Re: Facing surgery #2...

From: jenny low (
Wed Feb 21 22:06:33 2001

Hi karen,

First of all thank you for your prayers during my surgery last Friday.

I had adhesions surgery last Feb. There was alot of endo in there at that time. The dr had to remve 3 inches of my colon along with a soft ball sized mass. Within 3 weeks the endo was all over my left ovary. I was in constant pain and finally decided to have a hysterectomy. So in June they did the hyster. i really thought it would be an end to pain. But I never fully was relieved of pain. By November I was uncomfortable, by the end of January bedridden. So I had my surgery last Friday. There is still a 50/50 chance of the adhesions coming back. So just be aware that having a hyster does not necessarily an end to adhesions and pain or endometriosis for that matter. I have read and heard now several times that you can have endo in the abdomen after a TAH. I did seem to have less pain after the hyster because it took care of most of the endo. But it looks like on one of the pictures from my surgery that there is a spot of endo still in me. But there was less pain for me after the hyster because there was no endo involved. I hope this helps. I hope you get some relief soon. Let me know what you decide. I'll be praying for you.

Love, Jenny

>From: (karen)
>To: Multiple recipients of list ADHESIONS
>Subject: Facing surgery #2...
>Date: Wed, 21 Feb 2001 09:43:16 -0600
>Hi all,
>Hope everyone is having a good day.
>Just wanted to update things and get advice from those who would be kind
>enough to give it.
>I saw my new gyn for the second time on Monday. My US results revealed
>that they could not find my left ovary (again). A year ago it was
>adhered to the bowel along with endo there and in the cul de sac. After
>Lupron and during still had pain. Which brings me here. He wants to do
>a lap, possible oopherectomy, possible laporotomy and also have the
>surgeon there to check for the hernia which he is trying to r/o. Also
>mentioned if the endo and adhesions were real bad that he would
>recommend a hysto, however, not do it a that time because we needed to
>discuss further about HRT or not, risks, etc.
>Well needless to say, after thinking (in the car of course, why do we
>always do that?) I called his office back and told him that if he thinks
>he has to do a hysto to do it then, why subject me to yet another
>surgery? Duh? So my husband and I are going back in on Friday to speak
>with him again.
>The hard thing for me is this surgery is based on a lot of what if's.
>Nothing is cut and dry with these diseases (endo and adhesions). They
>don't know anything until they get in and see what is going on. This is
>my second surgery within a year. I have heard success stories and
>failed stories about hysto's. I am trying very hard to make informed
>decisions, it is so hard to keep a level head during all of this. Not
>to mention, my husband is worried, upset at another surgery, and
>frustrated like myself.
>Well thank you for listening, all. I am thankful to have a place to
>vent. My mom can't understand why I am always on the computer looking
>for and reading any info I can. She thinks it does more harm than good.
>I do have somewhat of a medical backround and so this is natural for me.
>I told her that it helps to have people who are going through the same
>thing who can understand. And also as Helen puts it, "knowledge is
>power". Thanks to Helen and everyone else for being here.

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