Re: teresa-Question on adhesions

From: teresa hunt (
Sun Oct 24 20:19:23 1999

I did on Wednesday, but for those of you missed it. I went to a pain clinic and he has me duragesic 50mcgm aka(fentanyl) patches every 72 hr. Homeopathic (don't know if it works or not) and a stadol inhaler. I still have some pain, but NOTHING like before. I seen my GI thursday and told his 1st nurse ask me and his 2nd nurse came to look at it (I think she didn't think I knew what I was talking about)and told me it should stop my pain, because they only give that to cancer patients. I go back in 2 weeks for an injection. This doc has another adhesions patient, she has had 26 ab surgeries. He wanted to put a morphine pump in and her insureance wanted a 2nd opinion, that doc said that adhesions didn't cause pain and she didn't need a pump for pain that didn't exist. Guess what, she's a lawyer. She's suing!!! At least he has previous experience with adhesion patients. My mother has inoperative adhesions attached to the nerves on her spine (from previous back surgeries). She went to countless doctors for over four years before finding someone to listen. She's had a morphine pump for over 3 years now. It helps. Sorry I was so long winded. Hope info helps. Teresa

>From: (Gina)
>To: Multiple recipients of list ADHESIONS <>
>Subject: Re: teresa-Question on adhesions
>Date: Sun, 24 Oct 1999 09:55:52 -0500
>Hi Teresa,
>What new meds that really work??? Tell all! :-)
>Yes I have noticed the people giving the most advise on how to deal with
>adhesions, have never had one themselves. There should be a rule about
>that! LOL
>At Sat, 23 Oct 1999, teresa hunt wrote:
> >
> >Hi Gina: I have a bad few days and hevan't been on-line. (Getting
> >to the new meds which REALLY WORK). Family and friends don't know what
> >make your pain and adhesions better unless they have experienced them
> >personally. That old saying about walking a mile in my shoes goes for
> >adhesions too!!! Keep the faith and it's NEVER too late to do something
> >about it. Teresa
> >
> >>From: (Gina)
> >>Reply-To:
> >>To: Multiple recipients of list ADHESIONS <>
> >>Subject: Question on adhesions
> >>Date: Thu, 21 Oct 1999 10:06:19 -0500
> >>
> >>I am new here, though by all rights I should have been here 18 years ago
> >>because that's when my adventure with adhesions began. Only I didn't
> >>know it (and docs didn't dx it) til I had surgery 8/12/99. Now I am
> >>known as "adhesion prone". Yippeeee! (BTW, I have a weird sense of
> >>humor, better to laugh than cry most days).
> >>
> >>Anyway, it wasn't til after my 2nd surgery (9/15/99) that I researched
> >>adhesions and found out it was possible to prevent them with exercise
> >>immediately after surgery, or with barriers, etc. No one told me--even
> >>though they knew I was adhesion prone. So I laid flat for 2 weeks solid
> >>"resting", hardly ever moving because I was told not to "over-do" it,
> >>etc. Now I find out it was the worst thing I could have done! It "set"
> >>my new adhesions permanently doing that, I think?
> >>
> >>Anyway I am getting tired of everyone (friends & family) telling me the
> >>best thing for adhesions is exercise. Sure in the beginning that might
> >>be true to keep them from attaching. But at 5 weeks post-op, when they
> >>have already started to harden and be permanently attached, most
> >>exercise hurts!!! ALOT! I can walk for a short time comfortably, but any
> >>bending, twisting, tummy and lower back area stuff is excruciating.
> >>
> >>Are they right? Should I be trying to exercise through the pain to
> >>detach them? Are my new adhesions permanent at 5 weeks, and hard? Is
> >>there anything I can do besides surgery and pills, to get rid of the
> >>pain and the adhesions at 5 weeks post-op?
> >>
> >>My doc who did the surgery told me that yes I do have new adhesions
> >>again in pelvic area, and I will just have to live with chronic pain.
> >>told me that at 2 & 1/2 weeks post-op! He gave up. He said no one will
> >>operate to remove adhesions only, just because it hurts. He also said
> >>in my case any surgery to remove adhesions would make more (even
> >>laprascopy since that was how these last 2 surgeries were done, and both
> >>created new adhesions). I am not ready to accept "chronic pain" when it
> >>seems early enough to do SOME thing about them?
> >>Thanks,
> >>Gina
> >>

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