Re: I am disturbed...or am I just scared?

From: Janice Simpson (
Thu Jul 18 16:02:25 2002

Dear Tami, I know this is overwhelming and it is scary but the best thing you can do is educate yourself about this condition and never let a Dr. tell you it is in your head or let us just open you up and see if we can't fix you up. These things have happened to so many people and made us doubt ourselves and made our condition worse. Don't be scared----get MAD that there are so many of us and not enough research done- not enough people who even know this is a real thing and affects more people than can be imagined. Just think of the people who haven't found this site. I remember thinking I was all alone and I must be crazy. It was like I could breath again when I found this site. And on top of it I have made some wonderful friends-friends that understand when I say how I am feeling and don't tell me to get over it. So welcome again, and like I said don't be scared be thankful that now you have a right to feel the way you do and you can see what has happened to your body and it is not in your mind. Keep talking to us-we will listen and offer advice and if we have no advice a shoulder to lean on. Your friend, Jan

>----- Original Message -----
From: Sent: Thursday, July 18, 2002 4:04 PM To: Multiple recipients of list ADHESIONS Subject: I am disturbed...or am I just scared?

Hello all, I have spent to much time behind the computer and the pain is catching up with me. But there is so much info here, so many people, so many stories that make me want to cry, cry out of dispair, or relief I am not sure. I guess I wanted to believe that this is in my head and that I can mentally make it go away. But this site has brought reality to me, this is very real, I am really sick and I may never get to get better. I guess I am just scared.

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