Thank you for your kind words. I am so sorry to hear that you are still suffering.Is it an option for you to ask for the Seprafilm from your doctor? I know most doctor's would do anything they could to help a person in such pain. Why don't you find out about it? I know you may not want more surgeries but if it helps it is so worth it. Marilyn
-----Original Message----- From: WendyEbbe3@aol.com To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net> Sent: Sat, 14 Jul 2007 3:14 pm Subject: Re: ADHESIONS digest 595 - Seprafilm
Marilyn,
I've also had too many surgeries for bowel obstructions and adhesion's. My last surgery was in June of 2006 and I haven't recovered. They have never tried any adhesion barriers on me at all. I would give almost anything to have a couple of pain free years. Up until about two months ago I was pretty much bedridden because the pain was just so bad that I wanted to die. Two months ago my Dr. switched me from percocet to Methadone. I still have pain everyday but it's way easier to deal with, so now I do get up and do what I can. As if the adhesion's aren't bad enough I have also been diagnosed as having gastroparesis, and guess what? There's no cure for that either and the one drug there is for it has too many side effects for me. So Marilyn it's just awesome that you've gotten some relief.
Wendy
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Pat,
Good luck to you! I hope you get some relief for a while. I just hope the gastroparesis doesn't end up being another fate that ARD sufferers have to look forward to. I'm never hungry and I just don't eat much cause it makes the pain worse. Sometimes it's even very painful to take my medicines. I hope this will help my case for Social Security Disability Benefits. I've been turned down twice now and filed another appeal and told that it can take 20-30 months to get an appointment with a disability judge. Sometimes I could just scream and actually with some of my bowel movements I do scream cause it's so painful (as bad or even worse than being in labor). Thanks for letting me vent here and I hope the next time I have more positive things to say.
Wendy
========Original Message========
Subj:
ADHESIONS digest 595 - Seprafilm
Date:
7/14/2007 1:21:21 P.M. Central Daylight Time
From: tracy.joslin@adhesions.org
To:
Sent on:Â Â
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of Doddie, Pat To: tracy.joslin@adhesions.org Subject: Re: ADHESIONS digest 595 - Seprafilm
I would give anything if this were me, I’m probably having surgery next week, keep your fingers crossed!!!! Thanks for the positive email I don’t know about anyone else but I really appreciate hearing something good!!
Pat Doddie Per-Se Technologies, Inc. MedAxxis Applications Support
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-----Original Message----- From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]On Behalf Of pandagirl8790@aol.com Sent: Tuesday, July 10, 2007 10:56 AM To: Multiple recipients of list ADHESIONS Subject: Re: ADHESIONS digest 595 - Seprafilm
Hi,   I also have had many operations due to endo,adhesions wrapped around my bowel,bladder,stomach etc. My doctor used Seprafilm on me 5 years ago and I have been practicallly pain free! He also had me start taking a stool softner twice a day and my bowel works great! I know this is not a cure all and at any time this could happen again. But hey, I am enjoying it while it lasts. Marilyn
-----Original Message----- From: IAS Admin (Tracy) <tracy.joslin@adhesions.org> To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net> Sent: Sun, 8 Jul 2007 10:36 pm Subject: ADHESIONS digest 595 - Seprafilm
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of Rocngen@aol.com Sent: Wednesday, July 04, 2007 6:58 AM Subject: Re: ADHESIONS digest 595
hi rosemary i had seprafilm but it is not the cure either, i think maybe that it will be a good thing for some people but others with more extensive adhesions its just an option that doesn't work.
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