Re: ADHESIONS digest 923

From: Kristine Lovaas (krisl1204@yahoo.com)
Sun Feb 22 18:44:07 2009

Was his name Dr. Ron Peterson? I live in MN, had him as an OB/GYN. He did surgery on me 5 years ago for a right side ovarian cyst. It ruptured before the surgery was scheduled, and we had to move the date up. i never had any pelvic pain until after that surgery, in spite of having an appendectomy in 1973, 2 C-sections in 1977 and 1978, and ectopic pregnancy in 1986 and a partial hysterectomy in 1991. i started having the awful pain and nausea that all of us go through about 2 1/2 years ago. I had a colonoscopy 2 years ago that took the doctor an hour and half to complete because of adhesions. i'd never even heard of the the condition prior to that. i'll make the long medical saga short. After so many tests to rule out everything else, i'm having surgery on Tuesday, March 3rd in Minneapolis to have adhesions removed. I've researched the surgeon and had conversations with several doctors who allspeak to his success. I'm really hoping for good results. I've read so much on this site and haven't responded before. Take care, everyone. i wish you all pain tolerant days! Kris

__________________ltiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>=0ASent: Thur= e. i wish you all pain tolerant days! Kris

__________________sday, February 19, 2009 5:16:35 PM Subject: ADHESIONS digest 923

                ADHESIONS Digest 923

Topics covered in this issue include:

  1) Hype!!     by jetstamp@yahoo.com (jetstamp)   2) Re: Hype!!     by "Kelly Murray" <klmurray_61@msn.com>   3) Re: Hype!!     by jetstamp@yahoo.com (jetstamp)   4) Re: Hype!!     by "Kelly Murray" <klmurray_61@msn.com>   5) Re: Hype!!     by jetstamp@yahoo.com (jetstamp)

------- To: adhesions@adhesions.org Subject: Hype!! Message-ID: <200902192218.n1JMIhY26075@mail.obgyn.net>

I just had my follow-up visit for a new gynecologist.  Unfortunately, I am right at this moment kicking myself for once again falling for the hype.

This doctor was listed as a member of the International Pelvic Pain Society.  On the clinic's webpage, it said that his special interests were pelvic pain, endometriosis, and menopause.  He also was listed as a top women's doctor for the year 2007 in a Minnesota publication.

At my first visit 3 weeks ago, he did seem to listen at length but pretty much dismissed any ideas I had about my condition, which began in 1984 after an on-the-job injury which affected my lower right quadrant and pelvis (the injury was never diagnosed- I still wonder about some type of hernia or prolapse).

I also gave him a 6-page timeline beginning in 1984.  Since I've had this for so long, it is just too difficult to remember everything so I have it on my computer and I update/edit it as needed.  This helps save me from struggling to remember stuff when preparing for an appointment with a new doctor- of which I've had many because I have never in my 25-year history with this found anyone who took what I said at face value and at least would do what they COULD to help me cope if nothing else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA papers to protect my job during flare-ups or frequent appointments.  I also gave him a copy of a CT scan and an MRI from 5 years ago- the interpreting physician had no problem suggesting possible adhesions. Also 2 physical therapists thought I had adhesions, probably from the injury itself as well as subsequent surgeries..  I have not been 'officially' diagnosed with adhesions- just have been given the lame, vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.

Anyway, today, I experienced the all-too-familiar 'rushed' appointment. All he did was explain my current hormonal situtation- the beginning of menopause, etc.  which was fine.  But not one word about pelvic pain or anything relating to my most troublesome issues.  I could tell he just wanted to be done with me.

I have fallen for this 'hype-type' of thing before.  I had the same kind of experience with a urogynecologist at Mayo whose articles I had read on PubMed.  In those articles he came across as having sincere sympathy and interest in pelvic pain and dysfunctions women often endured.  He barely gave me the time of day- we barely spoke.

I get so mad at myself for buying into this kind of advertising- 'false' advertising.  I'm wondering if I should bother to state my opinion on RateMDs.com- I sure would like to.  He has only 7 reviews, all of which were positive alhtough 7 is not very many reviews.  I have to be careful though because somewhere in the fine print it says something to the effect that you are held responsible for what you say so don't know how honest I'm allowed to be.

Wish I could be like a woman who posted on the ibsgroup.org website.  She has such a low regard for doctors that she said she had not been to one in 27 years- that was when she had her last baby.

To remove yourself from the adhesions@adhesions.org mailing list please go to the unsubscribe form at http://http://www.adhesions.org/forums/listcmds.htm p.s. for the web forum version see http://www.adhesions.org/forums/message.htm

--------------------" <klmurray_61@msn.com>=0ATo: <adhesions@adhesions.org>=0ASubject: Re: Hype= n see http://www.adhesions.org/forums/message.htm

--------------------!!=0AMessage-ID: <BLU140-DS1730D857209BADCC23AC49AB20@phx.gbl>=0AMIME-Versi= n see http://www.adhesions.org/forums/message.htm

--------------------on: 1.0 Content-Type: multipart/alternative;     boundary="----=_NextPart_000_02F6_01C992A7.4E0CDF70"

This is a multi-part message in MIME format.

------=_NextPart_000_02F6_01C992A7.4E0CDF70 Content-Type: text/plain;     charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable

Have you tried a Internal Medicine Doctor? >
  ----- Original Message -----   From: jetstamp<mailto:jetstamp@yahoo.com>   To: Multiple recipients of list = ADHESIONS<mailto:adhesions@mail.obgyn.net>   Sent: Thursday, February 19, 2009 3:20 PM   Subject: Hype!!

  I just had my follow-up visit for a new gynecologist.  Unfortunately, = I   am right at this moment kicking myself for once again falling for the   hype.

  This doctor was listed as a member of the International Pelvic Pain   Society.  On the clinic's webpage, it said that his special interests   were pelvic pain, endometriosis, and menopause.  He also was listed as = a   top women's doctor for the year 2007 in a Minnesota publication.

  At my first visit 3 weeks ago, he did seem to listen at length but   pretty much dismissed any ideas I had about my condition, which began = in   1984 after an on-the-job injury which affected my lower right quadrant   and pelvis (the injury was never diagnosed- I still wonder about some   type of hernia or prolapse).

  I also gave him a 6-page timeline beginning in 1984.  Since I've had   this for so long, it is just too difficult to remember everything so I   have it on my computer and I update/edit it as needed.  This helps = save   me from struggling to remember stuff when preparing for an appointment   with a new doctor- of which I've had many because I have never in my   25-year history with this found anyone who took what I said at face   value and at least would do what they COULD to help me cope if nothing   else, like pain meds [besides the dreaded anti-depressants-ick!] or = FMLA   papers to protect my job during flare-ups or frequent appointments.  I   also gave him a copy of a CT scan and an MRI from 5 years ago- the   interpreting physician had no problem suggesting possible adhesions.   Also 2 physical therapists thought I had adhesions, probably from the   injury itself as well as subsequent surgeries.  I have not been   'officially' diagnosed with adhesions- just have been given the lame,   vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.

  Anyway, today, I experienced the all-too-familiar 'rushed' = appointment.   All he did was explain my current hormonal situtation- the beginning = of   menopause, etc.  which was fine.  But not one word about pelvic pain = or   anything relating to my most troublesome issues.  I could tell he just   wanted to be done with me.

  I have fallen for this 'hype-type' of thing before.  I had the same = kind   of experience with a urogynecologist at Mayo whose articles I had read   on PubMed.  In those articles he came across as having sincere = sympathy   and interest in pelvic pain and dysfunctions women often endured.  He   barely gave me the time of day- we barely spoke.

  I get so mad at myself for buying into this kind of advertising- = 'false'   advertising.  I'm wondering if I should bother to state my opinion on   RateMDs.com- I sure would like to.  He has only 7 reviews, all of = which   were positive alhtough 7 is not very many reviews.  I have to be = careful   though because somewhere in the fine print it says something to the   effect that you are held responsible for what you say so don't know = how   honest I'm allowed to be.

  Wish I could be like a woman who posted on the ibsgroup.org website.  = She   has such a low regard for doctors that she said she had not been to = one   in 27 years- that was when she had her last baby.

  To remove yourself from the = adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list = please go   to the unsubscribe form at = http://www.adhesions..org/forums/listcmds.htm<http://www.adhesions.org/for= ums/listcmds.htm-----=_NextPart_000_02F6_01C992A7.4E0CDF70 Content-Type: text/html;     charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable

<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">

Have you tried a Internal Medicine Doctor? 
  >
----- Original Message -----
 
From: jetstamp
 
To: Multiple recipients of list   ADHESIONS
 
Sent: Thursday, February 19, = 2009 3:20   PM
 
Subject: Hype!!
 

I just had my follow-up visit for a new = gynecologist.    Unfortunately, I
am right at this moment kicking myself for once = again   falling for the
hype.

This doctor was listed as a member of = the   International Pelvic Pain
Society.  On the clinic's webpage, = it said   that his special interests
were pelvic pain, endometriosis, and   menopause.  He also was listed as a
top women's doctor for the = year   2007 in a Minnesota publication.

At my first visit 3 weeks ago, = he did=20   seem to listen at length but
pretty much dismissed any ideas I had = about my   condition, which began in
1984 after an on-the-job injury which = affected my   lower right quadrant
and pelvis (the injury was never diagnosed- I = still   wonder about some
type of hernia or prolapse).

I also gave = him a   6-page timeline beginning in 1984.  Since I've had
this for so = long,   it is just too difficult to remember everything so I
have it on my = computer   and I update/edit it as needed.  This helps save
me from = struggling to   remember stuff when preparing for an appointment
with a new doctor- = of   which I've had many because I have never in my
25-year history with = this   found anyone who took what I said at face
value and at least would = do what   they COULD to help me cope if nothing
else, like pain meds [besides = the   dreaded anti-depressants-ick!] or FMLA
papers to protect my job = during   flare-ups or frequent appointments.  I
also gave him a copy of = a CT   scan and an MRI from 5 years ago- the
interpreting physician had no = problem   suggesting possible adhesions.
Also 2 physical therapists thought I = had   adhesions, probably from the
injury itself as well as subsequent   surgeries.  I have not been
'officially' diagnosed with = adhesions-   just have been given the lame,
vague names for some of my symptoms- = IBS and   Pelvic Floor Dysfunction.

Anyway, today, I experienced the   all-too-familiar 'rushed' appointment.
All he did was explain my = current   hormonal situtation- the beginning of
menopause, etc.  which = was   fine.  But not one word about pelvic pain or
anything relating = to my   most troublesome issues.  I could tell he just
wanted to be = done with   me.

I have fallen for this 'hype-type' of thing before.  I = had the   same kind
of experience with a urogynecologist at Mayo whose = articles I had   read
on PubMed.  In those articles he came across as having = sincere   sympathy
and interest in pelvic pain and dysfunctions women often   endured.  He
barely gave me the time of day- we barely = spoke.

I   get so mad at myself for buying into this kind of advertising-   'false'
advertising.  I'm wondering if I should bother to = state my   opinion on
RateMDs.com- I sure would like to.  He has only 7 = reviews,   all of which
were positive alhtough 7 is not very many = reviews.  I   have to be careful
though because somewhere in the fine print it = says   something to the
effect that you are held responsible for what you = say so   don't know how
honest I'm allowed to be.

Wish I could be = like a   woman who posted on the ibsgroup.org website.  She
has such a = low   regard for doctors that she said she had not been to one
in 27 = years- that   was when she had her last baby.


To remove yourself from the = adhesions@adhesions.org = mailing list   please go
 to the unsubscribe form at http://www.adhesion= s.org/forums/listcmds.htm
p..s.   for the web forum version see http://www.adhesions= .org/forums/message.htm
------=_NextPart_com (jetstamp) To: adhesions@obgyn.net Subject: Re: Hype!! Message-ID: <200902192250.n1JMonD11117@mail.obgyn.net> At Thu, 19 Feb 2009, Kelly Murray wrote: > >Have you tried a Internal Medicine Doctor? > >> >  ----- Original Message ----- >  From: jetstamp >  To: Multiple recipients of list ADHESIONS >  Sent: Thursday, February 19, 2009 3:20 PM >  Subject: Hype!! > >  I just had my follow-up visit for a new gynecologist.  Unfortunately, I >  am right at this moment kicking myself for once again falling for the >  hype. > >  This doctor was listed as a member of the International Pelvic Pain >  Society.  On the clinic's webpage, it said that his special interests >  were pelvic pain, endometriosis, and menopause.  He also was listed as a >  top women's doctor for the year 2007 in a Minnesota publication. > >  At my first visit 3 weeks ago, he did seem to listen at length but >  pretty much dismissed any ideas I had about my condition, which began in >  1984 after an on-the-job injury which affected my lower right quadrant >  and pelvis (the injury was never diagnosed- I still wonder about some >  type of hernia or prolapse). > >  I also gave him a 6-page timeline beginning in 1984.  Since I've had >  this for so long, it is just too difficult to remember everything so I >  have it on my computer and I update/edit it as needed.  This helps save >  me from struggling to remember stuff when preparing for an appointment >  with a new doctor- of which I've had many because I have never in my >  25-year history with this found anyone who took what I said at face >  value and at least would do what they COULD to help me cope if nothing >  else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA >  papers to protect my job during flare-ups or frequent appointments.  I >  also gave him a copy of a CT scan and an MRI from 5 years ago- the >  interpreting physician had no problem suggesting possible adhesions. >  Also 2 physical therapists thought I had adhesions, probably from the >  injury itself as well as subsequent surgeries.  I have not been >  'officially' diagnosed with adhesions- just have been given the lame, >  vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction. > >  Anyway, today, I experienced the all-too-familiar 'rushed' appointment. >  All he did was explain my current hormonal situtation- the beginning of >  menopause, etc.  which was fine.  But not one word about pelvic pain or >  anything relating to my most troublesome issues.  I could tell he just >  wanted to be done with me. > >  I have fallen for this 'hype-type' of thing before.  I had the same kind >  of experience with a urogynecologist at Mayo whose articles I had read >  on PubMed.  In those articles he came across as having sincere sympathy >  and interest in pelvic pain and dysfunctions women often endured.  He >  barely gave me the time of day- we barely spoke. > >  I get so mad at myself for buying into this kind of advertising- 'false' >  advertising.  I'm wondering if I should bother to state my opinion on >  RateMDs.com- I sure would like to.  He has only 7 reviews, all of which >  were positive alhtough 7 is not very many reviews.  I have to be careful >  though because somewhere in the fine print it says something to the >  effect that you are held responsible for what you say so don't know how >  honest I'm allowed to be. > >  Wish I could be like a woman who posted on the ibsgroup.org website.  She >  has such a low regard for doctors that she said she had not been to one >  in 27 years- that was when she had her last baby. > >  To remove yourself from the adhesions@adhesions.org mailing list please go >  to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm >ms/message.htm> Kelly, My recent primary doctor- who I've decided to fire- is under Internal Medicine.  However, she is unfortunately one of those who buys into the convenient made-up catch-all terms like IBS and absolutely will not consider adhesions. At my final appointment with her last year, she told me to stop taking the supplements that I've been taking in an attempt to loosen things up- like Serrapeptase.  When I asked her why, all she would say was "Doctors know these things".  Then I said, "Then what should I do about adhesions?" She shook her head, then turned her little stool around so her back was toward me.  That was the end of the appointment. I find it very interesting that the physical therapists and chiropractors can feel the tightness in my abdomen- they don't seem to need a laparoscopy to suspect adhesions.  The doctors that bother to examine my abdomen don't seem to be able to do the same.  This gynecologist didn't even bother- even after reading my 25-year hostory. I am considering trying an accupuncture guy who at least is not far from where I live and see if he has any knowledge of adhesions.  He used to be a chemist and I think he's into Traditional Chinese Medicine.  Will have to check with my insurance first though as I suspect it could get expensive- not just the accupuncture itself but I imagine he might have patients buy supplements which would be totally out-of-pocket. -- I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company. I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions. My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions. To remove yourself from the adhesions@adhesions.org mailing list please go to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm p.s. for the web forum version see http://www.adhesions.org/forums/message.htm ------------------------------ Date: Thu, 19 Feb 2009 16:03:06 -0700=0AFrom: "Kelly Murray" =0ATo: =0ASubject: Re: Hype!!=0AMessage-ID: MIME-Version: 1.0 Content-Type: multipart/alternative;     boundary="----=_NextPart_000_0364_01C992AB.8F7E45D0" -8859-1" Content-Transfer-Encoding: quoted-printable Well, I hope you can get someone to help you.  I know how frustrating it = is.  I went everywhere until finally someone suspected adhesions and I = had surgery and I was full of them. Drs. don't listen and it is so irritating. My daughter is applying to med school this summer.  She has seen what I = have gone through and she said she is going to listen to her patients = and try to help them as much as possible.  By the way, it was a PA that = told me that I probably had adhesions.  When I was searching, I would = give Drs. my records of surgeries, and there were adhesions taken down = on all of them but I didn't know much about them but the Drs. should = have if they would have read my reports. Duh! The only advice I can give is to keep searching for someone to listen = a >nd care. Kelly   ----- Original Message -----   From: jetstamp   To: Multiple recipients of list = ADHESIONS   Sent: Thursday, February 19, 2009 3:51 PM   Subject: Re: Hype!!   At Thu, 19 Feb 2009, Kelly Murray wrote:   >   >Have you tried a Internal Med >icine Doctor?   >   >>  ----- Original Message -----   >  From: = jetstamp>   >  To: Multiple recipients of list = ADHESIONS>   >  Sent: Thursday, February 19, 2009 3:20 PM   >  Subject: Hype!!   >   >  I just had my follow-up visit for a new gynecologist.  = Unfortunately, I   >  am right at this moment kicking myself for once again falling for = the   >  hype.   >   >  This doctor was listed as a member of the International Pelvic Pain   >  Society.  On the clinic's webpage, it said that his special = interests   >  were pelvic pain, endometriosis, and menopause.  He also was listed = as a   >  top women's doctor for the year 2007 in a Minnesota publication.   >   >  At my first visit 3 weeks ago, he did seem to listen at length but   >  pretty much dismissed any ideas I had about my condition, which = began in   >  1984 after an on-the-job injury which affected my lower right = quadrant   >  and pelvis (the injury was never diagnosed- I still wonder about = some   >  type of hernia or prolapse).   >   >  I also gave him a 6-page timeline beginning in 1984.  Since I've = had   >  this for so long, it is just too difficult to remember everything = so I   >  have it on my computer and I update/edit it as needed.  This helps = save   >  me from struggling to remember stuff when preparing for an = appointment   >  with a new doctor- of which I've had many because I have never in = my   >  25-year history with this found anyone who took what I said at face   >  value and at least would do what they COULD to help me cope if = nothing   >  else, like pain meds [besides the dreaded anti-depressants-ick!] or = FMLA   >  papers to protect my job during flare-ups or frequent appointments. = I   >  also gave him a copy of a CT scan and an MRI from 5 years ago- the   >  interpreting physician had no problem suggesting possible == adhesions.   >  Also 2 physical therapists thought I had adhesions, probably from = the   >  injury itself as well as subsequent surgeries.  I have not been   >  'officially' diagnosed with adhesions- just have been given the = lame,   >  vague names for some of my symptoms- IBS and Pelvic Floor = Dysfunction.   >   >  Anyway, today, I experienced the all-too-familiar 'rushed' = appointment.   >  All he did was explain my current hormonal situtation- the == beginning of   >  menopause, etc.  which was fine.  But not one word about pelvic = pain or   >  anything relating to my most troublesome issues.  I could tell he = just   >  wanted to be done with me.   >   >  I have fallen for this 'hype-type' of thing before.  I had the same = kind   >  of experience with a urogynecologist at Mayo whose articles I had = read   >  on PubMed.  In those articles he came across as having sincere = sympathy   >  and interest in pelvic pain and dysfunctions women often endured.  = He   >  barely gave me the time of day- we barely spoke.   >   >  I get so mad at myself for buying into this kind of advertising- = 'false'   >  advertising.  I'm wondering if I should bother to state my opinion = on   >  RateMDs.com- I sure would like to..  He has only 7 reviews, all of = which   >  were positive alhtough 7 is not very many reviews.  I have to be = careful   >  though because somewhere in the fine print it says something to the   >  effect that you are held responsible for what you say so don't know == how   >  honest I'm allowed to be.   >   >  Wish I could be like a woman who posted on the ibsgroup.org = website.  She   >  has such a low regard for doctors that she said she had not been to = one   >  in 27 years- that was when she had her last baby.   >   >  To remove yourself from the = adhesions@adhesions.org> mailing list please go   >  to the unsubscribe form at = http://www.adhesions.org/forums/listcmds.htm>   >ms/message.htm>   Kelly,   My recent primary doctor- who I've decided to fire- is under Internal   Medicine.  However, she is unfortunately one of those who buys into = the   convenient made-up catch-all terms like IBS and absolutely will not   consider adhesions.   At my final appointment with her last year, she told me to stop taking   the supplements that I've been taking in an attempt to loosen things = up-   like Serrapeptase.  When I asked her why, all she would say was = "Doctors   know these things".  Then I said, "Then what should I do about   adhesions?" She shook her head, then turned her little stool around so   her back was toward me.  That was the end of the appointment.   I find it very interesting that the physical therapists and   chiropractors can feel the tightness in my abdomen- they don't seem to   need a laparoscopy to suspect adhesions.  The doctors that bother to   examine my abdomen don't seem to be able to do the same..  This   gynecologist didn't even bother- even after reading my 25-year = hostory.   I am considering trying an accupuncture guy who at least is not far = from   where I live and see if he has any knowledge of adhesions.  He used to   be a chemist and I think he's into Traditional Chinese Medicine.  Will   have to check with my insurance first though as I suspect it could get   expensive- not just the accupuncture itself but I imagine he might = have   patients buy supplements which would be totally out-of-pocket.   --   I also tried AbdoTab and decided it wasn't worth anything. I also read = somewhere that they promised a money-back guarantee but that when you = tried to contact them they weren't available. Also, the exact location = of the company is pretty remote- if I remember it looked like the = company was in one country but the product came from another. Also saw = other products which looked like they came from the same place but a = totally different company.   I currently take Neprinol (for about 6 months now) which is very = expensive. Also lycopene which I read was good for adhesions but it = wasn't clear as to whether it was just good for preventing adhesions or = getting rid of current ones- the article had an endometriosis basis but = I asssume all adhesions would respond the same if lycopene were indeed = effective. I also just started taking Resveratrol which the TV show 60 = minutes did a story on this week- they made it sound like a miracle = supplement but don't know if it would do anything for adhesions.   My main pain and tightness started in the lower right quadrant after = an on-the-job injury 25 years ago. I've been to two physical therapists = who think I have adhesions. So far, no doctor will discuss it. I have = had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy = (1998) and right adrenal gland removed (2006). But as I said, I'm pretty = sure my adhesions were from the on-the-job injury- which no doctor can = seem to comprehend! Surgery and endo are 2 causes but not the only ones. = Generally, anything that causes inflammation could create adhesions.   To remove yourself from the = adhesions@adhesions.org mailing list = please go   to the unsubscribe form at = http://www.adhesions.org/forums/listcmds.htm
Well, I hope you can get someone to help you.  I know how = frustrating it is.  I went everywhere until finally someone suspected adhesions = and I had surgery and I was full of them. 
Drs. don't listen and it is so irritating..
My daughter is applying to med school this summer.  She has = seen what I have gone through and she said she is going to listen to her patients = and try to help them as much as possible.  By the way, it was a PA that = told me that I probably had adhesions.  When I was searching, I would give = Drs. my=20 records of surgeries, and there were adhesions taken down on all of them = but I didn't know much about them but the Drs. should have if they would have = read my reports. Duh!
The only advice I can give is to keep searching for someone to = listen and care.
Kelly
 
----- Original Message -----
 
From: jetstamp
 
To: Multiple recipients of list   ADHESIONS
 
Sent: Thursday, February 19, = 2009 3:51   PM
 
Subject: Re: Hype!!
 

At Thu, 19 Feb 2009, Kelly Murray = wrote:
>
>Have   you tried a Internal Medicine Doctor?
>
>>  ----- = Original   Message -----
>  From: jetstamp<mailto:jetstamp@yahoo.com>
&= gt;    To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net<= /A>>
>    Sent: Thursday, February 19, 2009 3:20 PM
>  Subject:   Hype!!
>
>  I just had my follow-up visit for a new   gynecologist.  Unfortunately, I
>  am right at this = moment   kicking myself for once again falling for the
>    hype.
>
>  This doctor was listed as a member of the   International Pelvic Pain
>  Society.  On the clinic's ==   webpage, it said that his special interests
>  were pelvic = pain,   endometriosis, and menopause.  He also was listed as = a
>  top   women's doctor for the year 2007 in a Minnesota   publication.
>
>  At my first visit 3 weeks ago, he = did seem   to listen at length but
>  pretty much dismissed any ideas = I had   about my condition, which began in
>  1984 after an = on-the-job   injury which affected my lower right quadrant
>  and pelvis = (the   injury was never diagnosed- I still wonder about some
>  = type of   hernia or prolapse).
>
>  I also gave him a 6-page = timeline   beginning in 1984.  Since I've had
>  this for so = long, it is   just too difficult to remember everything so I
>  have it = on my   computer and I update/edit it as needed.  This helps = save
>    me from struggling to remember stuff when preparing for an   appointment
>  with a new doctor- of which I've had many = because I   have never in my
>  25-year history with this found anyone = who took== 20   what I said at face
>  value and at least would do what = they COULD   to help me cope if nothing
>  else, like pain meds [besides = the   dreaded anti-depressants-ick!] or FMLA
>  papers to protect = my job   during flare-ups or frequent appointments.  I
>  also = gave him   a copy of a CT scan and an MRI from 5 years ago- the
>    interpreting physician had no problem suggesting possible== 20   adhesions.
>  Also 2 physical therapists thought I had = adhesions,   probably from the
>  injury itself as well as subsequent   surgeries.  I have not been
>  'officially' diagnosed = with   adhesions- just have been given the lame,
>  vague names = for some   of my symptoms- IBS and Pelvic Floor = Dysfunction.
>
>    Anyway, today, I experienced the all-too-familiar 'rushed'   appointment.
>  All he did was explain my current hormonal   situtation- the beginning of
>  menopause, etc.  which = was   fine.  But not one word about pelvic pain or
>  = anything   relating to my most troublesome issues.  I could tell he   just
>  wanted to be done with me.
>
>  I = have   fallen for this 'hype-type' of thing before.  I had the same   kind
>  of experience with a urogynecologist at Mayo whose = articles   I had read
>  on PubMed.  In those articles he came = across as   having sincere sympathy
>  and interest in pelvic pain and   dysfunctions women often endured.  He
>  barely gave = me the   time of day- we barely spoke.
>
>  I get so mad at = myself for   buying into this kind of advertising- 'false'
>  = advertising.    I'm wondering if I should bother to state my opinion on
>    RateMDs.com- I sure would like to.  He has only 7 reviews, all of =   which
>  were positive alhtough 7 is not very many = reviews.  I   have to be careful
>  though because somewhere in the fine = print it   says something to the
>  effect that you are held = responsible for   what you say so don't know how
>  honest I'm allowed to   be.
>
>  Wish I could be like a woman who posted on = the   ibsgroup.org website.  She
>  has such a low regard = for   doctors that she said she had not been to one
>  in 27 = years- that   was when she had her last baby.
>
>  To remove = yourself from   the ad= hesions@adhesions.org<mailto:adhesions@adhesions.org>   mailing list please go
>   to the unsubscribe form at = http://www.adhesions.org/forums/listcmds.htm<= ;http://www.adhesions.org/forums/listcmds.htm>
>ms/message.h= tm>

Kelly,

My   recent primary doctor- who I've decided to fire- is under   Internal
Medicine.  However, she is unfortunately one of those = who   buys into the
convenient made-up catch-all terms like IBS and = absolutely   will not
consider adhesions.

At my final appointment with = her last   year, she told me to stop taking
the supplements that I've been = taking in   an attempt to loosen things up-
like Serrapeptase.  When I = asked her   why, all she would say was "Doctors
know these things".  Then = I said,   "Then what should I do about
adhesions?" She shook her head, then = turned   her little stool around so
her back was toward me.  That was = the end   of the appointment.

I find it very interesting that the = physical   therapists and
chiropractors can feel the tightness in my abdomen- = they   don't seem to
need a laparoscopy to suspect adhesions.  The = doctors   that bother to
examine my abdomen don't seem to be able to do the   same.  This
gynecologist didn't even bother- even after = reading my   25-year hostory.

I am considering trying an accupuncture guy = who at   least is not far from
where I live and see if he has any knowledge = of   adhesions.  He used to
be a chemist and I think he's into = Traditional   Chinese Medicine.  Will
have to check with my insurance first = though   as I suspect it could get
expensive- not just the accupuncture = itself but I   imagine he might have
patients buy supplements which would be = totally   out-of-pocket.

--
I also tried AbdoTab and decided it wasn't = worth   anything.. I also read somewhere that they promised a money-back = guarantee but   that when you tried to contact them they weren't available. Also, the = exact   location of the company is pretty remote- if I remember it looked like = the   company was in one country but the product came from another. Also saw = other   products which looked like they came from the same place but a totally =   different company.

I currently take Neprinol (for about 6 = months now)   which is very expensive. Also lycopene which I read was good for = adhesions but   it wasn't clear as to whether it was just good for preventing = adhesions or   getting rid of current ones- the article had an endometriosis basis = but I   asssume all adhesions would respond the same if lycopene were indeed   effective. I also just started taking Resveratrol which the TV show 60 = minutes   did a story on this week- they made it sound like a miracle supplement = but   don't know if it would do anything for adhesions.

My main pain = and   tightness started in the lower right quadrant after an on-the-job = injury 25   years ago. I've been to two physical therapists who think I have = adhesions. So   far, no doctor will discuss it. I have had an exploratory lap (1991),   myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland = removed   (2006). But as I said, I'm pretty sure my adhesions were from the = on-the-job   injury- which no doctor can seem to comprehend! Surgery and endo are 2 = causes   but not the only ones. Generally, anything that causes inflammation = could   create adhesions.

To remove yourself from the adhesions@adhesions.org = mailing list   please go
 to the unsubscribe form at http://www.adhesion= s.org/forums/listcmds.htm
p.s.   for the web forum version see http://www.adhesions= .org/forums/message.htm
------=_NextPart_000_0364_01C992AB.8F7E45D0--ns@obgyn.net Subject: Re: Hype!! Message-ID: <200902192315.n1JNFfT31334@mail.obgyn.net> At Thu, 19 Feb 2009, jetstamp wrote: > >At Thu, 19 Feb 2009, Kelly Murray wrote: >> >>Have you tried a Internal Medicine > Doctor? >> >>>>  ----- Original Message ----- >>  From: jetstamp >>  To: Multiple recipients of list ADHESIONS >>  Sent: Thursday, February 19, 2009 3:20 PM >>  Subject: Hype!! >> >>  I just had my follow-up visit for a new gynecologist.  Unfortunately, I >>  am right at this moment kicking myself for once again falling for the >>  hype. >> >>  This doctor was listed as a member of the International Pelvic Pain >>  Society.  On the clinic's webpage, it said that his special interests >>  were pelvic pain, endometriosis, and menopause.  He also was listed as a >>  top women's doctor for the year 2007 in a Minnesota publication. >> >>  At my first visit 3 weeks ago, he did seem to listen at length but >>  pretty much dismissed any ideas I had about my condition, which began in >>  1984 after an on-the-job injury which affected my lower right quadrant >>  and pelvis (the injury was never diagnosed- I still wonder about some >>  type of hernia or prolapse). >> >>  I also gave him a 6-page timeline beginning in 1984.  Since I've had >>  this for so long, it is just too difficult to remember everything so I >>  have it on my computer and I update/edit it as needed.  This helps save >>  me from struggling to remember stuff when preparing for an appointment >>  with a new doctor- of which I've had many because I have never in my >>  25-year history with this found anyone who took what I said at face >>  value and at least would do what they COULD to help me cope if nothing >>  else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA >>  papers to protect my job during flare-ups or frequent appointments.  I >>  also gave him a copy of a CT scan and an MRI from 5 years ago- the >>  interpreting physician had no problem suggesting possible adhesions. >>  Also 2 physical therapists thought I had adhesions, probably from the >>  injury itself as well as subsequent surgeries.  I have not been >>  'officially' diagnosed with adhesions- just have been given the lame, >>  vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction. >> >>  Anyway, today, I experienced the all-too-familiar 'rushed' appointment. >>  All he did was explain my current hormonal situtation- the beginning of >>  menopause, etc.  which was fine.  But not one word about pelvic pain or >>  anything relating to my most troublesome issues.  I could tell he just >>  wanted to be done with me. >> >>  I have fallen for this 'hype-type' of thing before.  I had the same kind >>  of experience with a urogynecologist at Mayo whose articles I had read >>  on PubMed.  In those articles he came across as having sincere sympathy >>  and interest in pelvic pain and dysfunctions women often endured.  He >>  barely gave me the time of day- we barely spoke. >> >>  I get so mad at myself for buying into this kind of advertising- 'false' >>  advertising.  I'm wondering if I should bother to state my opinion on >>  RateMDs..com- I sure would like to.  He has only 7 reviews, all of which >>  were positive alhtough 7 is not very many reviews.  I have to be careful >>  though because somewhere in the fine print it says something to the >>  effect that you are held responsible for what you say so don't know how >>  honest I'm allowed to be. >> >>  Wish I could be like a woman who posted on the ibsgroup.org website.  She >>  has such a low regard for doctors that she said she had not been to one >>  in 27 years- that was when she had her last baby. >> >Kelly, > >My recent primary doctor- who I've decided to fire- is under Internal >Medicine.  However, she is unfortunately one of those who buys into the >convenient made-up catch-all terms like IBS and absolutely will not >consider adhesions. > >At my final appointment with her last year, she told me to stop taking >the supplements that I've been taking in an attempt to loosen things up- >like Serrapeptase.  When I asked her why, all she would say was "Doctors >know these things".  Then I said, "Then what should I do about >adhesions?" She shook her head, then turned her little stool around so >her back was toward me.  That was the end of the appointment. > >I find it very interesting that the physical therapists and >chiropractors can feel the tightness in my abdomen- they don't seem to >need a laparoscopy to suspect adhesions.  The doctors that bother to >examine my abdomen don't seem to be able to do the same.  This >gynecologist didn't even bother- even after reading my 25-year hostory. > >I am considering trying an accupuncture guy who at least is not far from >where I live and see if he has any knowledge of adhesions.  He used to >be a chemist and I think he's into Traditional Chinese Medicine.  Will >have to check with my insurance first though as I suspect it could get >expensive- not just the accupuncture itself but I imagine he might have >patients buy supplements which would be totally out-of-pocket. > >-- >I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company. > >I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions. > >My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions. > essage.htm ------------------------------ End of ADHESIONS Digest 923=0A***************************=0A=0A=0A=0A essage.htm ------------------------------ End of ADHESIONS Digest--0-1094815331-1235353414=:28576 essage.htm ------------------------------ End of ADHESIONS Digest Content-Type: text/html; charset=iso-8859-1 Content-Transfer-Encoding: quoted-printable
Was his name Dr. Ron Peterson? I live in MN, had him as an OB/GYN. He did surgery on me 5 years ago for a right side ovarian cyst.. It ruptured before the surgery was scheduled, and we had to move the date up. i never had any pelvic pain until after that surgery, in spite of having an appendectomy in 1973, 2 C-sections in 1977 and 1978, and ectopic pregnancy in 1986 and a partial hysterectomy in 1991. i started having the awful pain and nausea that all of us go through about 2 1/2 years ago. I had a colonoscopy 2 years ago that took the doctor an hour and half to complete because of adhesions. i'd never even heard of the the condition prior to that. i'll make the long medical saga short. After so many tests to rule out everything else, i'm having surgery on Tuesday, March 3rd in Minneapolis to have adhesions removed. I've researched the surgeon and had conversations with several doctors who allspeak to his success. I'm really hoping for good results. I've read so much on this site and haven't responded before. Take care, everyone. i wish you all pain tolerant days! Kris

From: Adhesions Society <adhesions@adhesions.org>
To: Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>
Sent: Thursday, February 19, 2009 5:16:35 PM
Subject: ADHESIONS digest 923

                ADHESIONS Digest 923

Topics covered in this issue include:

  1) Hype!!
    by jetstamp@yahoo.com (jetstamp)
  2) Re: Hype!!
    by "Kelly Murray" <klmurray_61@msn.com>
  3) Re: Hype!!
    by jetstamp@yahoo.com (jetstamp)
  4) Re: Hype!!
    by "Kelly Murray" <klmurray_61@msn.com>
  5) Re: Hype!!
    by jo:jetstamp@yahoo.com">jetstamp@yahoo.com (jetstamp)
To: adhesions@adhesions.org
Subject: Hype!!
Message-ID: <200902192218.n1JMIhY26075@mail.obgyn.net>

I just had my follow-up visit for a new gynecologist.  Unfortunately, I
am right at this moment kicking myself for once again falling for the
hype.

This doctor was listed as a member of the International Pelvic Pain
Society.  On the clinic's webpage, it said that his special interests
were pelvic pain, endometriosis, and menopause.  He also was listed as a
top women's doctor for the year 2007 in a Minnesota publication.

At my first visit 3 weeks ago, he did seem to listen at length but
pretty much dismissed any ideas I had about my condition, which began in
1984 after an on-the-job injury which affected my lower right quadrant
and pelvis (the injury was never diagnosed- I still wonder about some
type of hernia or prolapse).

I also gave him a 6-page timeline beginning in 1984.  Since I've had
this for so long, it is just too difficult to remember everything so I
have it on my computer and I update/edit it as needed.  This helps save
me from struggling to remember stuff when preparing for an appointment
with a new doctor- of which I've had many because I have never in my
25-year history with this found anyone who took what I said at face
value and at least would do what they COULD to help me cope if nothing
else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA
papers to protect my job during flare-ups or frequent appointments.  I
also gave him a copy of a CT scan and an MRI from 5 years ago- the
interpreting physician had no problem suggesting possible adhesions.
Also 2 physical therapists thought I had adhesions, probably from the
injury itself as well as subsequent surgeries.  I have not been
'officially' diagnosed with adhesions- just have been given the lame,
vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.

Anyway, today, I experienced the all-too-familiar 'rushed' appointment.
All he did was explain my current hormonal situtation- the beginning of
menopause, etc.  which was fine.  But not one word about pelvic pain or
anything relating to my most troublesome issues.  I could tell he just
wanted to be done with me.

I have fallen for this 'hype-type' of thing before.  I had the same kind
of experience with a urogynecologist at Mayo whose articles I had read
on PubMed.  In those articles he came across as having sincere sympathy
and interest in pelvic pain and dysfunctions women often endured.  He
barely gave me the time of day- we barely spoke.

I get so mad at myself for buying into this kind of advertising- 'false'
advertising.  I'm wondering if I should bother to state my opinion on
RateMDs.com- I sure would like to.  He has only 7 reviews, all of which
were positive alhtough 7 is not very many reviews.  I have to be careful
though because somewhere in the fine print it says something to the
effect that you are held responsible for what you say so don't know how
honest I'm allowed to be.

Wish I could be like a woman who posted on the ibsgroup.org website.  She
has such a low regard for doctors that she said she had not been to one
in 27 years- that was when she had her last baby.


To remove yourself from the adhesions@adhesions.org mailing list please go
to the unsubscribe form at http://www.adhesions.org/forums/lisorums/message.htm

------------------------------

Date: Thu, 19 orums/message.htm

------------------------------

Date: Th Feb 2009 15:32:42 -0700
From: "Kelly Murray" <

------------------------------

Date: Thrray_61@msn.com" ymailto="mailto:klmurray_61@msn.com">klmurray_61@msn.com>
To: <adhesions@adhesions.org>
Subject: Re: Hype!!
Message-ID: <BLU140-DS1730D857209BADCC23AC49AB20@phx.gbl>
MIME-Version: 1.0
Content-Type: multipart/alternative;
    boundary="----=_NextPart_000_02F6_01C992A7.4E0CDF70"

This is a multi-part message in MIME format.

------=_NextPart_000_02F6_01C992A7.4E0CDF70
Content-Type: text/plain;
    charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable

Have you tried a I >nternal Medicine Doctor?
  ----- Original Message -----
  From: jetstamp<mailto:jetstamp@yahoo.com>
  To: Multiple recipients of list =
ADHESIONS<mailto:adhesions@mail.obgyn.net>
  Sent: Thursday, February 19, 2009 3:20 PM
  Subject: Hype!!


  I just had my follow-up visit for a new gynecologist.  Unfortunately, =
I
  am right at this moment kicking myself for once again falling for the
  hype.

  This doctor was listed as a member of the International Pelvic Pain
  Society.  On the clinic's webpage, it said that his special interests
  were pelvic pain, endometriosis, and menopause.  He also was listed as =
a
  top women's doctor for the year 2007 in a Minnesota publication.

  At my first visit 3 weeks ago, he did seem to listen at length but
  pretty much dismissed any ideas I had about my condition, which began =
in
  1984 after an on-the-job injury which affected my lower right quadrant
  and pelvis (the injury was never diagnosed- I still wonder about some
  type of hernia or prolapse).

  I also gave him a 6-page timeline beginning in 1984.  Since I've had
  this for so long, it is just too difficult to remember everything so I
  have it on my computer and I update/edit it as needed.  This helps =
save
  me from struggling to remember stuff when preparing for an appointment
  with a new doctor- of which I've had many because I have never in my
  25-year history with this found anyone who took what I said at face
  value and at least would do what they COULD to help me cope if nothing
  else, like pain meds [besides the dreaded anti-depressants-ick!] or =
FMLA
  papers to protect my job during flare-ups or frequent appointments.  I
  also gave him a copy of a CT scan and an MRI from 5 years ago- the
  interpreting physician had no problem suggesting possible adhesions.
  Also 2 physical therapists thought I had adhesions, probably from the
  injury itself as well as subsequent surgeries.  I have not been
  'officially' diagnosed with adhesions- just have been given the lame,
  vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.

  Anyway, today, I experienced the all-too-familiar 'rushed' =
appointment.
  All he did was explain my current hormonal situtation- the beginning =
of
  menopause, etc.  which was fine.  But not one word about pelvic pain =
or
  anything relating to my most troublesome issues.  I could tell he just
  wanted to be done with me.

  I have fallen for this 'hype-type' of thing before.  I had the same =
kind
  of experience with a urogynecologist at Mayo whose articles I had read
  on PubMed.  In those articles he came across as having sincere =
sympathy
  and interest in pelvic pain and dysfunctions women often endured.  He
  barely gave me the time of day- we barely spoke.

  I get so mad at myself for buying into this kind of advertising- =
'false'
  advertising.  I'm wondering if I should bother to state my opinion on
  RateMDs.com- I sure would like to.  He has only 7 reviews, all of =
which
  were positive alhtough 7 is not very many reviews.  I have to be =
careful
  though because somewhere in the fine print it says something to the
  effect that you are held responsible for what you say so don't know =
how
  honest I'm allowed to be.

  Wish I could be like a woman who posted on the ibsgroup.org website.  =
She
  has such a low regard for doctors that she said she had not been to =
one
  in 27 years- that was when she had her last baby.


  To remove yourself from the =
adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list =
please go
  to the unsubscribe form at ==
http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/for=< href="http://www.adhesions.org/forums/message.htm" target=_blank>http://www.adhesions.org/forums/message.htm<http://www.adhesions.org/foru=
ms/message.htm>

------=_NextPart_000_02F6_01C992A7.4E0CDF70
Content-Type: text/html;
    charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable

<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
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<META http-equiv=Content-Type =
content=text/html;charset=iso-8859-1>
<STYLE></STYLE>

<META content="MSHTML 6.00.6000.16809" name=GENERATOR></HEAD>
<BODY id=MailContainerBody
style="PADDING-LEFT: 10px; FONT-WEIGHT: normal; FONT-SIZE: 10pt; =
COLOR: #000000; BORDER-TOP-STYLE: none; PADDING-TOP: 15px; FONT-STYLE: =
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name="Compose message area"><!--[gte IE 5]><?xml:namespace =
prefix="v" /><?xml:namespace prefix="o" /><![endif]-->
<DIV>
<DIV>Have you tried a Internal Medicine Doctor?&nbsp; </DIV>
<BLOCKQUOTE
style="PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; =
BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT: 0px">
&n >bsp; <DIV style="FONT: 10pt arial">----- Original Message ----- </DIV>
  <DIV style="FONT: 10pt arial"><B>From:</B> <A =
title=mailto:jetstamp@yahoo.com
  href="mailto:jetstamp@yahoo.com">jetstamp</A> </DIV>
  <DIV style="FONT: 10pt arial"><B>To:</B> <A
  title=mailto:adhesions@mail.obgyn.net
  href="mailto:adhesions@mail.obgyn.net">Multiple recipients of list
  ADHESIONS</A> </DIV>
  <DIV style="FONT: 10pt arial"><B>Sent:</B> Thursday, February 19, =
2009 3:20
  PM</DIV>
  <DIV style="FONT: 10pt arial"><B>Subject:</B> Hype!!</DIV>
  <DIV><BR></DIV>I just had my follow-up visit for a new =
gynecologist.&nbsp;
  Unfortunately, I<BR>am right at this moment kicking myself for once =
again
  falling for the<BR>hype.<BR><BR>This doctor was listed as a member of =
the
  International Pelvic Pain<BR>Society.&nbsp; On the clinic's webpage, ==
it said
  that his special interests<BR>were pelvic pain, endometriosis, and
  menopause.&nbsp; He also was listed as a<BR>top women's doctor for the =
year
  2007 in a Minnesota publication.<BR><BR>At my first visit 3 weeks ago, =
he did
  seem to listen at length but<BR>pretty much dismissed any ideas I had =
about my
  condition, which began in<BR>1984 after an on-the-job injury which =
affected my
  lower right quadrant<BR>and pelvis (the injury was never diagnosed- I =
still
  wonder about some<BR>type of hernia or prolapse).<BR><BR>I also gave =
him a
  6-page timeline beginning in 1984.&nbsp; Since I've had<BR>this for so =
long,
  it is just too difficult to remember everything so I<BR>have it on my =
computer
  and I update/edit it as needed.&nbsp; This helps save<BR>me from =
struggling to
  remember stuff when preparing for an appointment<BR>with a new doctor- =
of
  which I've had many because I have never in my<BR>25-year history with =
this
  found anyone who took what I said at face<BR>value and at least would =
do what
  they COULD to help me cope if nothing<BR>else, like pain meds [besides =
the
  dreaded anti-depressants-ick!] or FMLA<BR>papers to protect my job =
during== 20
  flare-ups or frequent appointments.&nbsp; I<BR>also gave him a copy of =
a CT
  scan and an MRI from 5 years ago- the<BR>interpreting physician had no =
problem
  suggesting possible adhesions.<BR>Also 2 physical therapists thought I =
had
  adhesions, probably from the<BR>injury itself as well as subsequent
  surgeries.&nbsp; I have not been<BR>'officially' diagnosed with =
adhesions-
  just have been given the lame,<BR>vague names for some of my symptoms- =
IBS and
  Pelvic Floor Dysfunction.<BR><BR>Anyway, today, I experienced the
  all-too-familiar 'rushed' appointment.<BR>All he did was explain my =
current
  hormonal situtation- the beginning of<BR>menopause, etc.&nbsp; which =
was
  fine.&nbsp; But not one word about pelvic pain or<BR>anything relating =
to my
  most troublesome issues.&nbsp; I could tell he just<BR>wanted to be =
done with
  me.<BR><BR>I have fallen for this 'hype-type' of thing before.&nbsp; I =
had the
  same kind<BR>of experience with a urogynecologist at Mayo whose =
articles I had
  read<BR>on PubMed.&nbsp; In those articles he came across as having =
sincere
  sympathy<BR>and interest in pelvic pain and dysfunctions women often
  endured.&nbsp; He<BR>barely gave me the time of day- we barely =
spoke.<BR><BR>I
  get so mad at myself for buying into this kind of advertising-
  'false'<BR>advertising.&nbsp; I'm wondering if I should bother to =
state my
  opinion on<BR>RateMDs.com- I sure would like to.&nbsp; He has only 7 =
reviews,
  all of which<BR>were positive alhtough 7 is not very many =
reviews.&nbsp; I
  have to be careful<BR>though because somewhere in the fine print it =
says
  something to the<BR>effect that you are held responsible for what you =
say so
  don't know how<BR>honest I'm allowed to be.<BR><BR>Wish I could be =
like a
  woman who posted on the ibsgroup..org website.&nbsp; She<BR>has such a =
low
  regard for doctors that she said she had not been to one<BR>in 27 =
years- that
  was when she had her last baby.<BR><BR><BR>To remove yourself from the =
<A
  title=mailto:adhesions@adhesions.org
  href== 3D"mailto:adhesions@adhesions.org">adhesions@adhesions.org</A> =
mailing list
  please go<BR>&nbsp;to the unsubscribe form at <A
  title=http://www.adhesions.org/forums/listcmds.htm
  =
href="http://www.adhesions..org/forums/listcmds.htm">http://www.adhesion=
s.org/forums/listcmds.htm</A><BR>p.s.
  for the web forum version see <A
  title=http://www.adhesions.org/forums/message.htm
  =
href="http://www.adhesions.org/forums/message.htm">http://www.adhesions=
.org/forums/message.htm</A><BR></BLOCKQUOTE></DIV></BODY></HTML>

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To remove yourself from the adhesions@adhesions.org mailing list please go
to the unsubscribe form at http://www.adhesions.org/forums/listcmds.h ymailto="mailto:jetstamp@yahoo.com">jetstamp@yahoo.com (jetstamp)
To: adhesions@obgyn.net
Subject: Re: Hype!!
Message-ID: <200902192250.n1JMonD11117@mail.obgyn.net>

At Thu, 19 Feb 2009, Kelly Murray wrote:
>
>Have you tried a Internal Medicine Do >ctor?
>
>>  ----- Original Message -----
>  From: jetstamp<mailto:jetstamp@yahoo.com>
>  To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net>
>  Sent: Thursday, February 19, 2009 3:20 PM
>  Subject: Hype!!
>
>  I just had my follow-up visit for a new gynecologist.  Unfortunately, I
>  am right at this moment kicking myself for once again falling for the
>  hype.
>
>  This doctor was listed as a member of the International Pelvic Pain
>  Society.  On the clinic's webpage, it said that his special interests
>  were pelvic pain, endometriosis, and menopause.  He also was listed as a
>  top women's doctor for the year 2007 in a Minnesota publication.
>
>  At my first visit 3 weeks ago, he did seem to listen at length but
>  pretty much dismissed any ideas I had about my condition, which began in
>  1984 after an on-the-job injury which affected my lower right quadrant
>  and pelvis (the injury was never diagnosed- I still wonder about some
>  type of hernia or prolapse).
>
>  I also gave him a 6-page timeline beginning in 1984.  Since I've had
>  this for so long, it is just too difficult to remember everything so I
>  have it on my computer and I update/edit it as needed.  This helps save
>  me from struggling to remember stuff when preparing for an appointment
>  with a new doctor- of which I've had many because I have never in my
>  25-year history with this found anyone who took what I said at face
>  value and at least would do what they COULD to help me cope if nothing
>  else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA
>  papers to protect my job during flare-ups or frequent appointments.  I
>  also gave him a copy of a CT scan and an MRI from 5 years ago- the
>  interpreting physician had no problem suggesting possible adhesions.
>  Also 2 physical therapists thought I had adhesions, probably from the
>  injury itself as well as subsequent surgeries.  I have not been
>  'officially' diagnosed with adhesions- just have been given the lame,
>  vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
>
>  Anyway, today, I experienced the all-too-familiar 'rushed' appointment.
>  All he did was explain my current hormonal situtation- the beginning of
>  menopause, etc.  which was fine.  But not one word about pelvic pain or
>  anything relating to my most troublesome issues.  I could tell he just
>  wanted to be done with me.
>
>  I have fallen for this 'hype-type' of thing before.  I had the same kind
>  of experience with a urogynecologist at Mayo whose articles I had read
>  on PubMed.  In those articles he came across as having sincere sympathy
>  and interest in pelvic pain and dysfunctions women often endured.  He
>  barely gave me the time of day- we barely spoke.
>
>  I get so mad at myself for buying into this kind of advertising- 'false'
>  advertising.  I'm wondering if I should bother to state my opinion on
>  RateMDs.com- I sure would like to.  He has only 7 reviews, all of which
>  were positive alhtough 7 is not very many reviews.  I have to be careful
>  though because somewhere in the fine print it says something to the
>  effect that you are held responsible for what you say so don't know how
>  honest I'm allowed to be.
>
>  Wish I could be like a woman who posted on the ibsgroup.org website.  She
>  has such a low regard for doctors that she said she had not been to one
>  in 27 years- that was when she had her last baby.
>
>  To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list please go
>  to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm>
>ms/message.htm>

Kelly,

My recent primary doctor- who I've decided to fire- is under Internal
Medicine.  However, she is unfortunately one of those who buys into the
convenient made-up catch-all terms like IBS and absolutely will not
consider adhesions.

At my final appointment with her last year, she told me to stop taking
the supplements that I've been taking in an attempt to loosen things up-
like Serrapeptase.  When I asked her why, all she would say was "Doctors
know these things".  Then I said, "Then what should I do about
adhesions?" She shook her head, then turned her little stool around so
her back was toward me.  That was the end of the appointment.

I find it very interesting that the physical therapists and
chiropractors can feel the tightness in my abdomen- they don't seem to
need a laparoscopy to suspect adhesions.  The doctors that bother to
examine my abdomen don't seem to be able to do the same.  This
gynecologist didn't even bother- even after reading my 25-year hostory.

I am considering trying an accupuncture guy who at least is not far from
where I live and see if he has any knowledge of adhesions.  He used to
be a chemist and I think he's into Traditional Chinese Medicine.  Will
have to check with my insurance first though as I suspect it could get
expensive- not just the accupuncture itself but I imagine he might have
patients buy supplements which would be totally out-of-pocket.

--
I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company.

I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions.

My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions.

To remove yourself from the adhesions@adhesions.org mailing list please go
to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm
p.s. for the web forum version see http://www.adhesions.org/forums/message.htm

------------------------------

Date: Thu, 19 Feb 2009 16:03:06 -0700
From: "Kelly Murray" <
------------------------------

Date: Thu, 19 Feb 2009 16:03: ymailto=3D"mailto:klmurray_61@msn.com">klmurray_61@msn.com>
To: =

------------------------------

Date: Thu, 19 Feb 2009 16:03:<adhesions@adhesions.org>
Subject: Re: Hype!!
Message-ID: <BLU140-DS6B6F712D68D5551265E4F9AB20@phx.gbl>
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Content-Transfer-Encoding: quoted-printable

Well, I hope you can get someone to help you.  I know how frustrating it =
is.  I went everywhere until finally someone suspected adhesions and I =
had surgery and I was full of them.
Drs. don't listen and it is so irritating.
My daughter is applying to med school this summer.  She has seen what I =
have gone through and she said she is going to listen to her patients =
and try to help them as much as possible.  By the way, it was a PA that =
told me that I probably had adhesions.  When I was searching, I would =
give Drs. my records of surgeries, and there were adhesions taken down =
on all of them but I didn't know much about them but the Drs. should =
have if they would have read my reports. Duh!
The only advice I can give is to keep searching for someone to > listen =
and care.
Kelly
  ----- Original Message -----== 20
  From: jetstamp<mailto:jetstamp@yahoo.com>
  To: Multiple recipients of list =
ADHESIONS<mailto:adhesions@mail.obgyn.net>
  Sent: Thursday, February 19, 2009 3:51 PM
  Subject: Re: Hype!!


  At Thu, 19 Feb 2009, Kelly Murray wrote:
  >
  >Have you tried a Internal Medicine Doctor?
  >
  >>  ----- Original Message -----
  >  From: =
jetstamp<mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com>>
  >  To: Multiple recipients of list =
ADHESIONS<mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net=
>>
  >  Sent: Thursday, February 19, 2009 3:20 PM
  >  Subject: Hype!!
  >
  >  I just had my follow-up visit for a new gynecologist.  =
Unfortunately, I
  >  am right at this moment kicking myself for once again falling for =
the
  >  hype.
  >
  >  This doctor was listed as a member of the International Pelvic Pain
  >  Society.  On the clinic's webpage, it said that his special =
interests
  >  were pelvic pain, endometriosis, and menopause..  He also was listed =
as a
  >  top women's doctor for the year 2007 in a Minnesota publication.
  >
  >  At my first visit 3 weeks ago, he did seem to listen at length but
  >  pretty much dismissed any ideas I had about my condition, which =
began in
  >  1984 after an on-the-job injury which affected my lower right =
quadrant
  >  and pelvis (the injury was never diagnosed- I still wonder about =
some
  >  type of hernia or prolapse).
  >
  >  I also gave him a 6-page timeline beginning in 1984.  Since I've =
had
  >  this for so long, it is just too difficult to remember everything =
so I
  >  have it on my computer and I update/edit it as needed.  This helps =
save
  >  me from struggling to remember stuff when preparing for an =
appointment
  >  with a new doctor- of which I've had many because I have never in =
my
  >  25-year history with this found anyone who took what I said at face
  >  value and at least would do what they COULD to help me cope if =
nothing
  >  else, like pain meds [besides the dreaded anti-depressants-ick!] or =
FMLA
  >  papers to protect my job during flare-ups or frequent appointments. =
I
  >  also gave him a copy of a CT scan and an MRI from 5 years ago- the
  >  interpreting physician had no problem suggesting possible =
adhesions.
  >  Also 2 physical therapists thought I had adhesions, probably from =
the
  >  injury itself as well as subsequent surgeries.  I have not been
  >  'officially' diagnosed with adhesions- just have been given the =
lame,
  >  vague names for some of my symptoms- IBS and Pelvic Floor ==
Dysfunction.
  >
  >  Anyway, today, I experienced the all-too-familiar 'rushed' =
appointment.
  >  All he did was explain my current hormonal situtation- the =
beginning of
  >  menopause, etc.  which was fine.  But not one word about pelvic =
pain or
  >  anything relating to my most troublesome issues.  I could tell he =
just
  >  wanted to be done with me.
  >
  >  I have fallen for this 'hype-type' of thing before.  I had the same =
kind
  >  of experience with a urogynecologist at Mayo whose articles I had =
read
  >  on PubMed.  In those articles he came across as having sincere =
sympathy
  >  and interest in pelvic pain and dysfunctions women often endured..  =
He
  >  barely gave me the time of day- we barely spoke.
  >
  >  I get so mad at myself for buying into this kind of advertising- =
'false'
  >  advertising.  I'm wondering if I should bother to state my opinion ==
on
  >  RateMDs.com- I sure would like to.  He has only 7 reviews, all of =
which
  >  were positive alhtough 7 is not very many reviews.  I have to be =
careful
  >  though because somewhere in the fine print it says something to the
  >  effect that you are held responsible for what you say so don't know =
how
  >  honest I'm allowed to be.
  >
  >  Wish I could be like a woman who posted on the ibsgroup.org =
website.  She
  >  has such a low regard for doctors that she said she had not been to =
one
  >  in 27 years- that was when she had her last baby.
  >
  >  To remove yourself from the =
adhesions@adhesions.org<mailto:adhesions@adhesions.org<mailto:adhesions@a=
dhesions.org%3Cmailto:adhesions@adhesions.org>> mailing list please go
  >  to the unsubscribe form at =
http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/for=
ums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm%3Chttp://ww=
w.adhesions.org/forums/listcmds.htm>>
  >ms/message.htm>

  Kelly,

  My recent primary doctor- who I've decided to fire- is under Internal
  Medicine.  However, she is unfortunately one of those who buys into =
the
  convenient made-up catch-all terms like IBS and absolutely will not
  consider adhesions.

  At my final appointment with her last year, she told me to stop taking
  the supplements that I've been taking in an attempt to loosen things =
up-
  like Serrapeptase.  When I asked her why, all she would say was =
"Doctors
  know these things".  Then I said, "Then what should I do about
  adhesions?" She shook her head, then turned her little stool around so
  her back was toward me.  That was the end of the appointment.

  I find it very interesting that the physical therapists and
  chiropractors can feel the tightness in my abdomen- they don't seem to
  need a laparoscopy to suspect adhesions.  The doctors that bother to
  examine my abdomen don't seem to be able to do the same.  This
  gynecologist didn't even bother- even after reading my 25-year =
hostory.

  I am considering trying an accupuncture guy who at least is not far =
from
  where I live and see if he has any knowledge of adhesions.  He used to
  be a chemist and I think he's into Traditional Chinese Medicine.  Will
  have to check with my insurance first though as I suspect it could get
  expensive- not just the accupuncture itself but I imagine he might =
have
  patients buy supplements which would be totally out-of-pocket.

  --
  I also tried AbdoTab and decided it wasn't worth anything. I also read =
somewhere that they promised a money-back guarantee but that when you =
tried to contact them they weren't available. Also, the exact location =
of the company is pretty remote- if I remember it looked like the =
company was in one country but the product came from another. Also saw =
other products which looked like they came from the same place but a =
totally different company.

  I currently take Neprinol (for about 6 months now) which is very =
expensive. Also lycopene which I read was good for adhesions but it =
wasn't clear as to whether it was just good for preventing adhesions or =
getting rid of current ones- the article had an endometriosis basis but =
I asssume all adhesions would respond the same if lycopene were indeed =
effective. I also just started taking Resveratrol which the TV show 60 =
minutes did a story on this week- they made it sound like a miracle =
supplement but don't know if it would do anything for adhesions.

  My main pain and tightness started in the lower right quadrant after =
an on-the-job injury 25 years ago. I've been to two physical therapists =
who think I have adhesions. So far, no doctor will discuss it. I have =
had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy =
(1998) and right adrenal gland removed (2006). But as I said, I'm pretty =
sure my adhesions were from the on-the-job injury- which no doctor can =
seem to comprehend! Surgery and endo are 2 causes but not the only ones. =
Generally, anything that causes inflammation could create adhesions.

  To remove yourself from the =
adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list =
please go
  to the unsubscribe form at =
http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/for=
ums/listcmds.htm>
&n/message.htm<http://www.adhesions.org/foru=
ms/message.htm>

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<DIV>
<DIV>Well, I hope you can get someone to help you.&nbsp; I know how =
frustrating
it is.&nbsp; I went everywhere until finally someone suspected adhesions =
and I
had surgery and I was full of them.&nbsp; </DIV>
<DIV>Drs. don't listen and it is so irritating.</DIV>
<DIV>My daughter is applying to med school this summer.&nbsp; She has =
seen what
I have gone through and she said she is going to listen to her patients =
and try
to help them as much as possible.&nbsp; By the way, it was a PA that =
told me
that I probably had adhesions.&nbsp; When I was searching, I would give =
Drs. my
records of surgeries, and there were adhesions taken down on all of them =
but I
didn't know much about them but the Drs. should have if they would have =
read my
reports. Duh!</DIV>
<DIV>The only advice I can give is to keep searching for someone to =
listen and
care.</DIV>
<DIV>Kelly</DIV>
<BLOCKQUOTE
style="PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; =
BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT: 0px">
&nb >sp; <DIV style="FONT: 10pt arial">----- Original Message ----- </DIV>
  <DIV style="FONT: 10pt arial"><B>From:</B> <A =
title=mailto:jetstamp@yahoo.com
  href="mailto:jetstamp@yahoo.com">jetstamp</A> </DIV>
  <DIV style="FONT: 10pt arial"><B>To:</B> <A
  title=mailto:adhesions@mail.obgyn.net
  href="mailto:adhesions@mail.obgyn.net">Multiple recipients of list
  ADHESIONS</A> </DIV>
  <DIV style="FONT: 10pt arial"><B>Sent:</B> Thursday, February 19, =
2009 3:51
  PM</DIV>
  <DIV style="FONT: 10pt arial"><B>Subject:</B> Re: Hype!!</DIV>
  <DIV><BR></DIV>At Thu, 19 Feb 2009, Kelly Murray =
wrote:<BR>&gt;<BR>&gt;Have
  you tried a Internal Medicine Doctor?<BR>&gt;<BR>&gt;&gt;&nbsp; ----- =
Original
  Message -----<BR>&gt;&nbsp; From: jetstamp&lt;<A
  title=mailto:jetstamp@yahoo.com
  =
href="mailto:jetstamp@yahoo.com">mailto:jetstamp@yahoo.com</A>&gt;<BR>&=
gt;&nbsp;
  To: Multiple recipients of list ADHESIONS&lt;<A
  title=mailto:adhesions@mail.obgyn.net
  =
href="mailto:adhesions@mail.obgyn.net">mailto:adhesions@mail.obgyn.net<=
/A>&gt;<BR>&gt;&nbsp;
  Sent: Thursday, February 19, 2009 3:20 PM<BR>&gt;&nbsp; Subject:
  Hype!!<BR>&gt;<BR>&gt;&nbsp; I just had my follow-up visit for a new
  gynecologist.&nbsp; Unfortunately, I<BR>&gt;&nbsp; am right at this =
moment
  kicking myself for once again falling for the<BR>&gt;&nbsp;
  hype.<BR>&gt;<BR>&gt;&nbsp; This doctor was listed as a member of the
  International Pelvic Pain<BR>&gt;&nbsp; Society.&nbsp; On the clinic's =

  webpage, it said that his special interests<BR>&gt;&nbsp; were pelvic =
pain,
  endometriosis, and menopause.&nbsp; He also was listed as ==
a<BR>&gt;&nbsp; top
  women's doctor for the year 2007 in a Minnesota
  publication.<BR>&gt;<BR>&gt;&nbsp; At my first visit 3 weeks ago, he =
did seem
  to listen at length but<BR>&gt;&nbsp; pretty much dismissed any ideas =
I had
  about my condition, which began in<BR>&gt;&nbsp; 1984 after an =
on-the-job
  injury which affected my lower right quadrant<BR>&gt;&nbsp; and pelvis =
(the
  injury was never diagnosed- I still wonder about some<BR>&gt;&nbsp; =
type of
  hernia or prolapse).<BR>&gt;<BR>&gt;&nbsp; I also gave him a 6-page =
timeline
  beginning in 1984.&nbsp; Since I've had<BR>&gt;&nbsp; this for so =
long, it is
  just too difficult to remember everything so I<BR>&gt;&nbsp; have it =
on my
  computer and I update/edit it as needed.&nbsp; This helps =
save<BR>&gt;&nbsp;
  me from struggling to remember stuff when preparing for an
  appointment<BR>&gt;&nbsp; with a new doctor- of which I've had many =
because I
  have never in my<BR>&gt;&nbsp; 25-year history with this found anyone =
who took
  what I said at face<BR>&gt;&nbsp; value and at least would do what =
they COULD
  to help me cope if nothing<BR>&gt;&nbsp; else, like pain meds [besides =
the
  dreaded anti-depressants-ick!] or FMLA<BR>&gt;&nbsp; papers to protect =
my job
  during flare-ups or frequent appointments.&nbsp; I<BR>&gt;&nbsp; also =
gave him
  a copy of a CT scan and an MRI from 5 years ago- the<BR>&gt;&nbsp;
  interpreting physician had no problem suggesting possible
  adhesions.<BR>&gt;&nbsp; Also 2 physical therapists thought I had =
adhesions,
  probably from the<BR>&gt;&nbsp; injury itself as well as subsequent
  surgeries.&nbsp; I have not been<BR>&gt;&nbsp; 'officially' diagnosed =
with
  adhesions- just have been given the lame,<BR>&gt;&nbsp; vague names =
for some
  of my symptoms- IBS and Pelvic Floor =
Dysfunction.<BR>&gt;<BR>&gt;&nbsp;
  Anyway, today, I experienced the all-too-familiar 'rushed'
  appointment.<BR>&gt;&nbsp; All he did was explain my current hormonal
  situtation- the beginning of<BR>&gt;&nbsp; menopause, etc.&nbsp; which =
was
  fine.&nbsp; But not one word about pelvic pain or<BR>&gt;&nbsp; =
anything
  relating to my most troublesome issues.&nbsp; I could tell he
  just<BR>&gt;&nbsp; wanted to be done with me.<BR>&gt;<BR>&gt;&nbsp; I =
have
  fallen for this 'hype-type' of thing before.&nbsp; I had the same
  kind<BR>&gt;&nbsp; of experience with a urogynecologist at Mayo whose =
articles
  I had read<BR>&gt;&nbsp; on PubMed.&nbsp; In those articles he came ==
across as
  having sincere sympathy<BR>&gt;&nbsp; and interest in pelvic pain and
  dysfunctions women often endured.&nbsp; He<BR>&gt;&nbsp; barely gave =
me the
  time of day- we barely spoke.<BR>&gt;<BR>&gt;&nbsp; I get so mad at =
myself for
  buying into this kind of advertising- 'false'<BR>&gt;&nbsp; =
advertising.&nbsp;
  I'm wondering if I should bother to state my opinion on<BR>&gt;&nbsp;
  RateMDs.com- I sure would like to.&nbsp; He has only 7 reviews, all of =

  which<BR>&gt;&nbsp; were positive alhtough 7 is not very many =
reviews.&nbsp; I
  have to be careful<BR>&gt;&nbsp; though because somewhere in the fine =
print it
  says something to the<BR>&gt;&nbsp; effect that you are held =
responsible for
  what you say so don't know how<BR>&gt;&nbsp; honest I'm allowed to
  be.<BR>&gt;<BR>&gt;&nbsp; Wish I could be like a woman who posted on =
the
  ibsgroup.org website.&nbsp; She<BR>&gt;&nbsp; has such a low regard =
for
  doctors that she said she had not been to one<BR>&gt;&nbsp; in 27 =
years- that
  was when she had her last baby.<BR>&gt;<BR>&gt;&nbsp; To remove =
yourself from=20
  the <A =
title=mailto:adhesions@adhesions.org%3Cmailto:adhesions@adhesions.org
  =
href="mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org">ad=
hesions@adhesions.org&lt;mailto:adhesions@adhesions.org</A>&gt;
  mailing list please go<BR>&gt;&nbsp;&nbsp; to the unsubscribe form at =
<A
  =
title=http://www.adhesions.org/forums/listcmds.htm%3Chttp://www.adhesio=
ns.org/forums/listcmds.htm
  =
href=3D"http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions=
.org/forums/listcmds.htm">http://www.adhesions.org/forums/listcmds.htm<=
;http://www.adhesions.org/forums/listcmds.htm</A>&gt;<BR>&gt;ms/message.h=
tm&gt;<BR><BR>Kelly,<BR><BR>My
  recent primary doctor- who I've decided to fire- is under
  Internal<BR>Medicine.&nbsp; However, she is unfortunately one of those =
who
  buys into the<BR>convenient made-up catch-all terms like IBS and =
absolutely
  will not<BR>consider adhesions.<BR><BR>At my final appointment with =
her last
  year, she told me to stop taking<BR>the supplements that I've been =
taking in
  an attempt to loosen things up-<BR>like Serrapeptase.&nbsp; When I =
asked her
  why, all she would say was "Doctors<BR>know these things".&nbsp; Then =
I said,
  "Then what should I do about<BR>adhesions?" She shook her head, then =
turned
  her little stool around so<BR>her back was toward me.&nbsp; That was =
the end
  of the appointment.<BR><BR>I find it very interesting that the =
physical
  therapists and<BR>chiropractors can feel the tightness in my abdomen- =
they
  don't seem to<BR>need a laparoscopy to suspect adhesions.&nbsp; The =
doctors
  that bother to<BR>examine my abdomen don't seem to be able to do the
  same.&nbsp; This<BR>gynecologist didn't even bother- even after =
reading my
  25-year hostory.<BR><BR>I am considering trying an accupuncture guy =
who at
  least is not far from<BR>where I live and see if he has any knowledge =
of
  adhesions.&nbsp; He used to<BR>be a chemist and I think he's into =
Traditional
  Chinese Medicine.&nbsp; Will<BR>have to check with my insurance first =
though
  as I suspect it could get<BR>expensive- not just the accupuncture =
itself but I
  imagine he might have<BR>patients buy supplements which would be =
totally
  out-of-pocket.<BR><BR>--<BR>I also tried AbdoTab and decided it wasn't =
worth
  anything. I also read somewhere that they promised a money-back =
guarantee but
  that when you tried to contact them they weren't available. Also, the =
exact
  location of the company is pretty remote- if I remember it looked like =
the
  company was in one country but the product came from another. Also saw =
other
  products which looked like they came from the same place but a totally =

  different company.<BR><BR>I currently take Neprinol (for about 6 =
months now)
  which is very expensive. Also lycopene which I read was good for =
adhesions but
  it wasn't clear as to whether it was just good for preventing =
adhesions or
  getting rid of current ones- the article had an endometriosis basis =
but I
  asssume all adhesions would respond the same if lycopene were indeed
  effective. I also just started taking Resveratrol which the TV show 60 =
minutes
  did a story on this week- they made it sound like a miracle supplement =
but
  don't know if it would do anything for adhesions.<BR><BR>My main pain =
and
  tightness started in the lower right quadrant after an on-the-job =
injury 25
  years ago. I've been to two physical therapists who think I have =
adhesions. So
  far, no doctor will discuss it. I have had an exploratory lap (1991),
  myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland =
removed
  (2006). But as I said, I'm pretty sure my adhesions were from the =
on-the-job
  injury- which no doctor can seem to comprehend! Surgery and endo are 2 =
causes
  but not the only ones. Generally, anything that causes inflammation =
could
  create adhesions.<BR><BR>To remove yourself from the <A
  title=mailto:adhesions@adhesions.org
  href="mailto:adhesions@adhesions.org">adhesions@adhesions.org</A> =
mailing list=20
  please go<BR>&nbsp;to the unsubscribe form at <A
  title=http://www.adhesions.org/forums/listcmds.htm
  =
href="http://www.adhesions.org/forums/listcmds..htm">http://www..adhesion=
s.org/forums/listcmds.htm</A><BR>p.s.
  for the web forum version see <A
  title=http://www.adhesions.org/forums/message.htm
  =
href="http://www.adhesions.org/forums/message..htm">http://www.adhesions=
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---mp@yahoo.com">jetstamp@yahoo.com (jetstamp)
To: adhesions@obgyn.net
Subject: Re: Hype!!
Message-ID: <200902192315.n1JNFfT31334@mail.obgyn.net>

At Thu, 19 Feb 2009, jetstamp wrote:
>
>At Thu, 19 Feb 2009, Kelly Murray wrote:
>>
>>Have you tried a Internal Medicine > Doctor?
>>
>>>>  ----- Original Message -----
>>  From: jetstamp<mailto:jetstamp@yahoo.com>
>>  To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net>
>>  Sent: Thursday, February 19, 2009 3:20 PM
>>  Subject: Hype!!
>>
>>  I just had my follow-up visit for a new gynecologist.  Unfortunately, I
>>  am right at this moment kicking myself for once again falling for the
>>  hype.
>>
>>  This doctor was listed as a member of the International Pelvic Pain
>>  Society.  On the clinic's webpage, it said that his special interests
>>  were pelvic pain, endometriosis, and menopause..  He also was listed as a
>>  top women's doctor for the year 2007 in a Minnesota publication.
>>
>>  At my first visit 3 weeks ago, he did seem to listen at length but
>>  pretty much dismissed any ideas I had about my condition, which began in
>>  1984 after an on-the-job injury which affected my lower right quadrant
>>  and pelvis (the injury was never diagnosed- I still wonder about some
>>  type of hernia or prolapse).
>>
>>  I also gave him a 6-page timeline beginning in 1984.  Since I've had
>>  this for so long, it is just too difficult to remember everything so I
>>  have it on my computer and I update/edit it as needed.  This helps save
>>  me from struggling to remember stuff when preparing for an appointment
>>  with a new doctor- of which I've had many because I have never in my
>>  25-year history with this found anyone who took what I said at face
>>  value and at least would do what they COULD to help me cope if nothing
>>  else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA
>>  papers to protect my job during flare-ups or frequent appointments.  I
>>  also gave him a copy of a CT scan and an MRI from 5 years ago- the
>>  interpreting physician had no problem suggesting possible adhesions.
>>  Also 2 physical therapists thought I had adhesions, probably from the
>>  injury itself as well as subsequent surgeries.  I have not been
>>  'officially' diagnosed with adhesions- just have been given the lame,
>>  vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
>>
>>  Anyway, today, I experienced the all-too-familiar 'rushed' appointment.
>>  All he did was explain my current hormonal situtation- the beginning of
>>  menopause, etc.  which was fine.  But not one word about pelvic pain or
>>  anything relating to my most troublesome issues.  I could tell he just
>>  wanted to be done with me.
>>
>>  I have fallen for this 'hype-type' of thing before.  I had the same kind
>>  of experience with a urogynecologist at Mayo whose articles I had read
>>  on PubMed.  In those articles he came across as having sincere sympathy
>>  and interest in pelvic pain and dysfunctions women often endured.  He
>>  barely gave me the time of day- we barely spoke.
>>
>>  I get so mad at myself for buying into this kind of advertising- 'false'
>>  advertising.  I'm wondering if I should bother to state my opinion on
>>  RateMDs.com- I sure would like to.  He has only 7 reviews, all of which
>>  were positive alhtough 7 is not very many reviews.  I have to be careful
>>  though because somewhere in the fine print it says something to the
>>  effect that you are held responsible for what you say so don't know how
>>  honest I'm allowed to be.
>>
>>  Wish I could be like a woman who posted on the ibsgroup.org website.  She
>>  has such a low regard for doctors that she said she had not been to one
>>  in 27 years- that was when she had her last baby.
>>
>Kelly,
>
>My recent primary doctor- who I've decided to fire- is under Internal
>Medicine.  However, she is unfortunately one of those who buys into the
>convenient made-up catch-all terms like IBS and absolutely will not
>consider adhesions.
>
>At my final appointment with her last year, she told me to stop taking
>the supplements that I've been taking in an attempt to loosen things up-
>like Serrapeptase.  When I asked her why, all she would say was "Doctors
>know these things".  Then I said, "Then what should I do about
>adhesions?" She shook her head, then turned her little stool around so
>her back was toward me.  That was the end of the appointment.
>
>I find it very interesting that the physical therapists and
>chiropractors can feel the tightness in my abdomen- they don't seem to
>need a laparoscopy to suspect adhesions.  The doctors that bother to
>examine my abdomen don't seem to be able to do the same.  This
>gynecologist didn't even bother- even after reading my 25-year hostory.
>
>I am considering trying an accupuncture guy who at least is not far from
>where I live and see if he has any knowledge of adhesions.  He used to
>be a chemist and I think he's into Traditional Chinese Medicine.  Will
>have to check with my insurance first though as I suspect it could get
>expensive- not just the accupuncture itself but I imagine he might have
>patients buy supplements which would be totally out-of-pocket.
>
>--
>I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company.
>
>I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions.
>
>My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions.
>


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------------------------------

End of ADHESIONS Digest 923
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