Re: I just don't want to live like this anymore.

From: rachel (
Fri Mar 28 20:23:16 2008

Jeanette my name is Rachel, Iam 20 years old and from the UK and I also have bowel and pelvic adhesions and I am on a low fibre diet as this stops the bowel working to hard. I was put on it after bowel obstructions and I havent since then (fingers crossed) had any obstructions I have only been admitted to hospital since then for adhesion pain. I also am on morphine and buscapan (stops the bowel from going in to spasm) I dont get alot of relief from the morphine but the buscapan is excellent especially when having BM as I also have terrible pain when I go. I dont know if you can get it in the US but ask you dr (physician) if they can prescribe a bowel anti-spasmic and you will take them either 2 or 4 times a day (depends on the severity). I unlike you have only had 2 surgerys 1- a illeostomy reversal as a baby (less than a year old) 2- had my appendix out 3 years ago, I have been told my surgeon that its to high risk to operate as my whole abdo is covered in adhesions and theres a chance it could either leave me with a colostomy or it could kill me. I have been told mine is uncurable and theres nothing can be done. I was a young healthy person up until 2 years ago and now Iam classed as disabled as Im so ill so I know how your feeling,your not a burden,you are ill. Its not like you wanted this to happen and your friends and family understand that this is NOT your fault. Are you on anti-depressants? If not please see your doctor as you are depressed and this not easy to deal with. Im not a doctor but I recognise what your feeling as I feel it myself. I hope this helps and if you need to talk please email me at Please let me know how it goes. Take care Rach xxx

At Mon, 24 Mar 2008, IAS Admin wrote: >
>From: [] On Behalf Of
>Jeanette Chamberlain
>Sent: Tuesday, March 04, 2008 9:57 AM
>Subject: I just don't want to live like this anymore.
>I have been dealing with adhesions since 2002 when I had my Endometriosis
>removed through laparoscopic surgery. I have since had a full hysterectomy
>and four more Laparoscopys to deal with the adhesion problems. I am
>currently able to deal with the pain because of a careful balance of
>medicines including gapabentin and morphine sulfate. Now to the problems.

>I have extremely painful bowel movements/BMs (sorry for the bluntness but
>how else can one describe it) I am grateful that I even have bowel
movements >as this means that I am not completely obstructed. I suspect that I am
>partially obstructed because of the pain I experience in two distinct
>places on my intestines when I am experiencing increased bowel motility. I
>take a stool softener and metamucil every day but it does not prevent the
>painful evacuations. I take miralax when I have gone more than two days
>without a BM. I used to eat a lot of meat but these days I mostly eat
cereal >and easily digested food because I get so nauseated if I eat much else.
Does >anyone have any suggestions as to what I might do to stop the BMs from
being >so painful? I am at the point where I live in dread of having a BM.

>I wake up in the morning nauseated. I take generic Reglan twice a day to
>fight the nausea. After the nausea subsides a little I eat a bowl of cereal
>sometimes fortified with some nuts. There is a small window of opportunity
>between 11:00 AM and 3:00 PM where I can eat normally without getting sick
>to my stomach. I usually can't eat anything after 4:00 PM or I get very
>nauseous which means that I can't eat dinner with my family. Even if I
don't >eat anything after 4:00 PM I still become from mildly to extremely nauseous
>in the evenings. I discovered that I absolutely can not eat or drink
certain >things anymore. I have never been a big drinker but if I even drink a
little >bit of alcohol I really suffer for it with acute nausea. (I obviously don't
>drink alcohol anymore and it really is no loss) I also have been
>experiencing headaches that coincide with the nausea. Has anyone else
>experienced a situation like this?  

>I suspect that I might have fibromialgia as I ache all over most of the
time >and my legs get weak. They have almost given out from under me a couple of
>times. I need to go see my doctor but I currently don't have medical
>insurance so we can't afford it. I am supposed to be going to a pain
>therapist but I haven't been going for the same reason. I have applied for
>MassHealth but have been denied because they said I didn't submit the
>information they requested but I did send it in to them! I need to call
them >and straighten it all out but I have been so depressed about everything
that >I haven't done it yet.

>I have obtained an adhesion lawyer who has submitted my disability case to
>SS. Fortunately, they only receive payment if I win and then the money will
>come out of the back disability I would receive. I hate the thought of
being >on disability. I feel so worthless...a burden to not only my country but to
>my family. I just don't know how much longer I can keep doing this. Some
>days I just want to curl up in a ball, go to sleep and just not wake up.

>I just can't do this anymore.

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