From: Tiffany (Tjm4x5@aol.com)
Fri Mar 31 14:05:37 2000
At Tue, 28 Mar 2000, JF7770@aol.com wrote:
>Thanks for a great letter. I feel so bad for you that all this has happened,
>but you have learned from your mistakes and by writing your letter hopefully
>helped many people to research and ask questions before any procedure. I
>learned this the hard way too. Thanks to advice from others I now write any
>and all questions I have and don't let them hurry me through until I
>understand the answers. I recently waited three weeks for an appointment
>with a doctor at the Cleveland Clinic and was treated horribly and rudely.
>He was even rude to my husband and then ordered ten horrible unnecessary
>tests. I went right home and wrote a letter to him and faxed it telling him
>how rude and inconsiderate he was not to mention unsympathetic and
>incompetent. I told him that there will come a time in his life when he will
>need medical care and I hoped that he got a doctor who treated him with the
>same indifference he treated me. It was really quite mean and not like me,
>but I did get an apology letter so maybe it did have some impact. If not, I
>am sure all the nurses and office staff got a big laugh out of it! People
>who truly understand adhesions and the pain and suffering they cause are hard
>to find. It took me a long time, but they are out there. Keep looking and
>my best wishes are with you. Ginni
I noticed that you mentioned the Cleveland Clinic which
probably means you are in or around Cleveland. I too am
from Cleveland and had a VERY bad experience with an Ob/gyn
doc at the Cleveland Clinic.
The reason I am writing is to give you the name of an
Endometriosis specialist out of University Hospitals.
I don't even know if you have endometriosis (I just reread the message)
but if you do this doc is great. I
recently had surgery with him and he is excellent. I
do think that my adhesion may be reforming but that is
not his fault. His name is Thomas Janicki.
He is also pioneering the drug Danazol in suppository form
which has none of the side effects of the oral.
His website is http://www.EndometrioisUSA.com and is new so not all there yet.
anyway, just wanted to share that info