At Tue, 21 Dec 1999, Kimmi wrote:
>
>Hi Everyone. I have had this link for eons but haven't had a chance to
>post on the board until now..So guess that makes me new to the board but
>not new to pain nor adhesions..
>I have had 12 abdominal surgeries,needless to say my abdomen is a
>complete mess.I suffer with massive pain,that the doctors have not been
>able to control or even bring down to a normal level of pain.The
>adhesions have moved out of the pelvic region and are causing me even
>more pain.
>At the current time no doctor will do another sugery on me to help,they
>will only do something if I get a full blockage that I cannot pass on my
>own,is it wrong that I keep getting partial blockages and hoping it will
>turn full so they can operate,and finally get in there and do more.
>The adhesions have been causing a great deal of back pain,and problems I
>went for an EMG where they found mild nerve damage,but the main problem
>is coming from the abdomen not the disk problems that I have,They just
>increased the neurotin and musle relaxers. I am on so many meds and I
>am really tired of this form of treatment. I have gone through every
>other inovassive treatment there is.We know sugery will help to elevate
>some of my pain,I know its a temporary solution but every doctor and
>surgeon I see says No not now..Not sure what they are waiting for.I know
>I am a high risk for sugery now since they have cut so many times and
>have played with the organs and they are breaking down..I have just
>about everything in there that can be removed,or reconstructive surgery
>done. I found out a year ago that I have Interstitial cystitis,and my
>bladder is down to a 1/4 of its capacity from all the previous problems.
>The liver is scarred with adhesions which I am not sure if that is what
>is causing this upper right side pain or not. This has been around for
>quite sometime but the pain in upper right side,bottom rib. I have
>arthritis in my rib as well as many other areas of my body,but the pain
>is not arthritic pain,each breath I take hurts alot.
>Seems in the beginning it was just gyn problems,moved on to adhesion
>problems,then we kept adding more athritis,back/neck disk problems,nerve
>damage/Fibro/Myofascial/IC/ulcers&gerd/chronic face pain/advanced
>TMJ/Frozen shoulder more of those lovely adhesions now in my
>shoulder.and more. I know that all these problems are linked together.I
>know Fibro causes adhesions to increase at a faster rate,so forget it if
>you produce them fast anyways,the fibro causes the nerves to grow
>faster.I am not sure which came first anymore the chicken or the egg.All
>I know is this life of pain has to be treated more effectively..I am on
>a lot of meds that they just keep changing and adding more.
>I am on Demerol been on it for 4 years daily,it lost its potency because
>of my allergies I cannot take anything else,tried them all..Robaxen
>taking 4 muscle relaxers at a time now,Neurotin
>2400mgs,Elmiron,hydroxyzine,Trazadone/Premarin,Prilosec/Ambien/phentanol
>for the nausea.Its endless it seems..Anyways this is my quick bio ok not
>so quick but after 17 years of pain and problems thats about as quick as
>it gets..Take care and look forwarded to meeting you all..
>Kimmi