I want to thank all of you for your support, advice and humor in
response to my recent post. Hubby and I have talked things out and
things are better. He has a hard time talking to me about all of this.
He has watched me turn from the active person I once was to one that is
not very active. He has also sat with me in the emergency room while I
am in pain, not being believed by doctors until they see my records.
Anyway, thank you.
I am enjoying reading some of the recent posts. I have been having the
pain in my thighs, mainly the front. My pain doc thinks it is related
to the adhesion related. I am glad to know I am not the only one. Now
I read about vaginal pressure. I don't have that exactly but I do have
what I term pelvic congestion. I don't have any female parts left since
they have all been removed but I feel congested where my uterus should
be. No, it's not constipation. (I take Miralax for that.) I also have
constant pain on mainly my left side. I also still get cysts and have
had my ovary regenerate.
Reading about the abdominal swelling was also a huge one. I have had
this for two years. Doctors told me that I was just getting fat or it
was in my head. For me this feels like when I hyper stimulated while
going through IVF. I want to get my hormone levels checked because I
wonder if they are related.
Right now I am taking 15mg of morphine 3 times a day and 10/325 of
hydrocodone for breakthrough (only allowed 4 a day). Some days this is
fine but most it isn't. I just started working with this doctor a few
months ago so we are getting into the groove of things. Bad thing is we
moved 500 mile away so I have to find a new team of doctors at our new
location because I cannot drive down to see him too much longer.
Thank you all for keeping me sane during these insane times. You don't
know how much it means to me to know you are all a type and click away.
Stay strong, keep a sense of humor and don't let this overtake you.