Re: Ok, here's a new one....

From: toni welsh (
Mon Oct 18 18:20:52 1999

At Mon, 18 Oct 1999, Ginny King wrote: >
>Hey guys,
>I doubt if anyone has experienced this but today was a new experience
>for me. I went to bed last night with the pain in my right side really
>acting up. When I got up this morning I was so sick to my stomach that
>I had to run to the bathroom because I thought I was going to throw up.
>Instead I had a seizure of some type. I fell to the floor, couldn't see
>or feel anything, but could hear myself thrashing around. When I
>finally came to, I was confused and not sure if it really happened or
>not. Then I looked around the bathroom and could see where I had thrown
>over the wastebasket and knocked over several items around me. I went
>back to bed really exhausted and with a headache, but an hour or so
>later I felt OK. Anyway, I called the pain management doctor since they
>were the ones I saw last and they called me back six hours later and
>told me to call my PCP. Which I did and of course have not heard back
>from them. I've passed out before because of the pain, but never have
>had a seizure. I'm a little scared and wish someone would call me back.
>Does anyone know if pain can cause a seizure? I wonder if the Crohn's
>could as well, but I couldn't find it listed as a side effect anywhere I
>looked on the internet. Anyway, thanks for letting me vent. Ginny
>Ginny King

Hi Ginny,

Funny you said yu had a seizure today. My 34 year old sister has had a severe case of crohns for 12 years, she now has a permanent colosotmy, she never really took care of herself. She has had seizures or years, she takes dylantin for a long tie.

They never really said it was ever for crohns disease. My son has been diagnosed with IBD 3 years ago, and so far h has been lucky, the Asacol so far is helping him, but I worry about him alot!

Please let us know what your dr said. The pain clinic did tell me that when I go off Neurotin, you have to go slow, b\c you canhave one! I hope you are doing okay!

Take it easy, Toni

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