Re: complications from adhesions?-Ginny

From: Christine M. Smith (smithy@maine.rr.com)
Sun Jun 13 21:40:03 1999


At Sun, 13 Jun 1999, Ginny King wrote: >
>>Hi Ginny:
>>The colo-rectal doctor I saw has a website and on it he says that IBS
>>does NOT cause intestinal bleeding and any such bleeding must be
>>investigated.
>>It is very frustrating not getting diagnosis (2 years for me) but I
>>really feel that I have never been treated like a hysterical woman. They
>>repeated my laparoscopy 6 months after the first and all I was
>>complaining about at that time was right lower quadrant pain. (of
>>course they knew I had adhesions left behind from the first lap) Right
>>now my pcp is stumped and that scares me.
>>The infections, white count and pain sound scary, I am assuming you are
>>treated with antibiotics at this time?
>> Post away whenever you feel like it, don't worry about being wordy.
>>
>>Chris S.
>
>Chris,
>
>It's funny that I am a logical, type a personality and far from
>hysterical. But I hate to say that the last appointment I had last week
>I cried when the doctor told me yet again that they don't see anything
>wrong. It sounds stupid I guess to want there to be a problem, but it
>sure is frustrating to be "normal" and in so much pain. They have put
>me on antibiotics numerous times and the bleeding and white blood cells
>will return to normal for a while. I will take your advice and try
>another doctor(colo-rectal) and see what happens. I think this forum is
>going to be very helpful in giving me the strength to keep trying. You
>say that your pcp is stumped? What kind of problems are you having now?
>Do they think that your adhesions have returned again? When you saw a
>colo-rectal specialist did they come up with any ideas? I'm sorry you
>are scared. I can understand and wish I could help. Take care. Ginny
>
>--
>Ginny King

Hi Ginny: How can they say they don't see anything wrong when they haven't done a laparoscopy in two years, you are known to have adhesions, you have pelvic pain and you keep getting these infections. How frustrating. Maybe I'm dreaming but I can't imagine the doctors I have seen doing this. Or else very lucky. I'm not bragging, just thinking that maybe another doctor might help you better. There has to be a reason why you keep getting the infections. If you are having intestinal bleeding and no explanation for it, a colo-rectal doctor would be an appropriate one to see. The general surgeon who did my second lap (6 months after the first ) said I'll be glad to repeat the lap, but I encourage you to wait a bit. Let me know. However, the gyn who did my first lap did take 9 months to do it. Finally I said, well, a laparoscopy is a diagnostic test as well as treatment, right? He agreed, then I said, Well I think it is a good idea to do one. My pcp says he is stumped because I have had a neg colonoscopy and two laps, and my physical exam does not correlate with my complaints. I had to remind him that no contrast studies have been done. Then he said Let's do a pelvic/abdominal Ct but then changed it to lumbar-sacral MRI, which I'm having tomorrow night. The colo-rectal guy did not feel my symptoms were related to the adhesions I had lysed, or that they were even bowel related. He is the one who suggested a bone/joint source based on his wife's experience. None of my doctors have said whether they think my adhesions have returned, but they all seem to think that they are not responsible for what I am experiencing. First time around they all readily agreed that they could be causing my pain. I have not run into any that say that adhesions don't cause pain. Well, I don't know if my blabbering has helped you any. I keep going round in circles. Let's hope the MRI shows something, don't know what to hope for, all possibilities are equally awful. How did you find out about this forum?

Chris S.


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