> ----- Original Message -----
From: Kristine Lovaas<mailto:krisl1204@yahoo.com>
To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net>
Sent: Sunday, February 22, 2009 6:46 PM
Subject: Re: ADHESIONS digest 923
Was his name Dr. Ron Peterson? I live in MN, had him as an OB/GYN. He did surgery on me 5 years ago for a right side ovarian cyst. It ruptured before the surgery was scheduled, and we had to move the date up. i never had any pelvic pain until after that surgery, in spite of having an appendectomy in 1973, 2 C-sections in 1977 and 1978, and ectopic pregnancy in 1986 and a partial hysterectomy in 1991. i started having the awful pain and nausea that all of us go through about 2 1/2 years ago. I had a colonoscopy 2 years ago that took the doctor an hour and half to complete because of adhesions. i'd never even heard of the the condition prior to that. i'll make the long medical saga short. After so many tests to rule out everything else, i'm having surgery on Tuesday, March 3rd in Minneapolis to have adhesions removed. I've researched the surgeon and had conversations with several doctors who allspeak to his success. I'm really hoping for good results. I've read so much on this site and haven't responded before. Take care, everyone. i wish you all pain tolerant days! Kris
------------------------------------------------------------------------------ ------------------------------------------------------------------------- From: Adhesions Society <adhesions@adhesions.org>
-- ------------------------------------------------------------------------- To: Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net> Sent: Thursday, February 19, 2009 5:16:35 PM Subject: ADHESIONS digest 923ADHESIONS Digest 923
Topics covered in this issue include:
1) Hype!! by jetstamp@yahoo.com<mailto:jetstamp@yahoo.com> (jetstamp) 2) Re: Hype!! by "Kelly Murray" <klmurray_61@msn.com<mailto:klmurray_61@msn.com>> 3) Re: Hype!! by jetstamp@yahoo.com<mailto:jetstamp@yahoo.com> (jetstamp) 4) Re: Hype!! by "Kelly Murray" <klmurray_61@msn.com<mailto:klmurray_61@msn.com>> 5) Re: Hype!! by jetstamp@yahoo.com<mailto:jetstamp@yahoo.com> (jetstamp)
----------------------------------------------------------------------
Date: Thu, 19 Feb 2009 16:18:43 -0600 (CST) ---------------------------------------------------------------------- From: jetstamp@yahoo.com<mailto:jetstamp@yahoo.com> (jetstamp) ---------------------------------------------------------------------- To: adhesions@adhesions.org<mailto:adhesions@adhesions.org> Subject: Hype!! Message-ID:<200902192218.n1JMIhY26075@mail.obgyn.net<mailto:200902192218.n1JMIhY26075@mail.obgyn.net>>
I just had my follow-up visit for a new gynecologist. Unfortunately, I am right at this moment kicking myself for once again falling for the hype.
This doctor was listed as a member of the International Pelvic Pain Society. On the clinic's webpage, it said that his special interests were pelvic pain, endometriosis, and menopause. He also was listed as a top women's doctor for the year 2007 in a Minnesota publication.
At my first visit 3 weeks ago, he did seem to listen at length but pretty much dismissed any ideas I had about my condition, which began in 1984 after an on-the-job injury which affected my lower right quadrant and pelvis (the injury was never diagnosed- I still wonder about some type of hernia or prolapse).
I also gave him a 6-page timeline beginning in 1984. Since I've had this for so long, it is just too difficult to remember everything so I have it on my computer and I update/edit it as needed. This helps save me from struggling to remember stuff when preparing for an appointment with a new doctor- of which I've had many because I have never in my 25-year history with this found anyone who took what I said at face value and at least would do what they COULD to help me cope if nothing else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA papers to protect my job during flare-ups or frequent appointments. I also gave him a copy of a CT scan and an MRI from 5 years ago- the interpreting physician had no problem suggesting possible adhesions. Also 2 physical therapists thought I had adhesions, probably from the injury itself as well as subsequent surgeries. I have not been 'officially' diagnosed with adhesions- just have been given the lame, vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
Anyway, today, I experienced the all-too-familiar 'rushed' appointment. All he did was explain my current hormonal situtation- the beginning of menopause, etc. which was fine. But not one word about pelvic pain or anything relating to my most troublesome issues. I could tell he just wanted to be done with me.
I have fallen for this 'hype-type' of thing before. I had the same kind of experience with a urogynecologist at Mayo whose articles I had read on PubMed. In those articles he came across as having sincere sympathy and interest in pelvic pain and dysfunctions women often endured. He barely gave me the time of day- we barely spoke.
I get so mad at myself for buying into this kind of advertising- 'false' advertising. I'm wondering if I should bother to state my opinion on RateMDs.com- I sure would like to. He has only 7 reviews, all of which were positive alhtough 7 is not very many reviews. I have to be careful though because somewhere in the fine print it says something to the effect that you are held responsible for what you say so don't know how honest I'm allowed to be.
Wish I could be like a woman who posted on the ibsgroup.org website. She has such a low regard for doctors that she said she had not been to one in 27 years- that was when she had her last baby.
To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list please go to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm> ms/message.htm>
------------------------------
Date: Thu, 19 Feb 2009 15:32:42 -0700 ------------------------------ From: "Kelly Murray" <klmurray_61@msn.com<mailto:klmurray_61@msn.com>> ------------------------------ To: <adhesions@adhesions.org<mailto:adhesions@adhesions.org>> Subject: Re: Hype!! Message-ID:<BLU140-DS1730D857209BADCC23AC49AB20@phx.gbl<mailto:BLU140-DS1730D857209BADCC23AC49AB20@phx.gbl>> MIME-Version: 1.0 Content-Type: multipart/alternative; boundary="----=_NextPart_000_02F6_01C992A7.4E0CDF70"
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Have you tried a Internal Medicine Doctor?
> ----- Original Message ----- From: jetstamp<mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com>> To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net>>
Sent: Thursday, February 19, 2009 3:20 PM Subject: Hype!!
I just had my follow-up visit for a new gynecologist. Unfortunately, I am right at this moment kicking myself for once again falling for the hype.
This doctor was listed as a member of the International Pelvic Pain Society. On the clinic's webpage, it said that his special interests were pelvic pain, endometriosis, and menopause. He also was listed as a top women's doctor for the year 2007 in a Minnesota publication.
At my first visit 3 weeks ago, he did seem to listen at length but pretty much dismissed any ideas I had about my condition, which began in 1984 after an on-the-job injury which affected my lower right quadrant and pelvis (the injury was never diagnosed- I still wonder about some type of hernia or prolapse).
I also gave him a 6-page timeline beginning in 1984. Since I've had this for so long, it is just too difficult to remember everything so I have it on my computer and I update/edit it as needed. This helps = save me from struggling to remember stuff when preparing for an appointment with a new doctor- of which I've had many because I have never in my 25-year history with this found anyone who took what I said at face value and at least would do what they COULD to help me cope if nothing else, like pain meds [besides the dreaded anti-depressants-ick!] or = FMLA papers to protect my job during flare-ups or frequent appointments. I also gave him a copy of a CT scan and an MRI from 5 years ago- the interpreting physician had no problem suggesting possible adhesions. Also 2 physical therapists thought I had adhesions, probably from the injury itself as well as subsequent surgeries. I have not been 'officially' diagnosed with adhesions- just have been given the lame, vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
Anyway, today, I experienced the all-too-familiar 'rushed' appointment. All he did was explain my current hormonal situtation- the beginning = of menopause, etc. which was fine. But not one word about pelvic pain = or anything relating to my most troublesome issues. I could tell he just wanted to be done with me.
I have fallen for this 'hype-type' of thing before. I had the same = kind of experience with a urogynecologist at Mayo whose articles I had read on PubMed. In those articles he came across as having sincere sympathy and interest in pelvic pain and dysfunctions women often endured. He barely gave me the time of day- we barely spoke.
I get so mad at myself for buying into this kind of advertising- 'false' advertising. I'm wondering if I should bother to state my opinion on RateMDs.com- I sure would like to. He has only 7 reviews, all of = which were positive alhtough 7 is not very many reviews. I have to be careful though because somewhere in the fine print it says something to the effect that you are held responsible for what you say so don't know = how honest I'm allowed to be.
Wish I could be like a woman who posted on the ibsgroup.org website. She has such a low regard for doctors that she said she had not been to = one in 27 years- that was when she had her last baby.
To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org><mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org>> mailing list please go to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm><http://www.adhesions.org/for=<http://www.adhesions.org/for=> ums/listcmds.htm> http://www.adhesions.org/forums/message.htm<http://www.adhesions.org/forums/message.htm><http://www.adhesions.org/foru=<http://www.adhesions.org/foru=> ms/message.htm>
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<META content="MSHTML 6.00.6000.16809" name=GENERATOR></HEAD> <BODY id=MailContainerBody style="PADDING-LEFT: 10px; FONT-WEIGHT: normal; FONT-SIZE: 10pt; = COLOR: #000000; BORDER-TOP-STYLE: none; PADDING-TOP: 15px; FONT-STYLE: = normal; FONT-FAMILY: Verdana; BORDER-RIGHT-STYLE: none; BORDER-LEFT-STYLE: none; TEXT-DECORATION: none; BORDER-BOTTOM-STYLE: = none" leftMargin=0 topMargin=0 acc_role="text" CanvasTabStop="true" name="Compose message area"><!--[gte IE 5]><?xml:namespace prefix="v" /><?xml:namespace prefix="o" /><![endif]--> <DIV> <DIV>Have you tried a Internal Medicine Doctor? </DIV> <BLOCKQUOTE style="PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; = BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT: 0px">
> <DIV style="FONT: 10pt arial">----- Original Message ----- </DIV> <DIV style="FONT: 10pt arial"><B>From:</B> <A title=mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com> href="mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com>">jetstamp</A> </DIV> <DIV style="FONT: 10pt arial"><B>To:</B> <A title=mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net> href="mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net>">Multiple recipients of list
ADHESIONS</A> </DIV> <DIV style="FONT: 10pt arial"><B>Sent:</B> Thursday, February 19, 2009 3:20 PM</DIV> <DIV style="FONT: 10pt arial"><B>Subject:</B> Hype!!</DIV> <DIV><BR></DIV>I just had my follow-up visit for a new gynecologist. Unfortunately, I<BR>am right at this moment kicking myself for once = again falling for the<BR>hype.<BR><BR>This doctor was listed as a member of the International Pelvic Pain<BR>Society. On the clinic's webpage, = it said that his special interests<BR>were pelvic pain, endometriosis, and menopause. He also was listed as a<BR>top women's doctor for the year 2007 in a Minnesota publication.<BR><BR>At my first visit 3 weeks ago, he did seem to listen at length but<BR>pretty much dismissed any ideas I had about my condition, which began in<BR>1984 after an on-the-job injury which = affected my lower right quadrant<BR>and pelvis (the injury was never diagnosed- I still wonder about some<BR>type of hernia or prolapse).<BR><BR>I also gave = him a 6-page timeline beginning in 1984. Since I've had<BR>this for so long, it is just too difficult to remember everything so I<BR>have it on my computer and I update/edit it as needed. This helps save<BR>me from struggling to remember stuff when preparing for an appointment<BR>with a new doctor- of which I've had many because I have never in my<BR>25-year history with this found anyone who took what I said at face<BR>value and at least would do what they COULD to help me cope if nothing<BR>else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA<BR>papers to protect my job = during flare-ups or frequent appointments. I<BR>also gave him a copy of a CT scan and an MRI from 5 years ago- the<BR>interpreting physician had no problem suggesting possible adhesions.<BR>Also 2 physical therapists thought I had adhesions, probably from the<BR>injury itself as well as subsequent surgeries. I have not been<BR>'officially' diagnosed with adhesions- just have been given the lame,<BR>vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.<BR><BR>Anyway, today, I experienced the all-too-familiar 'rushed' appointment.<BR>All he did was explain my = current hormonal situtation- the beginning of<BR>menopause, etc. which = was fine. But not one word about pelvic pain or<BR>anything relating to my most troublesome issues. I could tell he just<BR>wanted to be = done with me.<BR><BR>I have fallen for this 'hype-type' of thing before. I had the same kind<BR>of experience with a urogynecologist at Mayo whose articles I had read<BR>on PubMed. In those articles he came across as having = sincere sympathy<BR>and interest in pelvic pain and dysfunctions women often endured. He<BR>barely gave me the time of day- we barely spoke.<BR><BR>I get so mad at myself for buying into this kind of advertising- 'false'<BR>advertising. I'm wondering if I should bother to = state my opinion on<BR>RateMDs.com- I sure would like to. He has only 7 = reviews, all of which<BR>were positive alhtough 7 is not very many reviews. I have to be careful<BR>though because somewhere in the fine print it = says something to the<BR>effect that you are held responsible for what you say so don't know how<BR>honest I'm allowed to be.<BR><BR>Wish I could be = like a woman who posted on the ibsgroup.org website. She<BR>has such a low regard for doctors that she said she had not been to one<BR>in 27 = years- that was when she had her last baby.<BR><BR><BR>To remove yourself from the <A title=mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org>== 20 href="mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org>">adhesions@adhesions.org<mailto:adhesions@adhesions.org></A> mailing list please go<BR> to the unsubscribe form at <A title=http://www.adhesions.org/forums/listcmds.htm <http://www.adhesions.org/forums/listcmds.htm > href="http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm>">http://www.adhesion=<http://www.adhesion== /> s.org/forums/listcmds.htm</A><BR>p.s. for the web forum version see <A title=http://www.adhesions.org/forums/message.htm <http://www.adhesions.org/forums/message.htm > href="http://www.adhesions.org/forums/message.htm<http://www.adhesions.org/forums/message.htm>">http://www.adhesions=<http://www.adhesions== /> .org/forums/message.htm</A><BR></BLOCKQUOTE></DIV></BODY></HTML>
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To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list please go to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm> ms/message.htm>
------------------------------
Date: Thu, 19 Feb 2009 16:50:49 -0600 (CST) ------------------------------ From: jetstamp@yahoo.com<mailto:jetstamp@yahoo.com> (jetstamp) ------------------------------ To: adhesions@obgyn.net<mailto:adhesions@obgyn.net> Subject: Re: Hype!! Message-ID:<200902192250.n1JMonD11117@mail.obgyn.net<mailto:200902192250.n1JMonD11117@mail.obgyn.net>>
At Thu, 19 Feb 2009, Kelly Murray wrote: > >Have you tried a Internal Medicine Doctor? >
> >> ----- Original Message ----- > From: jetstamp<mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com>> > To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net>> > Sent: Thursday, February 19, 2009 3:20 PM > Subject: Hype!! > > I just had my follow-up visit for a new gynecologist. Unfortunately, I > am right at this moment kicking myself for once again falling for the > hype. > > This doctor was listed as a member of the International Pelvic Pain > Society. On the clinic's webpage, it said that his special interests > were pelvic pain, endometriosis, and menopause. He also was listed as a > top women's doctor for the year 2007 in a Minnesota publication. > > At my first visit 3 weeks ago, he did seem to listen at length but > pretty much dismissed any ideas I had about my condition, which began in > 1984 after an on-the-job injury which affected my lower right quadrant > and pelvis (the injury was never diagnosed- I still wonder about some > type of hernia or prolapse). > > I also gave him a 6-page timeline beginning in 1984. Since I've had > this for so long, it is just too difficult to remember everything so I > have it on my computer and I update/edit it as needed. This helps save > me from struggling to remember stuff when preparing for an appointment > with a new doctor- of which I've had many because I have never in my > 25-year history with this found anyone who took what I said at face > value and at least would do what they COULD to help me cope if nothing > else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA > papers to protect my job during flare-ups or frequent appointments. I > also gave him a copy of a CT scan and an MRI from 5 years ago- the > interpreting physician had no problem suggesting possible adhesions. > Also 2 physical therapists thought I had adhesions, probably from the > injury itself as well as subsequent surgeries. I have not been > 'officially' diagnosed with adhesions- just have been given the lame, > vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction. > > Anyway, today, I experienced the all-too-familiar 'rushed' appointment. > All he did was explain my current hormonal situtation- the beginning of > menopause, etc. which was fine. But not one word about pelvic pain or > anything relating to my most troublesome issues. I could tell he just > wanted to be done with me. > > I have fallen for this 'hype-type' of thing before. I had the same kind > of experience with a urogynecologist at Mayo whose articles I had read > on PubMed. In those articles he came across as having sincere sympathy > and interest in pelvic pain and dysfunctions women often endured. He > barely gave me the time of day- we barely spoke. > > I get so mad at myself for buying into this kind of advertising- 'false' > advertising. I'm wondering if I should bother to state my opinion on > RateMDs.com- I sure would like to. He has only 7 reviews, all of which > were positive alhtough 7 is not very many reviews. I have to be careful > though because somewhere in the fine print it says something to the > effect that you are held responsible for what you say so don't know how > honest I'm allowed to be. > > Wish I could be like a woman who posted on the ibsgroup.org website. She > has such a low regard for doctors that she said she had not been to one > in 27 years- that was when she had her last baby. > > To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org><mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org>> mailing list please go > to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm><http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm>> >ms/message.htm>
Kelly,
My recent primary doctor- who I've decided to fire- is under Internal Medicine. However, she is unfortunately one of those who buys into the convenient made-up catch-all terms like IBS and absolutely will not consider adhesions.
At my final appointment with her last year, she told me to stop taking the supplements that I've been taking in an attempt to loosen things up- like Serrapeptase. When I asked her why, all she would say was "Doctors know these things". Then I said, "Then what should I do about adhesions?" She shook her head, then turned her little stool around so her back was toward me. That was the end of the appointment.
I find it very interesting that the physical therapists and chiropractors can feel the tightness in my abdomen- they don't seem to need a laparoscopy to suspect adhesions. The doctors that bother to examine my abdomen don't seem to be able to do the same. This gynecologist didn't even bother- even after reading my 25-year hostory.
I am considering trying an accupuncture guy who at least is not far from where I live and see if he has any knowledge of adhesions. He used to be a chemist and I think he's into Traditional Chinese Medicine. Will have to check with my insurance first though as I suspect it could get expensive- not just the accupuncture itself but I imagine he might have patients buy supplements which would be totally out-of-pocket.
-- I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company.
I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions.
My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions.
To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list please go to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm> ms/message.htm>
------------------------------
Date: Thu, 19 Feb 2009 16:03:06 -0700 ------------------------------ From: "Kelly Murray" <klmurray_61@msn.com<mailto:klmurray_61@msn.com>> ------------------------------ To: <adhesions@adhesions.org<mailto:adhesions@adhesions.org>> Subject: Re: Hype!! Message-ID:<BLU140-DS6B6F712D68D5551265E4F9AB20@phx.gbl<mailto:BLU140-DS6B6F712D68D5551265E4F9AB20@phx.gbl>> MIME-Version: 1.0 Content-Type: multipart/alternative; boundary="----=_NextPart_000_0364_01C992AB.8F7E45D0"
------=_NextPart_000_0364_01C992AB.8F7E45D0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable
Well, I hope you can get someone to help you. I know how frustrating it is. I went everywhere until finally someone suspected adhesions and I = had surgery and I was full of them. Drs. don't listen and it is so irritating. My daughter is applying to med school this summer. She has seen what I have gone through and she said she is going to listen to her patients = and try to help them as much as possible. By the way, it was a PA that told me that I probably had adhesions. When I was searching, I would = give Drs. my records of surgeries, and there were adhesions taken down = on all of them but I didn't know much about them but the Drs. should = have if they would have read my reports. Duh! The only advice I can give is to keep searching for someone to listen = and care. Kelly
> ----- Original Message ----- From: jetstamp<mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com>> To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net>>
Sent: Thursday, February 19, 2009 3:51 PM Subject: Re: Hype!!
At Thu, 19 Feb 2009, Kelly Murray wrote: > >Have you tried a Internal Medicine Doctor? >
> >> ----- Original Message ----- > From: jetstamp<mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com><mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com>>> > To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net><mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net> >> > Sent: Thursday, February 19, 2009 3:20 PM > Subject: Hype!! > > I just had my follow-up visit for a new gynecologist. Unfortunately, I > am right at this moment kicking myself for once again falling for = the > hype. > > This doctor was listed as a member of the International Pelvic Pain > Society. On the clinic's webpage, it said that his special interests > were pelvic pain, endometriosis, and menopause. He also was listed as a > top women's doctor for the year 2007 in a Minnesota publication. > > At my first visit 3 weeks ago, he did seem to listen at length but > pretty much dismissed any ideas I had about my condition, which = began in > 1984 after an on-the-job injury which affected my lower right quadrant > and pelvis (the injury was never diagnosed- I still wonder about = some > type of hernia or prolapse). > > I also gave him a 6-page timeline beginning in 1984. Since I've = had > this for so long, it is just too difficult to remember everything = so I > have it on my computer and I update/edit it as needed. This helps save > me from struggling to remember stuff when preparing for an appointment > with a new doctor- of which I've had many because I have never in = my > 25-year history with this found anyone who took what I said at face > value and at least would do what they COULD to help me cope if = nothing > else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA > papers to protect my job during flare-ups or frequent appointments. I > also gave him a copy of a CT scan and an MRI from 5 years ago- the > interpreting physician had no problem suggesting possible adhesions. > Also 2 physical therapists thought I had adhesions, probably from = the > injury itself as well as subsequent surgeries. I have not been > 'officially' diagnosed with adhesions- just have been given the = lame, > vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction. > > Anyway, today, I experienced the all-too-familiar 'rushed' appointment. > All he did was explain my current hormonal situtation- the beginning of > menopause, etc. which was fine. But not one word about pelvic = pain or > anything relating to my most troublesome issues. I could tell he = just > wanted to be done with me. > > I have fallen for this 'hype-type' of thing before. I had the same kind > of experience with a urogynecologist at Mayo whose articles I had = read > on PubMed. In those articles he came across as having sincere = sympathy > and interest in pelvic pain and dysfunctions women often endured. He > barely gave me the time of day- we barely spoke. > > I get so mad at myself for buying into this kind of advertising- = 'false' > advertising. I'm wondering if I should bother to state my opinion on > RateMDs.com- I sure would like to. He has only 7 reviews, all of = which > were positive alhtough 7 is not very many reviews. I have to be = careful > though because somewhere in the fine print it says something to the > effect that you are held responsible for what you say so don't know how > honest I'm allowed to be. > > Wish I could be like a woman who posted on the ibsgroup.org website. She > has such a low regard for doctors that she said she had not been to one > in 27 years- that was when she had her last baby. > > To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org><mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org><mailto:adhesions@a dhesions.org%3Cmailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org>>> mailing list please go > to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm><http://www.adhesions.org/for=<http://www.adhesions.org/for=> ums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm%3Chttp://ww=<http://www.adhesions.org/forums/listcmds.htm%3Chttp://ww=> w.adhesions.org/forums/listcmds.htm>> >ms/message.htm>
Kelly,
My recent primary doctor- who I've decided to fire- is under Internal Medicine. However, she is unfortunately one of those who buys into = the convenient made-up catch-all terms like IBS and absolutely will not consider adhesions.
At my final appointment with her last year, she told me to stop taking the supplements that I've been taking in an attempt to loosen things = up- like Serrapeptase. When I asked her why, all she would say was "Doctors know these things". Then I said, "Then what should I do about adhesions?" She shook her head, then turned her little stool around so her back was toward me. That was the end of the appointment.
I find it very interesting that the physical therapists and chiropractors can feel the tightness in my abdomen- they don't seem to need a laparoscopy to suspect adhesions. The doctors that bother to examine my abdomen don't seem to be able to do the same. This gynecologist didn't even bother- even after reading my 25-year hostory.
I am considering trying an accupuncture guy who at least is not far = from where I live and see if he has any knowledge of adhesions. He used to be a chemist and I think he's into Traditional Chinese Medicine. Will have to check with my insurance first though as I suspect it could get expensive- not just the accupuncture itself but I imagine he might = have patients buy supplements which would be totally out-of-pocket.
-- I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you = tried to contact them they weren't available. Also, the exact location = of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw = other products which looked like they came from the same place but a = totally different company.
I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it = wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed = effective. I also just started taking Resveratrol which the TV show 60 = minutes did a story on this week- they made it sound like a miracle = supplement but don't know if it would do anything for adhesions.
My main pain and tightness started in the lower right quadrant after = an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have = had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy = (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can = seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions.
To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org><mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org>> mailing list please go to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm><http://www.adhesions.org/for=<http://www.adhesions.org/for=> ums/listcmds.htm> http://www.adhesions.org/forums/message.htm<http://www.adhesions.org/forums/message.htm><http://www.adhesions.org/foru=<http://www.adhesions.org/foru=> ms/message.htm>
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<META content="MSHTML 6.00.6000.16809" name=GENERATOR></HEAD> <BODY id=MailContainerBody style="PADDING-LEFT: 10px; FONT-WEIGHT: normal; FONT-SIZE: 10pt; = COLOR: #000000; BORDER-TOP-STYLE: none; PADDING-TOP: 15px; FONT-STYLE: = normal; FONT-FAMILY: Verdana; BORDER-RIGHT-STYLE: none; BORDER-LEFT-STYLE: none; TEXT-DECORATION: none; BORDER-BOTTOM-STYLE: = none" leftMargin=0 topMargin=0 acc_role="text" CanvasTabStop="true" name="Compose message area"><!--[gte IE 5]><?xml:namespace prefix="v" /><?xml:namespace prefix="o" /><![endif]--> <DIV> <DIV>Well, I hope you can get someone to help you. I know how = frustrating it is. I went everywhere until finally someone suspected adhesions and I had surgery and I was full of them. </DIV> <DIV>Drs. don't listen and it is so irritating.</DIV> <DIV>My daughter is applying to med school this summer. She has = seen what I have gone through and she said she is going to listen to her patients and try to help them as much as possible. By the way, it was a PA that = told me that I probably had adhesions. When I was searching, I would give Drs. my records of surgeries, and there were adhesions taken down on all of them but I didn't know much about them but the Drs. should have if they would have read my reports. Duh!</DIV> <DIV>The only advice I can give is to keep searching for someone to = listen and care.</DIV> <DIV>Kelly</DIV> <BLOCKQUOTE style="PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; = BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT: 0px">
> <DIV style="FONT: 10pt arial">----- Original Message ----- </DIV> <DIV style="FONT: 10pt arial"><B>From:</B> <A title=mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com> href="mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com>">jetstamp</A> </DIV> <DIV style="FONT: 10pt arial"><B>To:</B> <A title=mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net> href="mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net>">Multiple recipients of list
ADHESIONS</A> </DIV> <DIV style="FONT: 10pt arial"><B>Sent:</B> Thursday, February 19, 2009 3:51 PM</DIV> <DIV style="FONT: 10pt arial"><B>Subject:</B> Re: Hype!!</DIV> <DIV><BR></DIV>At Thu, 19 Feb 2009, Kelly Murray wrote:<BR>><BR>>Have you tried a Internal Medicine Doctor?<BR>><BR>>> ----- Original Message -----<BR>> From: jetstamp<<A title=mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com> href="mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com>">mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com></A>><BR>& gt; To: Multiple recipients of list ADHESIONS<<A title=mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net> href="mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net>">mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net>< /A>><BR>> Sent: Thursday, February 19, 2009 3:20 PM<BR>> Subject: Hype!!<BR>><BR>> I just had my follow-up visit for a new gynecologist. Unfortunately, I<BR>> am right at this = moment kicking myself for once again falling for the<BR>> hype.<BR>><BR>> This doctor was listed as a member of the International Pelvic Pain<BR>> Society. On the clinic's webpage, it said that his special interests<BR>> were pelvic pain, endometriosis, and menopause. He also was listed as a<BR>> top women's doctor for the year 2007 in a Minnesota publication.<BR>><BR>> At my first visit 3 weeks ago, he = did seem to listen at length but<BR>> pretty much dismissed any ideas I had about my condition, which began in<BR>> 1984 after an on-the-job injury which affected my lower right quadrant<BR>> and pelvis (the injury was never diagnosed- I still wonder about some<BR>> = type of hernia or prolapse).<BR>><BR>> I also gave him a 6-page = timeline beginning in 1984. Since I've had<BR>> this for so = long, it is just too difficult to remember everything so I<BR>> have it = on my computer and I update/edit it as needed. This helps save<BR>> me from struggling to remember stuff when preparing for an appointment<BR>> with a new doctor- of which I've had many = because I have never in my<BR>> 25-year history with this found anyone who took what I said at face<BR>> value and at least would do what = they COULD to help me cope if nothing<BR>> else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA<BR>> papers to protect my job during flare-ups or frequent appointments. I<BR>> also gave him a copy of a CT scan and an MRI from 5 years ago- the<BR>> interpreting physician had no problem suggesting possible adhesions.<BR>> Also 2 physical therapists thought I had = adhesions, probably from the<BR>> injury itself as well as subsequent surgeries. I have not been<BR>> 'officially' diagnosed with adhesions- just have been given the lame,<BR>> vague names = for some of my symptoms- IBS and Pelvic Floor Dysfunction.<BR>><BR>> Anyway, today, I experienced the all-too-familiar 'rushed' appointment.<BR>> All he did was explain my current hormonal situtation- the beginning of<BR>> menopause, etc. which was fine. But not one word about pelvic pain or<BR>> anything relating to my most troublesome issues. I could tell he just<BR>> wanted to be done with me.<BR>><BR>> I have fallen for this 'hype-type' of thing before. I had the same kind<BR>> of experience with a urogynecologist at Mayo whose articles I had read<BR>> on PubMed. In those articles he came = across as having sincere sympathy<BR>> and interest in pelvic pain and dysfunctions women often endured. He<BR>> barely gave = me the time of day- we barely spoke.<BR>><BR>> I get so mad at = myself for buying into this kind of advertising- 'false'<BR>> advertising. I'm wondering if I should bother to state my opinion on<BR>> RateMDs.com- I sure would like to. He has only 7 reviews, all of which<BR>> were positive alhtough 7 is not very many reviews. I have to be careful<BR>> though because somewhere in the fine print it says something to the<BR>> effect that you are held responsible for what you say so don't know how<BR>> honest I'm allowed to be.<BR>><BR>> Wish I could be like a woman who posted on = the ibsgroup.org website. She<BR>> has such a low regard = for doctors that she said she had not been to one<BR>> in 27 = years- that was when she had her last baby.<BR>><BR>> To remove yourself from the <A title=mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org>%3Cmailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org> href="mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org><mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org>">ad hesions@adhesions.org<mailto:hesions@adhesions.org><mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org></A>> mailing list please go<BR>> to the unsubscribe form at <A title=http://www.adhesions.org/forums/listcmds.htm%3Chttp://www.adhesio=<http://www.adhesions.org/forums/listcmds.htm%3Chttp://www.adhesio== >
ns.org/forums/listcmds.htm href="http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm><http://www.adhesions=<http://www.adhesions== /> .org/forums/listcmds.htm">http://www.adhesions.org/forums/listcmds.htm<== <http://www.adhesions.org/forums/listcmds.htm%3C=> ;http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm></A>><BR>>ms/message.h tm><BR><BR>Kelly,<BR><BR>My recent primary doctor- who I've decided to fire- is under Internal<BR>Medicine. However, she is unfortunately one of those who buys into the<BR>convenient made-up catch-all terms like IBS and absolutely will not<BR>consider adhesions.<BR><BR>At my final appointment with = her last year, she told me to stop taking<BR>the supplements that I've been = taking in an attempt to loosen things up-<BR>like Serrapeptase. When I = asked her why, all she would say was "Doctors<BR>know these things". Then I said, "Then what should I do about<BR>adhesions?" She shook her head, then = turned her little stool around so<BR>her back was toward me. That was = the end of the appointment.<BR><BR>I find it very interesting that the physical therapists and<BR>chiropractors can feel the tightness in my abdomen- they don't seem to<BR>need a laparoscopy to suspect adhesions. The = doctors that bother to<BR>examine my abdomen don't seem to be able to do the same. This<BR>gynecologist didn't even bother- even after reading my 25-year hostory.<BR><BR>I am considering trying an accupuncture guy = who at least is not far from<BR>where I live and see if he has any knowledge of adhesions. He used to<BR>be a chemist and I think he's into = Traditional Chinese Medicine. Will<BR>have to check with my insurance first though as I suspect it could get<BR>expensive- not just the accupuncture = itself but I imagine he might have<BR>patients buy supplements which would be totally out-of-pocket.<BR><BR>--<BR>I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company.<BR><BR>I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis = but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions.<BR><BR>My main pain and tightness started in the lower right quadrant after an on-the-job = injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the = on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation = could create adhesions.<BR><BR>To remove yourself from the <A title=mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org>== 20 href="mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org>">adhesions@adhesions.org<mailto:adhesions@adhesions.org></A> mailing list please go<BR> to the unsubscribe form at <A title=http://www.adhesions.org/forums/listcmds.htm <http://www.adhesions.org/forums/listcmds.htm > href="http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm>">http://www.adhesion=<http://www.adhesion== /> s.org/forums/listcmds.htm</A><BR>p.s. for the web forum version see <A title=http://www.adhesions.org/forums/message.htm <http://www.adhesions.org/forums/message.htm > href="http://www.adhesions.org/forums/message.htm<http://www.adhesions.org/forums/message.htm>">http://www.adhesions=<http://www.adhesions== /> .org/forums/message.htm</A><BR></BLOCKQUOTE></DIV></BODY></HTML>
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To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list please go to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm> ms/message.htm>
------------------------------
Date: Thu, 19 Feb 2009 17:15:40 -0600 (CST) ------------------------------ From: jetstamp@yahoo.com<mailto:jetstamp@yahoo.com> (jetstamp) ------------------------------ To: adhesions@obgyn.net<mailto:adhesions@obgyn.net> Subject: Re: Hype!! Message-ID:<200902192315.n1JNFfT31334@mail.obgyn.net<mailto:200902192315.n1JNFfT31334@mail.obgyn.net>>
At Thu, 19 Feb 2009, jetstamp wrote: > >At Thu, 19 Feb 2009, Kelly Murray wrote: >> >>Have you tried a Internal Medicine Doctor? >>
> >>>> ----- Original Message ----- >> From: jetstamp<mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com>> >> To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net>> >> Sent: Thursday, February 19, 2009 3:20 PM >> Subject: Hype!! >> >> I just had my follow-up visit for a new gynecologist. Unfortunately, I >> am right at this moment kicking myself for once again falling for the >> hype. >> >> This doctor was listed as a member of the International Pelvic Pain >> Society. On the clinic's webpage, it said that his special interests >> were pelvic pain, endometriosis, and menopause. He also was listed as a >> top women's doctor for the year 2007 in a Minnesota publication. >> >> At my first visit 3 weeks ago, he did seem to listen at length but >> pretty much dismissed any ideas I had about my condition, which began in >> 1984 after an on-the-job injury which affected my lower right quadrant >> and pelvis (the injury was never diagnosed- I still wonder about some >> type of hernia or prolapse). >> >> I also gave him a 6-page timeline beginning in 1984. Since I've had >> this for so long, it is just too difficult to remember everything so I >> have it on my computer and I update/edit it as needed. This helps save >> me from struggling to remember stuff when preparing for an appointment >> with a new doctor- of which I've had many because I have never in my >> 25-year history with this found anyone who took what I said at face >> value and at least would do what they COULD to help me cope if nothing >> else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA >> papers to protect my job during flare-ups or frequent appointments. I >> also gave him a copy of a CT scan and an MRI from 5 years ago- the >> interpreting physician had no problem suggesting possible adhesions. >> Also 2 physical therapists thought I had adhesions, probably from the >> injury itself as well as subsequent surgeries. I have not been >> 'officially' diagnosed with adhesions- just have been given the lame, >> vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction. >> >> Anyway, today, I experienced the all-too-familiar 'rushed' appointment. >> All he did was explain my current hormonal situtation- the beginning of >> menopause, etc. which was fine. But not one word about pelvic pain or >> anything relating to my most troublesome issues. I could tell he just >> wanted to be done with me. >> >> I have fallen for this 'hype-type' of thing before. I had the same kind >> of experience with a urogynecologist at Mayo whose articles I had read >> on PubMed. In those articles he came across as having sincere sympathy >> and interest in pelvic pain and dysfunctions women often endured. He >> barely gave me the time of day- we barely spoke. >> >> I get so mad at myself for buying into this kind of advertising- 'false' >> advertising. I'm wondering if I should bother to state my opinion on >> RateMDs.com- I sure would like to. He has only 7 reviews, all of which >> were positive alhtough 7 is not very many reviews. I have to be careful >> though because somewhere in the fine print it says something to the >> effect that you are held responsible for what you say so don't know how >> honest I'm allowed to be. >> >> Wish I could be like a woman who posted on the ibsgroup.org website. She >> has such a low regard for doctors that she said she had not been to one >> in 27 years- that was when she had her last baby. >> >Kelly, > >My recent primary doctor- who I've decided to fire- is under Internal >Medicine. However, she is unfortunately one of those who buys into the >convenient made-up catch-all terms like IBS and absolutely will not >consider adhesions. > >At my final appointment with her last year, she told me to stop taking >the supplements that I've been taking in an attempt to loosen things up- >like Serrapeptase. When I asked her why, all she would say was "Doctors >know these things". Then I said, "Then what should I do about >adhesions?" She shook her head, then turned her little stool around so >her back was toward me. That was the end of the appointment. > >I find it very interesting that the physical therapists and >chiropractors can feel the tightness in my abdomen- they don't seem to >need a laparoscopy to suspect adhesions. The doctors that bother to >examine my abdomen don't seem to be able to do the same. This >gynecologist didn't even bother- even after reading my 25-year hostory. > >I am considering trying an accupuncture guy who at least is not far from >where I live and see if he has any knowledge of adhesions. He used to >be a chemist and I think he's into Traditional Chinese Medicine. Will >have to check with my insurance first though as I suspect it could get >expensive- not just the accupuncture itself but I imagine he might have >patients buy supplements which would be totally out-of-pocket. > >-- >I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company. > >I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions. > >My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions. >
To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list please go to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm> ms/message.htm>
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End of ADHESIONS Digest 923 ------------------------------ *************************** ------------------------------
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------=_NextPart_000_003D_01C9953C.5C8DE7F0--I live in New Mexico and have been to MN to Mayo and also the University of MN. No help at either of these places. It has been several years.Hey, by the way, I have a uncle named Ron Peterson that lives in Minneapolis. (Prior Lake) He isn't a Dr. though.Kelly>----- Original Message -----From: Kristine LovaasSent: Sunday, February 22, 2009 6:46 PMSubject: Re: ADHESIONS digest 923Was his name Dr. Ron Peterson? I live in MN, had him as an OB/GYN. He did surgery on me 5 years ago for a right side ovarian cyst. It ruptured before the surgery was scheduled, and we had to move the date up. i never had any pelvic pain until after that surgery, in spite of having an appendectomy in 1973, 2 C-sections in 1977 and 1978, and ectopic pregnancy in 1986 and a partial hysterectomy in 1991. i started having the awful pain and nausea that all of us go through about 2 1/2 years ago. I had a colonoscopy 2 years ago that took the doctor an hour and half to complete because of adhesions. i'd never even heard of the the condition prior to that. i'll make the long medical saga short. After so many tests to rule out everything else, i'm having surgery on Tuesday, March 3rd in Minneapolis to have adhesions removed. I've researched the surgeon and had conversations with several doctors who allspeak to his success. I'm really hoping for good results. I've read so much on this site and haven't responded before. Take care, everyone. i wish you all pain tolerant days! Kris
From: Adhesions Society <adhesions@adhesions.org>
To: Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>
Sent: Thursday, February 19, 2009 5:16:35 PM
Subject: ADHESIONS digest 923
ADHESIONS Digest 923
Topics covered in this issue include:
1) Hype!!
by jetstamp@yahoo.com (jetstamp)
2) Re: Hype!!
by "Kelly Murray" <klmurray_61@msn.com>
3) Re: Hype!!
by jetstamp@yahoo.com (jetstamp)
4) Re: Hype!!
by "Kelly Murray" <klmurray_61@msn.com>
5) Re: Hype!!
by jetstamp@yahoo.com (jetstamp)
------------------------------------------------------- Thu, 19 Feb 2009 16:18:43 -0600 (CST)
From:
------------------------------------------------------- title=3Dmailto:jetstamp@yahoo.com href=3D"mailto:jetstamp@yahoo.com"=20 (jetstamp)
------------------------------------------------------- ymailto="mailto:jetstamp@yahoo.com">jetstamp@yahoo.com (jetstamp)
To: adhesions@adhesions.org
Subject: Hype!!
Message-ID: <200902192218.n1JMIhY26075@mail.obgyn.net>
I just had my follow-up visit for a new gynecologist. Unfortunately, I
am right at this moment kicking myself for once again falling for the
hype.
This doctor was listed as a member of the International Pelvic Pain
Society. On the clinic's webpage, it said that his special interests
were pelvic pain, endometriosis, and menopause. He also was listed as a
top women's doctor for the year 2007 in a Minnesota publication.
At my first visit 3 weeks ago, he did seem to listen at length but
pretty much dismissed any ideas I had about my condition, which began in
1984 after an on-the-job injury which affected my lower right quadrant
and pelvis (the injury was never diagnosed- I still wonder about some
type of hernia or prolapse).
I also gave him a 6-page timeline beginning in 1984. Since I've had
this for so long, it is just too difficult to remember everything so I
have it on my computer and I update/edit it as needed. This helps save
me from struggling to remember stuff when preparing for an appointment
with a new doctor- of which I've had many because I have never in my
25-year history with this found anyone who took what I said at face
value and at least would do what they COULD to help me cope if nothing
else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA
papers to protect my job during flare-ups or frequent appointments. I
also gave him a copy of a CT scan and an MRI from 5 years ago- the
interpreting physician had no problem suggesting possible adhesions.
Also 2 physical therapists thought I had adhesions, probably from the
injury itself as well as subsequent surgeries. I have not been
'officially' diagnosed with adhesions- just have been given the lame,
vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
Anyway, today, I experienced the all-too-familiar 'rushed' appointment.
All he did was explain my current hormonal situtation- the beginning of
menopause, etc. which was fine. But not one word about pelvic pain or
anything relating to my most troublesome issues. I could tell he just
wanted to be done with me.
I have fallen for this 'hype-type' of thing before. I had the same kind
of experience with a urogynecologist at Mayo whose articles I had read
on PubMed. In those articles he came across as having sincere sympathy
and interest in pelvic pain and dysfunctions women often endured. He
barely gave me the time of day- we barely spoke.
I get so mad at myself for buying into this kind of advertising- 'false'
advertising. I'm wondering if I should bother to state my opinion on
RateMDs.com- I sure would like to. He has only 7 reviews, all of which
were positive alhtough 7 is not very many reviews. I have to be careful
though because somewhere in the fine print it says something to the
effect that you are held responsible for what you say so don't know how
honest I'm allowed to be.
Wish I could be like a woman who posted on the ibsgroup.org website. She
has such a low regard for doctors that she said she had not been to one
in 27 years- that was when she had her last baby.
To remove yourself from the adhesions@adhesions.org mailing list please go
to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm
p.s. for the web forum version see http://www.adhesions.org/forums/message.htm
------------------------------
Date: Thu, 19 Feb 2009 15:32:42 -0700
From: "Kelly Murray" <
Date: title=3Dmailto:klmurray_61@msn.com href=3D"mailto:klmurray_61@msn.com" = ----------------------------
Date: ymailto="mailto:klmurray_61@msn.com">klmurray_61@msn.com>
To: <adhesions@adhesions.org>
Subject: Re: Hype!!
Message-ID: <BLU140-DS1730D857209BADCC23AC49AB20@phx.gbl>
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Have you tried a Internal Medicine Doctor? >
----- Original Message -----
From: jetstamp<mailto:jetstamp@yahoo.com>
To: Multiple recipients of list =
ADHESIONS<mailto:adhesions@mail.obgyn.net>
Sent: Thursday, February 19, 2009 3:20 PM
Subject: Hype!!
I just had my follow-up visit for a new gynecologist. Unfortunately, =
I
am right at this moment kicking myself for once again falling for the
hype.
This doctor was listed as a member of the International Pelvic Pain
Society. On the clinic's webpage, it said that his special interests
were pelvic pain, endometriosis, and menopause. He also was listed as =
a
top women's doctor for the year 2007 in a Minnesota publication.
At my first visit 3 weeks ago, he did seem to listen at length but
pretty much dismissed any ideas I had about my condition, which began =
in
1984 after an on-the-job injury which affected my lower right quadrant
and pelvis (the injury was never diagnosed- I still wonder about some
type of hernia or prolapse).
I also gave him a 6-page timeline beginning in 1984. Since I've had
this for so long, it is just too difficult to remember everything so I
have it on my computer and I update/edit it as needed. This helps =
save
me from struggling to remember stuff when preparing for an appointment
with a new doctor- of which I've had many because I have never in my
25-year history with this found anyone who took what I said at face
value and at least would do what they COULD to help me cope if nothing
else, like pain meds [besides the dreaded anti-depressants-ick!] or =
FMLA
papers to protect my job during flare-ups or frequent appointments. I
also gave him a copy of a CT scan and an MRI from 5 years ago- the
interpreting physician had no problem suggesting possible adhesions.
Also 2 physical therapists thought I had adhesions, probably from the
injury itself as well as subsequent surgeries. I have not been
'officially' diagnosed with adhesions- just have been given the lame,
vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
Anyway, today, I experienced the all-too-familiar 'rushed' =
appointment.
All he did was explain my current hormonal situtation- the beginning =
of
menopause, etc. which was fine. But not one word about pelvic pain =
or
anything relating to my most troublesome issues. I could tell he just
wanted to be done with me.
I have fallen for this 'hype-type' of thing before. I had the same =
kind
of experience with a urogynecologist at Mayo whose articles I had read
on PubMed. In those articles he came across as having sincere =
sympathy
and interest in pelvic pain and dysfunctions women often endured. He
barely gave me the time of day- we barely spoke.
I get so mad at myself for buying into this kind of advertising- =
'false'
advertising. I'm wondering if I should bother to state my opinion on
RateMDs.com- I sure would like to. He has only 7 reviews, all of =
which
were positive alhtough 7 is not very many reviews. I have to be =
careful
though because somewhere in the fine print it says something to the
effect that you are held responsible for what you say so don't know =
how
honest I'm allowed to be.
Wish I could be like a woman who posted on the ibsgroup.org website. =
She
has such a low regard for doctors that she said she had not been to =
one
in 27 years- that was when she had her last baby.
To remove yourself from the =
adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list =
please go
to the unsubscribe form at =
http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/for=
ums/listcmds.htm>
href="http://www.adhesions.org/forums/message.htm" target=_blank>http://www.adhesions.org/forums/message.htm<http://www.adhesions.org/foru=
ms/message.htm>
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<DIV>
<DIV>Have you tried a Internal Medicine Doctor? </DIV>
<BLOCKQUOTE
style="PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; =
BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT: 0px">
<DIV style="FONT: 10pt arial">----- Original Message ----- </DIV>
<DIV style="FONT: 10pt arial"><B>From:</B> <A =
title=mailto:jetstamp@yahoo.com
href="mailto:jetstamp@yahoo.com">jetstamp</A> </DIV>
<DIV style="FONT: 10pt arial"><B>To:</B> <A
title=mailto:adhesions@mail.obgyn.net== 20
href="mailto:adhesions@mail.obgyn.net">Multiple recipients of list
ADHESIONS</A> </DIV>
<DIV style="FONT: 10pt arial"><B>Sent:</B> Thursday, February 19, =
2009 3:20
PM</DIV>
<DIV style="FONT: 10pt arial"><B>Subject:</B> Hype!!</DIV>
<DIV><BR></DIV>I just had my follow-up visit for a new =
gynecologist.
Unfortunately, I<BR>am right at this moment kicking myself for once =
again
falling for the<BR>hype.<BR><BR>This doctor was listed as a member of =
the
International Pelvic Pain<BR>Society. On the clinic's webpage, =
it said
that his special interests<BR>were pelvic pain, endometriosis, and
menopause. He also was listed as a<BR>top women's doctor for the =
year
2007 in a Minnesota publication.<BR><BR>At my first visit 3 weeks ago, =
he did
seem to listen at length but<BR>pretty much dismissed any ideas I had =
about my
condition, which began in<BR>1984 after an on-the-job injury which =
affected my
lower right quadrant<BR>and pelvis (the injury was never diagnosed- I =
still
wonder about some<BR>type of hernia or prolapse).<BR><BR>I also gave =
him a
6-page timeline beginning in 1984. Since I've had<BR>this for so =
long,
it is just too difficult to remember everything so I<BR>have it on my =
computer
and I update/edit it as needed. This helps save<BR>me from =
struggling to
remember stuff when preparing for an appointment<BR>with a new doctor- =
of
which I've had many because I have never in my<BR>25-year history with =
this
found anyone who took what I said at face<BR>value and at least would =
do what
they COULD to help me cope if nothing<BR>else, like pain meds [besides =
the
dreaded anti-depressants-ick!] or FMLA<BR>papers to protect my job =
during
flare-ups or frequent appointments. I<BR>also gave him a copy of =
a CT
scan and an MRI from 5 years ago- the<BR>interpreting physician had no =
problem
suggesting possible adhesions.<BR>Also 2 physical therapists thought I =
had
adhesions, probably from the<BR>injury itself as well as subsequent
surgeries. I have not been<BR>'officially' diagnosed with =
adhesions-
just have been given the lame,<BR>vague names for some of my symptoms- =
IBS and
Pelvic Floor Dysfunction.<BR><BR>Anyway, today, I experienced the
all-too-familiar 'rushed' appointment.<BR>All he did was explain my =
current
hormonal situtation- the beginning of<BR>menopause, etc. which =
was
fine. But not one word about pelvic pain or<BR>anything relating =
to my
most troublesome issues. I could tell he just<BR>wanted to be =
done with
me.<BR><BR>I have fallen for this 'hype-type' of thing before. I =
had the
same kind<BR>of experience with a urogynecologist at Mayo whose =
articles I had
read<BR>on PubMed. In those articles he came across as having =
sincere
sympathy<BR>and interest in pelvic pain and dysfunctions women often
endured. He<BR>barely gave me the time of day- we barely =
spoke.<BR><BR>I
get so mad at myself for buying into this kind of advertising-
'false'<BR>advertising. I'm wondering if I should bother to =
state my
opinion on<BR>RateMDs.com- I sure would like to. He has only 7 =
reviews,
all of which<BR>were positive alhtough 7 is not very many =
reviews. I
have to be careful<BR>though because somewhere in the fine print it =
says
something to the<BR>effect that you are held responsible for what you =
say so
don't know how<BR>honest I'm allowed to be.<BR><BR>Wish I could be =
like a
woman who posted on the ibsgroup.org website. She<BR>has such a =
low
regard for doctors that she said she had not been to one<BR>in 27 =
years- that
was when she had her last baby.<BR><BR><BR>To remove yourself from the =
<A
title=mailto:adhesions@adhesions.org== 20
href="mailto:adhesions@adhesions.org">adhesions@adhesions.org</A> =
mailing list
please go<BR> to the unsubscribe form at <A
title=http://www.adhesions.org/forums/listcmds.htm
=
href="http://www.adhesions.org/forums/listcmds.htm">http://www.adhesion=
s.org/forums/listcmds.htm</A><BR>p.s.
for the web forum version see <A
title=http://www.adhesions.org/forums/message.htm
=
href="http://www.adhesions.org/forums/message.htm">http://www.adhesions=
.org/forums/message.htm</A><BR></BLOCKQUOTE></DIV></BODY></HTML>
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To remove yourself from the adhesions@adhesions.org mailing list please go
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p.s. for the web forum version see http://www.adhesions.org/forums/message.htm
------------------------------
Date: Thu, 19 Feb 2009 16:50:49 -0600 (CST)
From:
Date: title=3Dmailto:jetstamp@yahoo.com href=3D"mailto:jetstamp@yahoo.com"=20 ----------------------------
Date: ymailto="mailto:jetstamp@yahoo.com">jetstamp@yahoo.com (jetstamp)
To: adhesions@obgyn.net
Subject: Re: Hype!!
Message-ID: <200902192250.n1JMonD11117@mail.obgyn.net>
At Thu, 19 Feb 2009, Kelly Murray wrote:
>
>Have you tried a Internal Medicine Doctor?
>
>> ----- Original Message -----
> From: jetstamp<mailto:jetstamp@yahoo.com>
> To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net>
> Sent: Thursday, February 19, 2009 3:20 PM
> Subject: Hype!!
>
> I just had my follow-up visit for a new gynecologist. Unfortunately, I
> am right at this moment kicking myself for once again falling for the
> hype.
>
> This doctor was listed as a member of the International Pelvic Pain
> Society. On the clinic's webpage, it said that his special interests
> were pelvic pain, endometriosis, and menopause. He also was listed as a
> top women's doctor for the year 2007 in a Minnesota publication.
>
> At my first visit 3 weeks ago, he did seem to listen at length but
> pretty much dismissed any ideas I had about my condition, which began in
> 1984 after an on-the-job injury which affected my lower right quadrant
> and pelvis (the injury was never diagnosed- I still wonder about some
> type of hernia or prolapse).
>
> I also gave him a 6-page timeline beginning in 1984. Since I've had
> this for so long, it is just too difficult to remember everything so I
> have it on my computer and I update/edit it as needed. This helps save
> me from struggling to remember stuff when preparing for an appointment
> with a new doctor- of which I've had many because I have never in my
> 25-year history with this found anyone who took what I said at face
> value and at least would do what they COULD to help me cope if nothing
> else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA
> papers to protect my job during flare-ups or frequent appointments. I
> also gave him a copy of a CT scan and an MRI from 5 years ago- the
> interpreting physician had no problem suggesting possible adhesions.
> Also 2 physical therapists thought I had adhesions, probably from the
> injury itself as well as subsequent surgeries. I have not been
> 'officially' diagnosed with adhesions- just have been given the lame,
> vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
>
> Anyway, today, I experienced the all-too-familiar 'rushed' appointment.
> All he did was explain my current hormonal situtation- the beginning of
> menopause, etc. which was fine. But not one word about pelvic pain or
> anything relating to my most troublesome issues. I could tell he just
> wanted to be done with me.
>
> I have fallen for this 'hype-type' of thing before. I had the same kind
> of experience with a urogynecologist at Mayo whose articles I had read
> on PubMed. In those articles he came across as having sincere sympathy
> and interest in pelvic pain and dysfunctions women often endured. He
> barely gave me the time of day- we barely spoke.
>
> I get so mad at myself for buying into this kind of advertising- 'false'
> advertising. I'm wondering if I should bother to state my opinion on
> RateMDs.com- I sure would like to. He has only 7 reviews, all of which
> were positive alhtough 7 is not very many reviews. I have to be careful
> though because somewhere in the fine print it says something to the
> effect that you are held responsible for what you say so don't know how
> honest I'm allowed to be.
>
> Wish I could be like a woman who posted on the ibsgroup.org website. She
> has such a low regard for doctors that she said she had not been to one
> in 27 years- that was when she had her last baby.
>
> To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list please go
> to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm>
>ms/message.htm>
Kelly,
My recent primary doctor- who I've decided to fire- is under Internal
Medicine. However, she is unfortunately one of those who buys into the
convenient made-up catch-all terms like IBS and absolutely will not
consider adhesions.
At my final appointment with her last year, she told me to stop taking
the supplements that I've been taking in an attempt to loosen things up-
like Serrapeptase. When I asked her why, all she would say was "Doctors
know these things". Then I said, "Then what should I do about
adhesions?" She shook her head, then turned her little stool around so
her back was toward me. That was the end of the appointment.
I find it very interesting that the physical therapists and
chiropractors can feel the tightness in my abdomen- they don't seem to
need a laparoscopy to suspect adhesions. The doctors that bother to
examine my abdomen don't seem to be able to do the same. This
gynecologist didn't even bother- even after reading my 25-year hostory.
I am considering trying an accupuncture guy who at least is not far from
where I live and see if he has any knowledge of adhesions. He used to
be a chemist and I think he's into Traditional Chinese Medicine. Will
have to check with my insurance first though as I suspect it could get
expensive- not just the accupuncture itself but I imagine he might have
patients buy supplements which would be totally out-of-pocket.
--
I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company.
I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions.
My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions.
To remove yourself from the adhesions@adhesions.org mailing list please go
to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm
p.s. for the web forum version see http://www.adhesions.org/forums/message.htm
------------------------------
Date: Thu, 19 Feb 2009 16:03:06 -0700
From: "Kelly Murray" <
Date: title=3Dmailto:klmurray_61@msn.com href=3D"mailto:klmurray_61@msn.com" = ----------------------------
Date: ymailto="mailto:klmurray_61@msn.com">klmurray_61@msn.com>
To: <adhesions@adhesions.org>
Subject: Re: Hype!!
Message-ID: <BLU140-DS6B6F712D68D5551265E4F9AB20@phx.gbl>
MIME-Version: 1.0
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Well, I hope you can get someone to help you. I know how frustrating it =
is. I went everywhere until finally someone suspected adhesions and I =
had surgery and I was full of them.
Drs. don't listen and it is so irritating.
My daughter is applying to med school this summer. She has seen what I =
have gone through and she said she is going to listen to her patients =
and try to help them as much as possible. By the way, it was a PA that =
told me that I probably had adhesions. When I was searching, I would =
give Drs. my records of surgeries, and there were adhesions taken down =
on all of them but I didn't know much about them but the Drs. should =
have if they would have read my reports. Duh!
The only advice I can give is to keep searching for someone to listen =
and care.
Kelly
----- Original Message -----
From: jetstamp<mailto:jetstamp@yahoo.com>
To: Multiple recipients of list =
ADHESIONS<mailto:adhesions@mail.obgyn.net>
Sent: Thursday, February 19, 2009 3:51 PM
Subject: Re: Hype!!
At Thu, 19 Feb 2009, Kelly Murray wrote:
>
>Have you tried a Internal Medicine Doctor?
> >
>> ----- Original Message -----
> From: =
jetstamp<mailto:jetstamp@yahoo.com<mailto:jetstamp@yahoo.com>>
> To: Multiple recipients of list =
ADHESIONS<mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net==
>>
> Sent: Thursday, February 19, 2009 3:20 PM
> Subject: Hype!!
>
> I just had my follow-up visit for a new gynecologist. =
Unfortunately, I
> am right at this moment kicking myself for once again falling for =
the
> hype.
>
> This doctor was listed as a member of the International Pelvic Pain
> Society. On the clinic's webpage, it said that his special =
interests
> were pelvic pain, endometriosis, and menopause. He also was listed =
as a
> top women's doctor for the year 2007 in a Minnesota publication.
>
> At my first visit 3 weeks ago, he did seem to listen at length but
> pretty much dismissed any ideas I had about my condition, which =
began in
> 1984 after an on-the-job injury which affected my lower right =
quadrant
> and pelvis (the injury was never diagnosed- I still wonder about =
some
> type of hernia or prolapse).
>
> I also gave him a 6-page timeline beginning in 1984. Since I've =
had
> this for so long, it is just too difficult to remember everything =
so I
> have it on my computer and I update/edit it as needed. This helps =
save
> me from struggling to remember stuff when preparing for an =
appointment
> with a new doctor- of which I've had many because I have never in =
my
> 25-year history with this found anyone who took what I said at face
> value and at least would do what they COULD to help me cope if =
nothing
> else, like pain meds [besides the dreaded anti-depressants-ick!] or =
FMLA
> papers to protect my job during flare-ups or frequent appointments. =
I
> also gave him a copy of a CT scan and an MRI from 5 years ago- the
> interpreting physician had no problem suggesting possible =
adhesions.
> Also 2 physical therapists thought I had adhesions, probably from =
the
> injury itself as well as subsequent surgeries. I have not been
> 'officially' diagnosed with adhesions- just have been given the =
lame,
> vague names for some of my symptoms- IBS and Pelvic Floor =
Dysfunction.
>
> Anyway, today, I experienced the all-too-familiar 'rushed' =
appointment.
> All he did was explain my current hormonal situtation- the =
beginning of
> menopause, etc. which was fine. But not one word about pelvic =
pain or
> anything relating to my most troublesome issues. I could tell he =
just
> wanted to be done with me.
>
> I have fallen for this 'hype-type' of thing before. I had the same =
kind
> of experience with a urogynecologist at Mayo whose articles I had =
read
> on PubMed. In those articles he came across as having sincere =
sympathy
> and interest in pelvic pain and dysfunctions women often endured. =
He
> barely gave me the time of day- we barely spoke.
>
> I get so mad at myself for buying into this kind of advertising- =
'false'
> advertising. I'm wondering if I should bother to state my opinion =
on
> RateMDs.com- I sure would like to. He has only 7 reviews, all of =
which
> were positive alhtough 7 is not very many reviews. I have to be =
careful
> though because somewhere in the fine print it says something to the
> effect that you are held responsible for what you say so don't know =
how
> honest I'm allowed to be.
>
> Wish I could be like a woman who posted on the ibsgroup.org =
website. She
> has such a low regard for doctors that she said she had not been to =
one
> in 27 years- that was when she had her last baby.
>
> To remove yourself from the =
adhesions@adhesions.org<mailto:adhesions@adhesions.org<mailto:adhesions@a=
dhesions.org%3Cmailto:adhesions@adhesions.org>> mailing list please go
> to the unsubscribe form at =
http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/for=
ums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm%3Chttp://ww==
w.adhesions.org/forums/listcmds.htm>>
>ms/message.htm>
Kelly,
My recent primary doctor- who I've decided to fire- is under Internal
Medicine. However, she is unfortunately one of those who buys into =
the
convenient made-up catch-all terms like IBS and absolutely will not
consider adhesions.
At my final appointment with her last year, she told me to stop taking
the supplements that I've been taking in an attempt to loosen things =
up-
like Serrapeptase. When I asked her why, all she would say was =
"Doctors
know these things". Then I said, "Then what should I do about
adhesions?" She shook her head, then turned her little stool around so
her back was toward me. That was the end of the appointment.
I find it very interesting that the physical therapists and
chiropractors can feel the tightness in my abdomen- they don't seem to
need a laparoscopy to suspect adhesions. The doctors that bother to
examine my abdomen don't seem to be able to do the same. This
gynecologist didn't even bother- even after reading my 25-year =
hostory.
I am considering trying an accupuncture guy who at least is not far =
from
where I live and see if he has any knowledge of adhesions. He used to
be a chemist and I think he's into Traditional Chinese Medicine. Will
have to check with my insurance first though as I suspect it could get
expensive- not just the accupuncture itself but I imagine he might =
have
patients buy supplements which would be totally out-of-pocket.
--
I also tried AbdoTab and decided it wasn't worth anything. I also read =
somewhere that they promised a money-back guarantee but that when you =
tried to contact them they weren't available. Also, the exact location =
of the company is pretty remote- if I remember it looked like the =
company was in one country but the product came from another. Also saw =
other products which looked like they came from the same place but a =
totally different company.
I currently take Neprinol (for about 6 months now) which is very =
expensive. Also lycopene which I read was good for adhesions but it =
wasn't clear as to whether it was just good for preventing adhesions or =
getting rid of current ones- the article had an endometriosis basis but =
I asssume all adhesions would respond the same if lycopene were indeed =
effective. I also just started taking Resveratrol which the TV show 60 =
minutes did a story on this week- they made it sound like a miracle =
supplement but don't know if it would do anything for adhesions.
My main pain and tightness started in the lower right quadrant after =
an on-the-job injury 25 years ago. I've been to two physical therapists =
who think I have adhesions. So far, no doctor will discuss it. I have =
had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy =
(1998) and right adrenal gland removed (2006). But as I said, I'm pretty =
sure my adhesions were from the on-the-job injury- which no doctor can =
seem to comprehend! Surgery and endo are 2 causes but not the only ones. =
Generally, anything that causes inflammation could create adhesions.
To remove yourself from the =
adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list =
please go
to the unsubscribe form at =
http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/for=
ums/listcmds.htm>
href="http://www.adhesions.org/forums/message.htm" target=_blank>http://www.adhesions.org/forums/message.htm<http://www.adhesions.org/foru=
ms/message.htm>
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<DIV>
<DIV>Well, I hope you can get someone to help you. I know how =
frustrating
it is. I went everywhere until finally someone suspected adhesions =
and I
had surgery and I was full of them. </DIV>
<DIV>Drs. don't listen and it is so irritating.</DIV>
<DIV>My daughter is applying to med school this summer. She has =
seen what
I have gone through and she said she is going to listen to her patients =
and try
to help them as much as possible. By the way, it was a PA that =
told me
that I probably had adhesions. When I was searching, I would give =
Drs. my
records of surgeries, and there were adhesions taken down on all of them =
but I
didn't know much about them but the Drs. should have if they would have =
read my
reports. Duh!</DIV>
<DIV>The only advice I can give is to keep searching for someone to =
listen and
care.</DIV>
<DIV>Kelly</DIV>
<BLOCKQUOTE
style="PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; =
BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT: 0px">
<DIV style="FONT: 10pt arial">----- Original Message ----- </DIV>
<DIV style="FONT: 10pt arial"><B>From:</B> <A =
title=mailto:jetstamp@yahoo.com
href="mailto:jetstamp@yahoo.com">jetstamp</A> </DIV>
<DIV style="FONT: 10pt arial"><B>To:</B> <A
title=mailto:adhesions@mail.obgyn.net== 20
href="mailto:adhesions@mail.obgyn.net">Multiple recipients of list
ADHESIONS</A> </DIV>
<DIV style="FONT: 10pt arial"><B>Sent:</B> Thursday, February 19, =
2009 3:51
PM</DIV>
<DIV style="FONT: 10pt arial"><B>Subject:</B> Re: Hype!!</DIV>
<DIV><BR></DIV>At Thu, 19 Feb 2009, Kelly Murray =
wrote:<BR>><BR>>Have
you tried a Internal Medicine Doctor?<BR>><BR>>> ----- =
Original
Message -----<BR>> From: jetstamp<<A
title=mailto:jetstamp@yahoo.com
=
href="mailto:jetstamp@yahoo.com">mailto:jetstamp@yahoo.com</A>><BR>&=
gt;
To: Multiple recipients of list ADHESIONS<<A
title=mailto:adhesions@mail.obgyn.net== 20
=
href="mailto:adhesions@mail.obgyn.net">mailto:adhesions@mail.obgyn.net<=
/A>><BR>>
Sent: Thursday, February 19, 2009 3:20 PM<BR>> Subject:
Hype!!<BR>><BR>> I just had my follow-up visit for a new
gynecologist. Unfortunately, I<BR>> am right at this =
moment
kicking myself for once again falling for the<BR>>
hype.<BR>><BR>> This doctor was listed as a member of the
International Pelvic Pain<BR>> Society. On the clinic's =
webpage, it said that his special interests<BR>> were pelvic =
pain,
endometriosis, and menopause. He also was listed as =
a<BR>> top
women's doctor for the year 2007 in a Minnesota
publication.<BR>><BR>> At my first visit 3 weeks ago, he =
did seem
to listen at length but<BR>> pretty much dismissed any ideas =
I had
about my condition, which began in<BR>> 1984 after an =
on-the-job
injury which affected my lower right quadrant<BR>> and pelvis =
(the
injury was never diagnosed- I still wonder about some<BR>> =
type of
hernia or prolapse).<BR>><BR>> I also gave him a 6-page =
timeline
beginning in 1984. Since I've had<BR>> this for so =
long, it is
just too difficult to remember everything so I<BR>> have it =
on my
computer and I update/edit it as needed. This helps =
save<BR>>
me from struggling to remember stuff when preparing for an
appointment<BR>> with a new doctor- of which I've had many =
because I
have never in my<BR>> 25-year history with this found anyone =
who took
what I said at face<BR>> value and at least would do what =
they COULD
to help me cope if nothing<BR>> else, like pain meds [besides =
the
dreaded anti-depressants-ick!] or FMLA<BR>> papers to protect =
my job
during flare-ups or frequent appointments. I<BR>> also =
gave him
a copy of a CT scan and an MRI from 5 years ago- the<BR>>
interpreting physician had no problem suggesting possible
adhesions.<BR>> Also 2 physical therapists thought I had =
adhesions,
probably from the<BR>> injury itself as well as subsequent
surgeries. I have not been<BR>> 'officially' diagnosed =
with
adhesions- just have been given the lame,<BR>> vague names =
for some
of my symptoms- IBS and Pelvic Floor =
Dysfunction.<BR>><BR>>
Anyway, today, I experienced the all-too-familiar 'rushed'
appointment.<BR>> All he did was explain my current hormonal
situtation- the beginning of<BR>> menopause, etc. which =
was
fine. But not one word about pelvic pain or<BR>> =
anything
relating to my most troublesome issues. I could tell he
just<BR>> wanted to be done with me.<BR>><BR>> I =
have
fallen for this 'hype-type' of thing before. I had the same
kind<BR>> of experience with a urogynecologist at Mayo whose =
articles
I had read<BR>> on PubMed. In those articles he came =
across as
having sincere sympathy<BR>> and interest in pelvic pain and
dysfunctions women often endured. He<BR>> barely gave =
me the
time of day- we barely spoke.<BR>><BR>> I get so mad at =
myself for
buying into this kind of advertising- 'false'<BR>> =
advertising.
I'm wondering if I should bother to state my opinion on<BR>>
RateMDs.com- I sure would like to. He has only 7 reviews, all of =
which<BR>> were positive alhtough 7 is not very many =
reviews. I
have to be careful<BR>> though because somewhere in the fine =
print it
says something to the<BR>> effect that you are held =
responsible for
what you say so don't know how<BR>> honest I'm allowed to
be.<BR>><BR>> Wish I could be like a woman who posted on =
the
ibsgroup.org website. She<BR>> has such a low regard =
for
doctors that she said she had not been to one<BR>> in 27 =
years- that
was when she had her last baby.<BR>><BR>> To remove =
yourself from
the <A =
title=mailto:adhesions@adhesions.org%3Cmailto:adhesions@adhesions.org== 20
=
href="mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org">ad=
hesions@adhesions.org<mailto:adhesions@adhesions.org</A>>
mailing list please go<BR>> to the unsubscribe form at =
<A
=
title=http://www.adhesions.org/forums/listcmds.htm%3Chttp://www.adhesio=
ns.org/forums/listcmds.htm
=
href="http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions=
.org/forums/listcmds.htm">http://www.adhesions.org/forums/listcmds.htm<=
;http://www.adhesions.org/forums/listcmds.htm</A>><BR>>ms/message.h=
tm><BR><BR>Kelly,<BR><BR>My
recent primary doctor- who I've decided to fire- is under
Internal<BR>Medicine. However, she is unfortunately one of those =
who
buys into the<BR>convenient made-up catch-all terms like IBS and =
absolutely
will not<BR>consider adhesions.<BR><BR>At my final appointment with =
her last
year, she told me to stop taking<BR>the supplements that I've been =
taking in
an attempt to loosen things up-<BR>like Serrapeptase. When I =
asked her
why, all she would say was "Doctors<BR>know these things". Then =
I said,
"Then what should I do about<BR>adhesions?" She shook her head, then =
turned
her little stool around so<BR>her back was toward me. That was =
the end
of the appointment.<BR><BR>I find it very interesting that the =
physical
therapists and<BR>chiropractors can feel the tightness in my abdomen- =
they
don't seem to<BR>need a laparoscopy to suspect adhesions. The =
doctors
that bother to<BR>examine my abdomen don't seem to be able to do the
same. This<BR>gynecologist didn't even bother- even after =
reading my
25-year hostory.<BR><BR>I am considering trying an accupuncture guy =
who at
least is not far from<BR>where I live and see if he has any knowledge =
of
adhesions. He used to<BR>be a chemist and I think he's into =
Traditional
Chinese Medicine. Will<BR>have to check with my insurance first =
though
as I suspect it could get<BR>expensive- not just the accupuncture =
itself but I
imagine he might have<BR>patients buy supplements which would be =
totally
out-of-pocket.<BR><BR>--<BR>I also tried AbdoTab and decided it wasn't =
worth
anything. I also read somewhere that they promised a money-back =
guarantee but
that when you tried to contact them they weren't available. Also, the =
exact
location of the company is pretty remote- if I remember it looked like =
the
company was in one country but the product came from another. Also saw =
other
products which looked like they came from the same place but a totally =
different company.<BR><BR>I currently take Neprinol (for about 6 =
months now)
which is very expensive. Also lycopene which I read was good for =
adhesions but
it wasn't clear as to whether it was just good for preventing =
adhesions or
getting rid of current ones- the article had an endometriosis basis =
but I
asssume all adhesions would respond the same if lycopene were indeed
effective. I also just started taking Resveratrol which the TV show 60 =
minutes
did a story on this week- they made it sound like a miracle supplement =
but
don't know if it would do anything for adhesions.<BR><BR>My main pain =
and
tightness started in the lower right quadrant after an on-the-job =
injury 25
years ago. I've been to two physical therapists who think I have =
adhesions. So
far, no doctor will discuss it. I have had an exploratory lap (1991),
myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland =
removed
(2006). But as I said, I'm pretty sure my adhesions were from the =
on-the-job
injury- which no doctor can seem to comprehend! Surgery and endo are 2 =
causes
but not the only ones. Generally, anything that causes inflammation =
could
create adhesions.<BR><BR>To remove yourself from the <A
title=mailto:adhesions@adhesions.org== 20
href="mailto:adhesions@adhesions.org">adhesions@adhesions.org</A> =
mailing list
please go<BR> to the unsubscribe form at <A
title=http://www.adhesions.org/forums/listcmds.htm
=
href="http://www.adhesions.org/forums/listcmds.htm">http://www.adhesion=
s.org/forums/listcmds.htm</A><BR>p.s.
for the web forum version see <A
title=http://www.adhesions.org/forums/message.htm
=
href="http://www.adhesions.org/forums/message.htm">http://www.adhesions=
.org/forums/message.htm</A><BR></BLOCKQUOTE></DIV></BODY></HTML>
------=_NextPart_000_0364_01C992AB.8F7E45D0--
To remove yourself from the adhesions@adhesions.org mailing list please go
to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm
p.s. for the web forum version see http://www.adhesions.org/forums/message.htm
------------------------------
Date: Thu, 19 Feb 2009 17:15:40 -0600 (CST)
From:
Date: title=3Dmailto:jetstamp@yahoo.com href=3D"mailto:jetstamp@yahoo.com"=20 ----------------------------
Date: ymailto="mailto:jetstamp@yahoo.com">jetstamp@yahoo.com (jetstamp)
To: adhesions@obgyn.net
Subject: Re: Hype!!
Message-ID: <200902192315.n1JNFfT31334@mail.obgyn.net>
At Thu, 19 Feb 2009, jetstamp wrote:
>
>At Thu, 19 Feb 2009, Kelly Murray wrote:
>>
>>Have you tried a Internal Medicine Doctor?
>>
>>>> ----- Original Message -----
>> From: jetstamp<mailto:jetstamp@yahoo.com>
>> To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net>
>> Sent: Thursday, February 19, 2009 3:20 PM
>> Subject: Hype!!
>>
>> I just had my follow-up visit for a new gynecologist. Unfortunately, I
>> am right at this moment kicking myself for once again falling for the
>> hype.
>>
>> This doctor was listed as a member of the International Pelvic Pain
>> Society. On the clinic's webpage, it said that his special interests
>> were pelvic pain, endometriosis, and menopause. He also was listed as a
>> top women's doctor for the year 2007 in a Minnesota publication.
>>
>> At my first visit 3 weeks ago, he did seem to listen at length but
>> pretty much dismissed any ideas I had about my condition, which began in
>> 1984 after an on-the-job injury which affected my lower right quadrant
>> and pelvis (the injury was never diagnosed- I still wonder about some
>> type of hernia or prolapse).
>>
>> I also gave him a 6-page timeline beginning in 1984. Since I've had
>> this for so long, it is just too difficult to remember everything so I
>> have it on my computer and I update/edit it as needed. This helps save
>> me from struggling to remember stuff when preparing for an appointment
>> with a new doctor- of which I've had many because I have never in my
>> 25-year history with this found anyone who took what I said at face
>> value and at least would do what they COULD to help me cope if nothing
>> else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA
>> papers to protect my job during flare-ups or frequent appointments. I
>> also gave him a copy of a CT scan and an MRI from 5 years ago- the
>> interpreting physician had no problem suggesting possible adhesions.
>> Also 2 physical therapists thought I had adhesions, probably from the
>> injury itself as well as subsequent surgeries. I have not been
>> 'officially' diagnosed with adhesions- just have been given the lame,
>> vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
>>
>> Anyway, today, I experienced the all-too-familiar 'rushed' appointment.
>> All he did was explain my current hormonal situtation- the beginning of
>> menopause, etc. which was fine. But not one word about pelvic pain or
>> anything relating to my most troublesome issues. I could tell he just
>> wanted to be done with me.
>>
>> I have fallen for this 'hype-type' of thing before. I had the same kind
>> of experience with a urogynecologist at Mayo whose articles I had read
>> on PubMed. In those articles he came across as having sincere sympathy
>> and interest in pelvic pain and dysfunctions women often endured. He
>> barely gave me the time of day- we barely spoke.
>>
>> I get so mad at myself for buying into this kind of advertising- 'false'
>> advertising. I'm wondering if I should bother to state my opinion on
>> RateMDs.com- I sure would like to. He has only 7 reviews, all of which
>> were positive alhtough 7 is not very many reviews. I have to be careful
>> though because somewhere in the fine print it says something to the
>> effect that you are held responsible for what you say so don't know how
>> honest I'm allowed to be.
>>
>> Wish I could be like a woman who posted on the ibsgroup.org website. She
>> has such a low regard for doctors that she said she had not been to one
>> in 27 years- that was when she had her last baby.
>>
>Kelly,
>
>My recent primary doctor- who I've decided to fire- is under Internal
>Medicine. However, she is unfortunately one of those who buys into the
>convenient made-up catch-all terms like IBS and absolutely will not
>consider adhesions.
>
>At my final appointment with her last year, she told me to stop taking
>the supplements that I've been taking in an attempt to loosen things up-
>like Serrapeptase. When I asked her why, all she would say was "Doctors
>know these things". Then I said, "Then what should I do about
>adhesions?" She shook her head, then turned her little stool around so
>her back was toward me. That was the end of the appointment.
>
>I find it very interesting that the physical therapists and
>chiropractors can feel the tightness in my abdomen- they don't seem to
>need a laparoscopy to suspect adhesions. The doctors that bother to
>examine my abdomen don't seem to be able to do the same. This
>gynecologist didn't even bother- even after reading my 25-year hostory.
>
>I am considering trying an accupuncture guy who at least is not far from
>where I live and see if he has any knowledge of adhesions. He used to
>be a chemist and I think he's into Traditional Chinese Medicine. Will
>have to check with my insurance first though as I suspect it could get
>expensive- not just the accupuncture itself but I imagine he might have
>patients buy supplements which would be totally out-of-pocket.
>
>--
>I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company.
>
>I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions.
>
>My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions.
>
To remove yourself from the adhesions@adhesions.org mailing list please go
to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm
p.s. for the web forum version see http://www.adhesions.org/forums/message.htm
------------------------------
End of ADHESIONS Digest=20 ----------------------------
End = ----------------------------
End 923
***************************