Becca, I am so sorry that you are going through so much pain. I totally understand what you are going through. I too have had multiple surgeries. 11 in all and I am still in pain everyday of my life. I now have a pain specialist who helps me deal with it. You may want to seek a pain specialist and also there is a website you need to check out . It is http://www.adlap.com. The specialist there understand what this disease is all about and can help you. They will be able to direct you to the doctor. I hope this will help you. Dee