Re: Ok, here's a new one....

From: Ginny King (
Tue Oct 19 19:07:02 1999

Hey everyone,

I called my pcp today at 2:00pm after not hearing from them, They said "Oh, Dr. Gerber ordered a referral to a neurologist stat and you should have seen him yesterday" I was like' OK WHEN WERE YOU GUYS GOING TO CALL ME AND LET ME KNOW THIS. And yes I was yelling. I am so exhausted and my vision has not cleared and I was really scared. Anyway, he was able to fit me in at 3:00 and spent an hour and half with me. Several times he reach over and held my hand and told me it was going to be ok and he would stay with me until we figured this out. A real human being!!! Anyway, the meds I am on do not cause seizures. He put me on neurontin because it not only helps seizures but is supposed to help with the pain. He did indicate that in rare instances Crohn's can cause seizures. I have an MRI scheduled for Thursday to rule out anything more serious. He said some people just develop seizure disorders for no reason and they just have to give you medication to control them. After talking with him we realized that I had been having partial seizures for a while, losing time and smelling odors that no one else could. Oh well, just add it to my list of things they can't explain. But at least he was so kind and really listened to me. I feel so much better just being under his care. Anyway, I hope everyone else is doing as well as they can. Thanks for the support. Ginny

At Mon, 18 Oct 1999, Christine M. Smith wrote: >
>At Mon, 18 Oct 1999, Ginny King wrote:
>>Hey guys,
>>I doubt if anyone has experienced this but today was a new experience
>>for me. I went to bed last night with the pain in my right side really
>>acting up. When I got up this morning I was so sick to my stomach that
>>I had to run to the bathroom because I thought I was going to throw up.
>>Instead I had a seizure of some type. I fell to the floor, couldn't see
>>or feel anything, but could hear myself thrashing around. When I
>>finally came to, I was confused and not sure if it really happened or
>>not. Then I looked around the bathroom and could see where I had thrown
>>over the wastebasket and knocked over several items around me. I went
>>back to bed really exhausted and with a headache, but an hour or so
>>later I felt OK. Anyway, I called the pain management doctor since they
>>were the ones I saw last and they called me back six hours later and
>>told me to call my PCP. Which I did and of course have not heard back
>>from them. I've passed out before because of the pain, but never have
>>had a seizure. I'm a little scared and wish someone would call me back.
>>Does anyone know if pain can cause a seizure? I wonder if the Crohn's
>>could as well, but I couldn't find it listed as a side effect anywhere I
>>looked on the internet. Anyway, thanks for letting me vent. Ginny
>>Ginny King
>This is awful! I sure hope you have heard back from the pcp by now, or
>else called them again. Could it have been a side effect of any of the
>meds you are on? Please let us know.
>Chris S.

Ginny King

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