLY place I have found it is here on this
> >> >> forum. I had 3 surgerues in 5 months in 98, you will be fine, I do
> >know
> >> >> that is why I am so hesitant now, I had a rough year in 98, having 2
of
> >> >> those converted to laparotomy.
> >> >>
> >> >> I will be here if you need me, for anyhting, and if you want to
email
> >> >> personally feel free!
> >> >>
> >> >> Love to you all
> >> >> Toni
> >> >>
> >>
> >> No Millie, I have not had any total obstructions, but there are so many
> >> times I swear I am headed there. I ahve not had those attacks for
> >> awhile, and I hope not, it hurt so bad. Yes I cannot go without a
> >> laxative, and the only thing that has worked for a year is senekot, and
> >> it hurts so bad whenI take it. Milk of magnesia does nothing. I am
> >> hurting bad today, but I am trying to get throughit everyday I take one
> >> at a time. I am very afraid of blockages, my mother's bowel died, and
> >> they say that was from volvulus. It killed her so my fears are great!
> >>
> >> Love
> >> Toni
> >>
>
> Millie,
>
> My mother had alot of other issues, I know, she had extremely high blood
> pressure which she did not doctor for until 3 months before she died.
> She NEVER had any vomiting at all, just a little nausea. She was in bed
> for a week, the drs said she had the flu, and she passed out in the
> bathroom trying to go, BM, she could not go.
>
> I do not know how to spell anyourism I think, that hit the lower aotra,
> and it shut down the lower abdomen. I hate the dr who saw her the day
> before, she was opened up that night, and the surgeon fixed her bleeding
> ulcers, but found her bowel had died, and gangrene had set in. He said
> it was dead awhile, and the blood supply of course strangle d her bowel.
> They could not get the NG tube in, when I got there her little nose was
> bleeding, and they said she fought it to bad, but she was on ventilator
> when she came out of surgery. These were extreme issues, but the fear
> of what happened to her bowel, still scares me. I have been thinking of
> her alot lately, she will be gone 5 years in April, and missing her is
> getting so strong.
>
> Like I said she had alot of issues, but the fear is still there, I hope
> you are feeling better soon.
>
> Love,
> TOni
>