Re: What do I do now?
From: Jaynie Jarvis (hipjaynie@webtv.net)
Tue Nov 23 08:48:44 1999
At Tue, 23 Nov 1999, Gina wrote:
>
>Hi,
>Wow, I am sorry to hear of all you have been through! I don't have any
>answers for you. I am just one of many like you who are adhesion prone,
>and I'm waiting for the intergel to become available before I do
>anything about my adhesions which cause me some pain but it's bearable
>so far. My bowels have been affected by past and present adhesions as
>well but nowhere near the extent of most people on this board. So I
>guess sometimes I say to myself "Well it's not that bad for me yet so I
>can wait longer".
>For me, having more surgery without a guarantee of success isn't an
>option since every surgery I have including Laps, cause more adhesions
>and more complications & pain. I'm not a patient person but I think
>I'll save myself the additional torture and wait awhile before I let
>them open me up again (it's been 2 months since my last surgery). I
>know for a fact when I am opened again it will be just to remove
>adhesions as mine have grown back in pelvic and abdominal areas and
>reformed on bowels. I feel the pulling and pain when having sex, when
>exercising, pretty much anytime I move. Just sitting here right now I
>can feel some in my right pelvic and hip area, and upper right abdomen,
>and lower left abdomen. I also can tell I reformed the one they removed
>from the top of my vagina that was attached to my abdominal wall somehow
>(I can feel it move when I have sex).
>I was rediagnosed with adhesions about 2 or 3 weeks after my last
>surgery :(
>I have a question--how did you get an ovarian cyst after having both
>your ovaries removed???
>Hugs,
>Gina
>
>At Mon, 22 Nov 1999, Laura wrote:
>>
>>Apparently, adhesions are nothing new. I'm one of those considering
>>something drastic because no one seems to be able to help. Long story
>>short:
>>6/97 hysterectomy and left oophorectomy for severe endometriosis
>>8/97 right oopherectomy with appendectomy (ob/gyn said she "couldn't
>>find my ovary" it was already enveloped in a mass that included my
>>appendix.
>>4/98 removal of softball-sized pelvic mass that they call an ovarian
>>cyst; half-way through 6 week hospitalization, developed small bowel
>>obstruction, removed 24 inches of sb, redeveloped ileus
>>12/98 removal of diverticulum that had developed from side-to side
>>anastamosis (attached to stomach) and another ileus. Ten days after
>>discharge, severe pain redeveloped inpatient 2 days, on 4 weeks TPN
>>therapy at home.
>>11/99 readmitted for partial small bowel obstruction (5 days) Two weeks
>>after discharge, another partial obstruction. Surgeon states this will
>>be an ongoing problem prescribes Bentyl then Levsin. No relief.
>>
>>The pain is getting progressively worse. My abdomen is distending as I
>>am writing this. Everyone says that I am overproducing scar tissue and
>>adhesions, and there is nothing they can do. I can't live like this
>>anymore
Gina, What you get to have sex!!!!!Lucky girl!!!
--
Jaynie