>From: twelsh1@webtv.com (toni welsh)
>Reply-To: adhesions@obgyn.net
>To: Multiple recipients of list ADHESIONS <adhesions@talk.obgyn.net>
>Subject: Re: teresa-Question on adhesions
>Date: Sun, 24 Oct 1999 11:47:49 -0500
>
>At Sun, 24 Oct 1999, Gina wrote:
> >
> >Hi Teresa,
> >What new meds that really work??? Tell all! :-)
> >Yes I have noticed the people giving the most advise on how to deal with
> >adhesions, have never had one themselves. There should be a rule about
> >that! LOL
> >Hugs,
> >Gina
> >
> >At Sat, 23 Oct 1999, teresa hunt wrote:
> >>
> >>Hi Gina: I have a bad few days and hevan't been on-line. (Getting
>adjusted
> >>to the new meds which REALLY WORK). Family and friends don't know what
>will
> >>make your pain and adhesions better unless they have experienced them
> >>personally. That old saying about walking a mile in my shoes goes for
> >>adhesions too!!! Keep the faith and it's NEVER too late to do something
> >>about it. Teresa
> >>
> >>>From: gina@maine.rr.com (Gina)
> >>>Reply-To: adhesions@obgyn.net
> >>>To: Multiple recipients of list ADHESIONS <adhesions@talk.obgyn.net>
> >>>Subject: Question on adhesions
> >>>Date: Thu, 21 Oct 1999 10:06:19 -0500
> >>>
> >>>I am new here, though by all rights I should have been here 18 years
>ago
> >>>because that's when my adventure with adhesions began. Only I didn't
> >>>know it (and docs didn't dx it) til I had surgery 8/12/99. Now I am
> >>>known as "adhesion prone". Yippeeee! (BTW, I have a weird sense of
> >>>humor, better to laugh than cry most days).
> >>>
> >>>Anyway, it wasn't til after my 2nd surgery (9/15/99) that I researched
> >>>adhesions and found out it was possible to prevent them with exercise
> >>>immediately after surgery, or with barriers, etc. No one told me--even
> >>>though they knew I was adhesion prone. So I laid flat for 2 weeks
>solid
> >>>"resting", hardly ever moving because I was told not to "over-do" it,
> >>>etc. Now I find out it was the worst thing I could have done! It "set"
> >>>my new adhesions permanently doing that, I think?
> >>>
> >>>Anyway I am getting tired of everyone (friends & family) telling me the
> >>>best thing for adhesions is exercise. Sure in the beginning that might
> >>>be true to keep them from attaching. But at 5 weeks post-op, when they
> >>>have already started to harden and be permanently attached, most
> >>>exercise hurts!!! ALOT! I can walk for a short time comfortably, but
>any
> >>>bending, twisting, tummy and lower back area stuff is excruciating.
> >>>
> >>>Are they right? Should I be trying to exercise through the pain to
> >>>detach them? Are my new adhesions permanent at 5 weeks, and hard? Is
> >>>there anything I can do besides surgery and pills, to get rid of the
> >>>pain and the adhesions at 5 weeks post-op?
> >>>
> >>>My doc who did the surgery told me that yes I do have new adhesions
> >>>again in pelvic area, and I will just have to live with chronic pain.
>He
> >>>told me that at 2 & 1/2 weeks post-op! He gave up. He said no one will
> >>>operate to remove adhesions only, just because it hurts. He also said
> >>>in my case any surgery to remove adhesions would make more (even
> >>>laprascopy since that was how these last 2 surgeries were done, and
>both
> >>>created new adhesions). I am not ready to accept "chronic pain" when
>it
> >>>seems early enough to do SOME thing about them?
> >>>Thanks,
> >>>Gina
> >>>
>
>yes, teresa, please tell us what is working for you. yesterda I could
>not even walk and to try to move the pain and costricting pain was
>terrible. I have not gone to the bathroom for awhile, and I do think
>that was part of the problem, but some of my drs just do not listen to
>me, if I do not take a laxative of some sort, and they tell me senekot
>being a vegetable laxative, will not hurt my bowel, I do not go. I am
>feeling now my bowel has become reliant on laxatives.
>
>last week I took it on monday night, and the cramps kept me awak for 3
>hours, and finally I did go, but it hurts to ave a bowel movement.
>People who do not ave this problem do not understand the terrible pain.
>For a lot of people it is just normal to go everyday. They do not
>understand my fear, My mother dies after an epeisode kind of a bowel
>obstruction, but I know now she had a different situatio. her bowel
>died, and te blood supply was cut off to her bowel, and the drs kept
>telling her it was the flu. Well she had 3 surgeries in 3 days 6 hours
>long, and we lost her. She was very ill and I know this. We did not
>know it then, she trusted her drs. WRONG!
>
>Well we lost another family member, he was 70 years old, but he had a
>colonoscopy in June, and the dr DID tell him he could not get the scope
>in, and he did have a blockage, well he was told to see a surgeon, and
>he didn't. he got sicl on a Sunday, and they had to remove 7 inches of
>his bowel, but he had already develped an infection, they put a
>temporarycolostomy on him and gave him 48 hours and they would have to
>go back in, well 28 hours later they performed emergency urgery again,
>and he died he next night. Tis WAS a bowel obstruction that killed him
>
>My feras a so real and strong, and I am extremely scared of ANYMORE
>surgery unless there is an obstruction, but when you have this happen in
>your family so many times, and crohns disease in your son and sister the
>fears are greater, I am scared, and very scared. Today I am feeling
>better, but I am convinced that I am ahving partial obstructions at
>times, do to the extreme pain I get at times. Do any of you understand
>this fear, or am I crazy?
>
>I hope today finds you all happy, I am to the poit now where I do not
>even feel like going out too often, and that is not me. I guess I just
>want to feel good again, and time keeps going on. when is some one
>going to find a way to help us. Boy I did not expect this to be so
>long, sorry!
>
>Love to all,
>Toni
>