Re: [2]: What do I do now?
From: toni welsh (twelsh1@webtv.com)
Tue Nov 23 10:43:16 1999
At Tue, 23 Nov 1999, Laura A Johnsrud wrote:
>
>Toni,
>
>You almost have to jump through hoops for a year before you can get referred to
>a pain specialist in our hospital system, the waiting list is that long. I
>don't think any of my doctors realize how debilitating the pain is on a day to
>day basis.
>
>Laura
>
>____________________Reply Separator____________________
>Subject: Re: What do I do now?
>____________________Reply Separator____________________
>Author: <adhesions@obgyn.net>
>Date: 11/23/99 8:24 AM
>
>At Mon, 22 Nov 1999, Laura wrote:
>>
>>Apparently, adhesions are nothing new. I'm one of those considering
>>something drastic because no one seems to be able to help. Long story
>>short:
>>6/97 hysterectomy and left oophorectomy for severe endometriosis
>>8/97 right oopherectomy with appendectomy (ob/gyn said she "couldn't
>>find my ovary" it was already enveloped in a mass that included my
>>appendix.
>>4/98 removal of softball-sized pelvic mass that they call an ovarian
>>cyst; half-way through 6 week hospitalization, developed small bowel
>>obstruction, removed 24 inches of sb, redeveloped ileus
>>12/98 removal of diverticulum that had developed from side-to side
>>anastamosis (attached to stomach) and another ileus. Ten days after
>>discharge, severe pain redeveloped inpatient 2 days, on 4 weeks TPN
>>therapy at home.
>>11/99 readmitted for partial small bowel obstruction (5 days) Two weeks
>>after discharge, another partial obstruction. Surgeon states this will
>>be an ongoing problem prescribes Bentyl then Levsin. No relief.
>>
>>The pain is getting progressively worse. My abdomen is distending as I
>>am writing this. Everyone says that I am overproducing scar tissue and
>>adhesions, and there is nothing they can do. I can't live like this
>>anymore
>
>Laura, do you have a pain counselor, or someone to talk to? I see a pain
>clinic and the couselor there is great, she tries to ease my mind and
>treats the epression this has all caused for me. I have never yet had a
>bowel obstruction, 4 days after surgery, in the hospital I devevoped an
>ileus, but it resolved itself within a few days, and that was painful
>enough. Please if there is anything I can do, or you need someone to
>talk to please email me. I would love to try to help, but like Gina, I
>have no answers. Take care!
>
>Toni
Laura,
That is awful, I guess I am lucky, my gyn wrote a letter in December,
andwithin a month I saw the pain clinic, and was carefully put on meds,
one at a time. y las surgeryws in Sept. of 98, and I am stll goin
there. They have me on oxycontn three times a day, trazadone 100 mgs at
might, 900 mgs Neurotin, and 200 mgs Celebrex, and I stil am in pain.
The pain seemed to get worse a month ago, the meds ere helping and they
stll make days bearable, I do not know why things got worse, or what
happened in the last month. My gyn has not called me back, I am
beginningto think no surgeon now what to even try to help me. We talked
about surgery again, and I am VERY scared on another laparotomy. They
no longer can get in to do a lap. I wil pray for your relief soon.
toni