> > From: LostCst@mcn.org (Sally Grigg) > Date: 2003/04/15 Tue PM 07:00:42 GMT > To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com> > Subject: Re: I'm new and need some help/advice > > At Mon, 14 Apr 2003, AnnMarie wrote: > > > >Hi I have been commin on this web site recently to read any info I can > >find on pelvic adhesions. I"m 18 years old, and have had 22 surgeries. > >I was born with fluid on the brain and had to have a vp shunt put in me > >whne I was 5 weeks old, that I will have for the rest of my life, and > >most of my surgeries have been either been on my shunt ( which goes from > >my head into my stomache ) and gyno problems such as ovarian cysts, scar > >tissue from all my surgeries, and pelvic pain. I got my first period > >when I had just turned 10, and since then I have had increasing pelvic > >pain. Due to all the scar tissue and only having one ovay left > >becomming pregnant some day will be a challange.I lke most of you feel > >so drained that i dont have the energy or feel well enough to do the > >things normal 18 year olds do. Up untill now, my gyno has perscribe > >pain meds ( ie: vicodon, percocet ect.) but he doesnt feel comfertable > >prescribing them to me anymore due to my age and the risks. so i went > >to see a pain manegment clinic and will NEVEr go back. They were really > >mean, and told me that they were leaving to go to another hospital in > >june so there wasnt much they could do. I am now also seeing a > >urologist because the doctors found out through a cystoscopy I have I.C > >on my bladder also( just what i need more things to add to my pain) when > >i had my lapaotomy and laposcopies the gyno told me my whole pelivs( > >bladder, ovary, fallopian tube,bowels evrything.) was incase in scar > >tissue which was probably what was causing my pain, and now they told me > >I also have I.C on my bladder. I was just wondering if anyone knows of > >any good pain mangement in or near the Boston area. I REALLY need any > >help or info I can get if ANYONE can help please E-mail me or leave a > >message for me my screen name is SWEETLILQT913@aol.com Thanks so much > >for reading my story > > AnnMarie > > > >-- > > AnnMarie > > > > -- > Dear Annmarie, Welcome to the Adhesions Board. I'm sorry I'm not a doctor. > Probably the best advice I can give you is for you to read the stories on > the quilt and past emails which will give you a good idea about all of us > and our problems with adhesions. Your medical situation sounds complicated, > but the adhesions cause agony as we all know. At this time there are very few > doctors who are experts in removing adhesions. There are a few. If I were you > I would email Dr. Wiseman and see if he could make a referral to someone in > your area, for some temporary relief. Unfortunately, the newest and best > substance is caused spraygel and is not yet being used in this country. It is > being used in Europe, so you could go to Germany to Dr. Kruschinski. His site is > http://www.EndoGyn.com I know that's a long way to go, but the worse thing you can do > is to keep having operations by doctors who are not adhesions experts. You > have come to the right place for adhesions, but the hard part is that you need > to do your research yourself. You need to take charge of your medical records, > read, read, read and ask questions. I'm so sorry. Life is not fair sometimes, > but we are here and this is the place to vent and cry if you want to. With kindest > regards, Sally Grigg > > Hi, I have been suffering from bowel adhesions for 18 months and have just had corrective surgery, which to my dissapointment has failed. Has anybody experimented with accupuncture yet? I have my first appointment in may, and would be pleased to know if anybody has tried this. And if so has it helped?