New to site, please help
From: kerry (kerryandadam@optonline.net)
Thu Jul 24 15:06:17 2003
Hi,
My name is Kerry I live on Long Island and have many medical problems.
I first found out i had severe abdominal adhesions when I had a tubal
ligation 4 yrs ago. They found that my colon was adhered to my
abdominal wall and had to call in a colon-rectal surgeon to do the
lysis.
They decided that at some point my colon may have perforated and then
adhered and sent me to Johns Hopkins in MD.
It was there that i was diagnosed with a collagen disease, Ehlers Danlos
Syndrome. I later needed surgery to repair a hernia where again they
found and lysed the adhesions again.
I always had severe bleeding with my surgeries and periods after a blood
transfusion and severe anemis they did a partial hysterectomy.
Unfortunately they left my ovaries alone as it took so long to do the
lysis. Last year i had a huge cyst on my left ovary and they had to
remove it. At which time they discovered severe adhesions from my
umbilicus to my pubic area. It took 5 hours for them to find my ovary.
My colon, and small intestines where all clumped together in a large
ball of adhesions.
I wound up hemorrhaging and having a second procedure to stop the
bleeding.
The pain has become unbearable and I have been hospitalized numerous
times with it.
Last month I was admitted for pain again and they discovered that I had
diverticulitis. I was in for a week and then released although the pain
was still severe. Back to the hospital a week later when they
discovered a cyston
my left ovary(despite the fact that I do not have a left ovary!!) The
Ct's also showed that my colon was very thick and the gastro does not
feel that this related to the diverticulitis or collitis and now have me
scheduled for a colonoscopy Aug 5. He will use a pediatric scope to
minimize the risk of a bleed. As well as administering Novo Seven to
help me clot after the biopsies.
Until I found this site I had no idea that the adhesions themselves can
cause so many problems I just assumed they were related to my rare
collagen disease
i need to find a good doctor in NY and do lots of research.
Any help would be greatly appreciated.
Thanks Kerry
kerryandadam@optonline.net