Re: Adhesions

From: Beverly (
Thu Jun 10 10:35:17 1999

Sorry about that Tina...I just cannot seem to get the hang of how to remain on one page and NOT kick myself off before I finish a letter! If I may, I do think that there ARE answers for you! Please remember that this is just my impression of things, but I have, and continue to, study adhesion disorder in all aspects of its demand on ones life. I am well versed in not only the theory's of etiology ( bio-physiological formation )as well as the physical impact and involvement internally. That means dependent on where YOUR adhesions are and the involement of organs, YOUR syptoms will correspond with that involvement and once you can understand how all that works inside of YOU, you can then relate better to what and why you suffer what you do! The more educated you become as to the disorder that you are living with and unfortunatly, will continue to live with, the better you will handle things. Not only will that allow you to make educated decisions about your health care needs,communicate better with your attending physicians, it will also offer you a relief both psychologicaly and emotionaly, and that alone will give you some peace even with suffering pain! I also do not believe that such a surgery as a bowel resection leading to a possible colostomy can be elective. No Dr. in thier right mind would agree on anything that extreme as it IS NOT in any patients best interest to have this radical of a procedure unless it is extremelt warrentd by a serious medical condition. Unfortunalty, adhesion disorder ( viewed as chronic pelvic pain syndrome ) does not fall in the catagory as well it shouldn't. I will conclude with this, if you DID present with a condition that warrented a resection, you would still in all probability, and a high probability, STILL form adhesions and still suffer chronic pain from them if the are problamatic ones. Tina, there IS no cure and to date only minimaly effective treatments are avilable. The good news is that there ARE ways to effectivly learn to live with chronic pain and adhesions, there ARE! If you would like to discuss your medical case history furhter, you can e-mail Dr. Wiseman as to my credentials to do that with you and the e-mail me at: bnb@ Best of luck to you! Beverly

At Thu, 10 Jun 1999, Tina Shelby wrote: >
>I have often wondered if all but about 10% of my small bowel was removed -
>would I be better and what the percentages would be. I am interested in
>knowing who told you that and what more did they say. I have been afraid to
>ask about it as an option because it is so radical. I have decided that if I
>have to have an open lap - I am going to want them to take most of the bowel
>out. I nearly died my last abdominal surgery and I am terrified of having
>surgery again. The next time will be because I have no other choice. Thanks
>so much for the info.
>At 04:58 PM 6/9/99 -0500, you wrote:
>>Dear Brenda, when I read your note, I almost cried because I, too, HATE
>that darn NG tube!!!!!! I can almost do it by myself. They are in shock
>when I tell them which side to use and how to do it. As a matter of fact,
>if they put it in a little ice, it goes down much better!! I hate it though
>because it not only hurts my throat but my stomach too. It feels like it is
>going to suck out my stomach. I don't know what is worse - it or the
>blockage!!! When I am in that condition, instead of praying for pain
>relief, I pray that He will just take me home and put my out of my misery!!
>That way, I'll be in no more pain and I will be with my Mother, Grandmother,
>Grandfather and Father. I am beginning to contemplate an ostomy (I think
>that is how you spell it) you know, moving your bowels into a bag, but, I am
>terrified of this alternative. I was told by someone that this may relieve
>80% of my pain because the bulk of my pain stems from adhesions over almost
>90% or more of my i!
>>ntestines and 10% over my spine. I REALLY need some advice from someone
>who has been there. Any ideas?
>>>>> Brenda <> 05/02 11:45 PM >>>
>>It is so good to have a site to go into and know that I am not "crazy",
>>or different.
>>Every three months I too go into the hospital with a bowel obstruction.
>>They make me lay there for days hoping it resolves itself, this has been
>>going on for 3 yrs. since my last major surgery.
>>Trust me I do NOT want to have another surgery but I also do not like
>>having that NG tube put it and laying there in the hospital being so
>>sick you pray to god to get rid of your pain.
>>Lets stick together everyone, there has got to be some hope out there
>>for all of us!!!!!

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