You need to do something. Maybe a different pain management med. I got the pump two weeks ago. I think it is to early to tell and I need an adjustment on the dose. If work is getting to hard then you need to apply for disibility. It may take a long time to get an answer. I was able to get on it.
Kelly
> Date: Sun, 5 Jul 2009 11:17:23 -0500
> From: tracy.joslin@adhesions.org
> To: adhesions@mail.obgyn.net
> Subject: Pain is back
>
> Sender: dalene1020@netzero.net (Dalene)
> Subject: Pain is back
>
> 3 days ago, I have decided to stop eating altogether. I am doing fairly
> well without any abdominal pain and I am going to continue to not eat
> for at least 6 mos. My sister wants me to have surgery again, but I
> feel that is not the answer for me right now. My last surgery last year
> was difficult because I ended up in ICU for a couple of days. I have
> been dealing with this disease since 1996 and continue to struggle. My
> gastro doctor told me I have the gene for crohn's disease on top of my
> adhesion disease now. He put me on a drug called: LIALDA which is for
> people with crohn's. It does help a little but I am still suffering in
> pain again. I see my pain doctor tomorrow. I am still full time
> employed and trying to hold on to my job. My job understands my disease
> and they seem to tolerate it because I am under FMLA intermediate ,
> which means that whenever the pain gets to be too much for me at work,
> then I can sign out on FMLA and go home for that day.
> My sister wants me to fill out social security disability because I am
> not getting any better. I tried the first time with a counselor who
> told me not to fill the paper work out because with the money that I am
> currently earning would not justify me for disability. I can hardly
> hold on to working 40 hrs a week. I do the best that I can and
> sometimes feel it is not good enough. It is just so expensive to be
> sick in this day and age. I am at a point in my life now that I will
> have to continue to work until one day I am not able to tolerate the
> pain anymore and be put on a morphine pump.
> Could all of you please pray for me? And also that the Lord give me the
> strength to keep my job?
> Thank-you all for listening to me. It feels great to get this all off
> of my chest. Thank-you from the bottom of my hear.
> Dalene
>