Donna
-----Original Message----- From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of LOU COOPER Sent: Saturday, March 07, 2009 6:55 PM To: Multiple recipients of list ADHESIONS Subject: Re: The way to go!!!
Hi Donna, from Lou, I am so sorry that you are having so much adhesion pain again, will the Dr. in Germany, be able to help you again, No one should face pain alone, you need the love and support of your family, sometimes things do not work out as we wish and it not your fault, do not go alone.it grieves me that you are suffering alone in silence, this kind of surgery their are no guarantees as you well know by reading the story's on the adhesion site Take care, Lou
l
On Sat, Mar 7, 2009 at 2:11 PM, Donna Johansen
<donnajohansen@telus.net> wrote:
> Lou,
> My surgeon tells me there are surgeons in Canada who will do it
but
> they are not capable of doing it properly and the adhesions all
come
> back with a vengeance...which we all know has a good percentage
of
> being fact. I personally know of one other local woman (I live
in a
> very small town) who has surgery every 6 months to take them
down.
> She was desperate a year ago, but I didn't know about this IAS
and
> can't remember her name. One year ago I was completely alone in
this,
> thinking I must be the only one having to live in absolute pain.
I
> know others exist out there, suffering the only way they know
how, in
> silence.
>
> Germany was great for me but I am having a real hard time right
now.
> Three weeks after returning I had a terrible fall. I have bad
> arthritis and my knees don't respond like they should. We were
on our
> sailboat (45 footer) and I fell from the cockpit to the bottom
of the
> outside walkway. A long fall on a big boat. I still suffer
with the
> injuries on my arms and legs. Dr. K was concerned about this
fall and
> I remember reading literature about falling so close to
surgery...that
> adhesion growth could start again with the injury. Interesting
thing
> is that I have been on large doses of Celebrex for the arthritis
and
> my adhesion problems seemed to be relatively minor last fall to
> recently. I have continued to have painful and irritable bowel
> problems that are now worse. Over a month ago I couldn't afford
the
> Celebrex and so have suffered with arthritis and NOW for the
last
> three weeks I AM SUFFERING WITH ADHESION PAIN AGAIN that keeps
me
> awake or wakes me before normal people should be awake! I am
> desperate to try to reverse it and have doubled up on the
Celebrex
> thinking that is perhaps the reason for this reversal. I can't
tell
> you how devastated I am if this doesn't clear up....my family
have all
> sacrificed so much....I don't think I can tell them so I suffer
in
> silence.
>
> Donna
>
> -----Original Message-----
> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]
On
> Behalf Of Lou
> Sent: Saturday, March 07, 2009 9:14 AM
> To: Multiple recipients of list ADHESIONS
> Subject: Re: The way to go!!!
>
> At Thu, 5 Mar 2009, Donna Johansen wrote:
>>
>>Canada is the worst...Europe is probably the most aware and has
> help
>>too. I am not a hateful person but I hate my former surgeon who
>>absolutely turned his back on me. Our medical system is mostly
> great
>>but this is something else!
>>Donna
>>HI DONNA FROM LOU MAR 7TH 11.48am
> I FEEL THIER MUST BE A GOOD ADHESION LAP SCOPE SURGEON IN CANADA
> SOMEWHERE, BUT TRYING TO FIND ONE ITS JUST IMPOSSIBLE, YOU SAID
YOU
> WENT TO GERMANY AND ARE FEELING BETTER.
> THE THING I FIND STRANGE ARE WE THE ONLY TWO IN CANADA WITH THIS
> PROBLEM,NEVER HEAR ON THE IAS OF MANY OTHERS WRITNG IN ,IF THAY
DID
> MIGHT FIND OUT MORE ANSWERS. I ENVY THE GIRLS IN THE US, SO
MANY GOOD
> DRS THAT DO ADHESION SURGERY LOU
>
>>-----Original Message-----
>>From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]
On
>
>>Behalf Of Lou
>>Sent: Thursday, March 05, 2009 1:32 PM
>>To: Multiple recipients of list ADHESIONS
>>Subject: The way to go!!!
>>
>>HI, THIS IS THE WAY TO GO, IT HAS TO CAME FROM YOU GUYS WHO ARE
>>SUFFERING FROM THIS AWFUL PROBLEM + THE ONES THAT HAVE BEEN
> CURED,
>>THEIR ARE SOME FINE STORY'S TO BE TOLD ( WHAT ABOUT THE IBS
> QUIT),IF
>>THIS IS NOT TOLD, WHO WILL KNOW WHAT SUFFERING THEIR IS FROM
FROM
> ABD
>>ADHESIONS.
>>THE SQUEKEY WHEEL, AND ALL THAT MOST TIMES IT WORKS, BUT IF WE
> REMAIN
>>SILENT, NOTHING WILL BE DONE, DIVIDED WE FALL UNITED WE RAISE.
>>LOOK AT TERRY FOX AND WE ALL KNOW WHAT HE DID AND TODAY ITS
STILL
> GOING
>>ON, TO ALL DRS AND SURGEONS OUT THERE HOW DO NOT KNOW, ADHESIONS
> DO
>>CAUSE PAIN, PAIN AND MORE PAIN + ALL THE STUFF THAT GOES WITH
IT,
> THE
>>UPSET GUT THAT NEVER GOES AWAY, THE FOODS WE LOVED TO EAT AND
NOW
> CAN
>>NOT.
>>ONE DAY YOUR LIFE IS GREAT - THE NEXT YOU CAN BE IN LIVING HELL,
> THIS
>>CAN HAPPEN TO ANY ONE, YOUNG OR OLD AT ANY TIME, LET HOPE AND
> PRAY A
>>CURE CAN BE FOUND SOON AND ADHESION WILL BE A THING OF THE PAST,
> I ENVY
>>YOU GUYS IN THE USA, YOU DO HAVE ALOT OF GOOD SURGEONS THAT DO
>>LAP-SCOPE SURGRERY FOR THE REMOVEL OF ADHESIONS, I LIVV IN
> CANADA, NOT
>>ONE CAN BE FOUND I HAVE TRYED THE WEB, HOSPITALS +++ALL I FIND
IS
> A
>>BRICK WALL, GOOD LUCK TO ALL WHO TRY TO GET ADHESIONS INTO THE
> OPEN.
>>LOU.
>
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