l
On Sat, Mar 7, 2009 at 2:11 PM, Donna Johansen <donnajohansen@telus.net> wrote:
> Lou,
> My surgeon tells me there are surgeons in Canada who will do it
> but they are not capable of doing it properly and the adhesions
> all come back with a vengeance...which we all know has a good
> percentage of being fact. I personally know of one other local
> woman (I live in a very small town) who has surgery every 6 months
> to take them down. She was desperate a year ago, but I didn't
> know about this IAS and can't remember her name. One year ago I
> was completely alone in this, thinking I must be the only one
> having to live in absolute pain. I know others exist out there,
> suffering the only way they know how, in silence.
>
> Germany was great for me but I am having a real hard time right
> now. Three weeks after returning I had a terrible fall. I have
> bad arthritis and my knees don't respond like they should. We
> were on our sailboat (45 footer) and I fell from the cockpit to
> the bottom of the outside walkway. A long fall on a big boat. I
> still suffer with the injuries on my arms and legs. Dr. K was
> concerned about this fall and I remember reading literature about
> falling so close to surgery...that adhesion growth could start
> again with the injury. Interesting thing is that I have been on
> large doses of Celebrex for the arthritis and my adhesion problems
> seemed to be relatively minor last fall to recently. I have
> continued to have painful and irritable bowel problems that are
> now worse. Over a month ago I couldn't afford the Celebrex and so
> have suffered with arthritis and NOW for the last three weeks I AM
> SUFFERING WITH ADHESION PAIN AGAIN that keeps me awake or wakes me
> before normal people should be awake! I am desperate to try to
> reverse it and have doubled up on the Celebrex thinking that is
> perhaps the reason for this reversal. I can't tell you how
> devastated I am if this doesn't clear up....my family have all
> sacrificed so much....I don't think I can tell them so I suffer in
> silence.
>
> Donna
>
> -----Original Message-----
> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On
> Behalf Of Lou
> Sent: Saturday, March 07, 2009 9:14 AM
> To: Multiple recipients of list ADHESIONS
> Subject: Re: The way to go!!!
>
> At Thu, 5 Mar 2009, Donna Johansen wrote:
>>
>>Canada is the worst...Europe is probably the most aware and has
> help
>>too. I am not a hateful person but I hate my former surgeon who
>>absolutely turned his back on me. Our medical system is mostly
> great
>>but this is something else!
>>Donna
>>HI DONNA FROM LOU MAR 7TH 11.48am
> I FEEL THIER MUST BE A GOOD ADHESION LAP SCOPE SURGEON IN CANADA
> SOMEWHERE, BUT TRYING TO FIND ONE ITS JUST IMPOSSIBLE, YOU SAID
> YOU WENT TO GERMANY AND ARE FEELING BETTER.
> THE THING I FIND STRANGE ARE WE THE ONLY TWO IN CANADA WITH THIS
> PROBLEM,NEVER HEAR ON THE IAS OF MANY OTHERS WRITNG IN ,IF THAY
> DID MIGHT FIND OUT MORE ANSWERS. I ENVY THE GIRLS IN THE US, SO
> MANY GOOD DRS THAT DO ADHESION SURGERY LOU
>
>>-----Original Message-----
>>From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On
>
>>Behalf Of Lou
>>Sent: Thursday, March 05, 2009 1:32 PM
>>To: Multiple recipients of list ADHESIONS
>>Subject: The way to go!!!
>>
>>HI, THIS IS THE WAY TO GO, IT HAS TO CAME FROM YOU GUYS WHO ARE
>>SUFFERING FROM THIS AWFUL PROBLEM + THE ONES THAT HAVE BEEN
> CURED,
>>THEIR ARE SOME FINE STORY'S TO BE TOLD ( WHAT ABOUT THE IBS
> QUIT),IF
>>THIS IS NOT TOLD, WHO WILL KNOW WHAT SUFFERING THEIR IS FROM FROM
> ABD
>>ADHESIONS.
>>THE SQUEKEY WHEEL, AND ALL THAT MOST TIMES IT WORKS, BUT IF WE
> REMAIN
>>SILENT, NOTHING WILL BE DONE, DIVIDED WE FALL UNITED WE RAISE.
>>LOOK AT TERRY FOX AND WE ALL KNOW WHAT HE DID AND TODAY ITS STILL
> GOING
>>ON, TO ALL DRS AND SURGEONS OUT THERE HOW DO NOT KNOW, ADHESIONS
> DO
>>CAUSE PAIN, PAIN AND MORE PAIN + ALL THE STUFF THAT GOES WITH IT,
> THE
>>UPSET GUT THAT NEVER GOES AWAY, THE FOODS WE LOVED TO EAT AND NOW
> CAN
>>NOT.
>>ONE DAY YOUR LIFE IS GREAT - THE NEXT YOU CAN BE IN LIVING HELL,
> THIS
>>CAN HAPPEN TO ANY ONE, YOUNG OR OLD AT ANY TIME, LET HOPE AND
> PRAY A
>>CURE CAN BE FOUND SOON AND ADHESION WILL BE A THING OF THE PAST,
> I ENVY
>>YOU GUYS IN THE USA, YOU DO HAVE ALOT OF GOOD SURGEONS THAT DO
>>LAP-SCOPE SURGRERY FOR THE REMOVEL OF ADHESIONS, I LIVV IN
> CANADA, NOT
>>ONE CAN BE FOUND I HAVE TRYED THE WEB, HOSPITALS +++ALL I FIND IS
> A
>>BRICK WALL, GOOD LUCK TO ALL WHO TRY TO GET ADHESIONS INTO THE
> OPEN.
>>LOU.
>