Re: Ovarian Remnant Syndrome
From: Deb (firstname.lastname@example.org)
Sun Jun 17 20:10:15 2007
I also underwent a hysterecotmy when i was 27 in 1992 due to having
fibroids. I have since had the right ovary removed in 2001, a remnant
removed in 2002, again in 2003.
After having very bad pelvic pain (not cyclical)that was cyclical i had
a CT scan due to doctors not beleiving that i could have another
remnant. Not only did i have a remnant but i also had a mass on the
left side so back to hospital again to have the left ovary and mass
Yeah, you guessed it i have another mass this time on the right side
that is attached to the pelvic wall, i had been trying to convince the
gyn that i am having extreme sharp constant pain, sickness,backache,
bloated stomach and also tired all the time, also when i lay on my front
the pain is so bad it wakes me up and makes me sick.
After refusing to leave until something was agreed, i was given a date
for a MR scan which revealed the complex mass on the right side that is
attached to the pelvic wall approx 4cm X 4cm X 5cm.
I am concerned that although i have had a CA125 test which has come back
at 5 i have early signs of Peritoneal cancer.
Does you or anyone else have these symtoms and have ORS, i feel as
though i am going crazy or getting soft because i cannot manage the
Also does anyone know of a pain killer that would help that is not an
opiate as i am badly allergic
>ovaries for endometriosis in 1993, when I was 27. Since then I have had
>2 bowel obstructions due to adhesions, dealth with by laparotomy and
>insertion of Seprafil membrane. I developed pelvic pain 4 years ago,
>which was initi ally thought to be due to a recurrence of endometriosis
>while taking HRT.
>However, I have now been diagnosed with Ovarian Remnant Syndrome, and am
>awaiting MRI and surgery. I have cyclical ureteric pain, chronic pelvic
>pain with exacerbations, dyspareunia, and pain with bladder and bowels.
>Although I am a nurse I am not able to work at present.
>I would love to hear from anyone else with ORS.