Re: New to the list

From: kann (stew@cowtown.net)
Fri Oct 25 20:31:49 2002


Hi, Please give more info on the place you've found in Florida!

>I found this list recently and decided to join to ask a few questions. I am
>interested in finding out info about adhesions related to infertility. I
>have been trying to conceive for over 3 years. In 1985, at 17 years old, I
>had Gall Bladder surgery. The Dr. said that it was diseased. A few years
>ago I started having some abdominal pain on my right side. After being
>tortured with different uncomfortable procedures, I found out that the pain
>was caused by adhesions. My OBGYN did a laparoscopy a year and a half ago.
>I was excited because the pain went away for about 8 months!!!!! He
>reported that I had sigmoid mesocolonic adhesions of the left pelvic brim
>and dense ileocecal adhesions to the right sidewall. He said that part of
>my bowel was attached to the muscles in my abdomen. This was the same spot
>that I reported having pain. Unfortunately, the pain is back. I believe
>that the adhesions grew back and may even be worse then before. I have
>ruled out other possibilities with a CT scan and an IVP. My OBGYN has
>mentioned doing another laparoscopy. I don't want to!!!!! I was diagnosed
>with fibromyalgia 4 years ago, although I know I've had it all my life.
>Adhesions are very common after surgery, especially abdominal.
>Fibromyalgics tend to be more vulnerable to adhesions. Our bodies heal
>slower allowing more time for adhesions to form. I have also read that
>adhesions can be caused by other things like inflammation. When organs
>become adhered they cause pain and poor function. I have a tilted uterus
>that shifts from time to time. This would make since if I have adhesions
>pulling on things.
>
>Over the past 6 months, I have learned everything I can about adhesions. I
>found a PT clinic in Florida that specializes in treating pelvic and
>abdominal adhesions. The patients that were diagnosed as infertile reported
>that they were pregnant after completing therapy. Some of the same women had
>blocked tubes and several failed attempts at IVF. The same women got
>pregnant on their own without reproductive procedures and medications!!!!!!
>I am trying to get my insurance to approve me to go to them. They are out of
>network for me. They denied my first request and I appealed. They should
>have an answer by the end of October.
>
>I read something about using barriers during surgery to keep adhesions from
>forming. I guess they could call it "GUT-NO-STICK"!!!!!! I also read about
>a new laparoscopic mapping done while the patient is awake to find the
>source of their pain. This sounds like torture to me. There has to be an
>easier way to red patients of this pain!!!!!! I am looking for more natural
>ways to heal myself. I think I'm on to something with massage and PT. There
>are a few techniques they use. I have been reading about visceral
>manipulation and urogenital manipulation. Some of this requires rubber glove
>work. The folks at the clinic in Florida do something very similar. If it
>doesn't work out for me to go to them, I'm hoping I can find something
>similar in the central Kentucky area. The cost for the place in Florida is
>$3500. That's $175 per hour for 20 hours of therapy. They have developed a
>technique to reverse infertility by doing PT and massage. They are the only
>place I know of that does this, but I'm thinking if someone else does
>similar work, maybe the outcome would be the same?
>
>I'm 35 years old, TICK TOCK. I have been to a reproductive endocrinologist.
>I took Clomid for 10 cycles, although I don't believe ovulation is my
>problem. I believe that it is a mechanical problem indirectly related to
>fibromyalgia. I have had 5 intrauterine inseminations. My RE wants me to go
>to the next level, superstimualtion. The cost is $1500 per cycle.
>Ultimately, I could go ahead with IVF. The cost then increases to $8000 per
>cycle!!!!! I can't see spending that kind of money if something like
>adhesions are keeping me from getting pregnant. I am on the guaifenesin
>protocol for FMS. I know that guaifenesin can help reproductively because
>it thins cervical mucus. I'm hoping to kill two birds with one stone!!!!! I
>'m also considering going on a gluten free diet. Fibromyagics can have a
>carbohydrate intolerance. I also read that gluten intolerance can cause
>infertility.
>
>Any help about how to red myself of this pelvic and abdominal pain would be
>great. If anyone has further information about adhesions related to
>infertility that would be even greater.
>
>Thanks,
>Mindy, Ky., FMS, adhesions, infertility


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