Re: New to site, please help

From: chiggerkat@futura.net
Thu Jul 24 18:22:32 2003


I, TOO, FOUND THIS BOARD JUST A FEW MONTHS AGO AND IT HAS SAVED MY SANITY. I DIDN'T KNOW OTHER PEOPLE SUFFERED FROM THIS TERRIBLE DISEASE. THOUGHT I WAS SO ALONE. THERE ARE A LOT OF GOOD PEOPLE HERE AND A LOT OF GOOD INFORMATION. GOOD LUCK TO YOU. SHERRY -----Original Message----- From: "kerry" <kerryandadam@optonline.net> To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net> Date: Thursday, July 24, 2003 3:08 PM Subject: New to site, please help

>Hi,
>My name is Kerry I live on Long Island and have many medical problems.
>I first found out i had severe abdominal adhesions when I had a tubal
>ligation 4 yrs ago. They found that my colon was adhered to my
>abdominal wall and had to call in a colon-rectal surgeon to do the
>lysis.
>They decided that at some point my colon may have perforated and then
>adhered and sent me to Johns Hopkins in MD.
>It was there that i was diagnosed with a collagen disease, Ehlers Danlos
>Syndrome. I later needed surgery to repair a hernia where again they
>found and lysed the adhesions again.
>I always had severe bleeding with my surgeries and periods after a blood
>transfusion and severe anemis they did a partial hysterectomy.
>Unfortunately they left my ovaries alone as it took so long to do the
>lysis. Last year i had a huge cyst on my left ovary and they had to
>remove it. At which time they discovered severe adhesions from my
>umbilicus to my pubic area. It took 5 hours for them to find my ovary.
>My colon, and small intestines where all clumped together in a large
>ball of adhesions.
>I wound up hemorrhaging and having a second procedure to stop the
>bleeding.
>The pain has become unbearable and I have been hospitalized numerous
>times with it.
>Last month I was admitted for pain again and they discovered that I had
>diverticulitis. I was in for a week and then released although the pain
>was still severe. Back to the hospital a week later when they
>discovered a cyston
>my left ovary(despite the fact that I do not have a left ovary!!) The
>Ct's also showed that my colon was very thick and the gastro does not
>feel that this related to the diverticulitis or collitis and now have me
>scheduled for a colonoscopy Aug 5. He will use a pediatric scope to
>minimize the risk of a bleed. As well as administering Novo Seven to
>help me clot after the biopsies.
>
>Until I found this site I had no idea that the adhesions themselves can
>cause so many problems I just assumed they were related to my rare
>collagen disease
>
>i need to find a good doctor in NY and do lots of research.
>Any help would be greatly appreciated.
>Thanks Kerry
>kerryandadam@optonline.net
>


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