Re: A Specialist!?

From: lindahalford (lindahalford@comcast.net)
Wed May 6 19:15:53 2009


I am so very sorry to hear from a 21 year old who is living with painful adhesions. If you read the story from the lady whose doctor is sending her to a neurologist who will map out the adhesions that are pressing against the nerves that are causing the pain, then you will have isolated the source. Once the source of the pain is found, then the pain specialist can perhaps inject the area with pain meds. Better still, if the next doctor who operates on you uses this information to lyse the adhesions and also uses spraygel/sprayshield, they may not return.

I found Dr. Cook, a doctor in California, who operates on the patient (laparoscopic) while they're awake. In this way, the patient can let the doctor know which adhesions to lyse because not all adhesions are the same. Some are more dense (thick) and hurt worse than others. If you live more that 100 miles away and cannot afford the costs associated with travel, there's a company name "Angel Flight" that has experienced, retired pilots, who volunteer to take patients to doctors. They're located in Orlando, FL but I believe the service is available throughout the U.S. Also, the hospitals have staff who can help with lodging in the area. I was once able to stayed for a week at a lovely McDonald House free/low cost while waiting for a follow-up with the doctor after surgery. God Bless You.

>----- Original Message -----
From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net> Sent: Wednesday, May 06, 2009 5:12 AM Subject: A Specialist!?

> Sender: internetjunkey@gmail.com (megan)
> Subject: A Specialist!?
>
> I'm new to this, However Adhesions are not new to me. I'm 21, i've been
> fighting this situation my whole life. I Live in Illinois, And I've
> been looking for a specialist for adhesions, I've done internet search
> after search and haven't been able to find anything, so any help would
> be nice. I'm Looking for one located in Illinois! I've just undergone
> my 4th abdominal surgery And Would like to have a doc. that specalized
> in this field, I love the Doc who has done my last 3 surgeries but he's
> just a general Surgen I'd like to learn more about ARD since I'm going
> to Live with it my whole life.
>
> Thank you all of reading and any help at all will be great!!
>


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