Welcome Rosalie so good to meet you! It's awful, just awful that you have to
deal with devil pain of adhesions. When new people post here and I welcome
them, I also tell them that it's bitter sweet to meet you. Bitter because
I'm so sorry that you're dealing with the pain but sweet because I get to
meet you. ")
Rosalie I would like to share some of my experience with you since this will
be your first surgery. First off, thank God you came here prior to your
surgery and let us know you were going for surgery. ")
I have meet so many wonderful people here and it pains me to know they have
gone for multiple surgeries way before they knew that having surgeries isn't
the answer most of the time. Certainly if it's a life or death situation and
surgery is the very last resort, then the surgery is needed. Like severe
blocked bowel, or the adhesions have all your inners stuck together that your
food can't go through your intestines - gets stuck - and causes crappola to
go on inside of you.
Many doctors are very knife happy and won't tell you the whole story. They
won't tell you that the more surgeries you have the worse the adhesions come
back, the stronger your adhesions come back, and the more the adhesions show
up in places you never thought they could be. They won't tell you that after
they cut you up, cause you to have more adhesions, more devil pain, that when
you ask for their help in the future because you hurt so very bad, they are
going to give you a line like, it's all in your head, go talk to a priest, a
shrink....or you're crazy lady - you don't have any pain....or the best
one..........adhesions don't cause pain. grrr that last one really ticks me
off when a doctor says that.
It's because I care about you that I would suggest not to have surgery. If
you really, really, really, feel as if you should, then I beg you to go to a
doctor that has performed surgery on adhesions before, and know that
adhesions do cause pain, and will be there for you in the future and not turn
their backs on you.
It's also because I've read too many stories here about people having surgery
after surgery and are left so very alone by the medical profession because
they were not told the whole story. I would really hate to see you have to
go through something so unnecessary, it would break my heart to have another
person be in devil pain and have no where to go, and have the medical people
turn their back on you.
Can you please, please, re-think your surgery and get more information before
you have your first surgery for adhesions?
Please, always know that I'm just an email away. Everyone else as well - we
are all here for you. Even if you'd like to email me directly please do. ")
Hope I helped you in some way - remember, you're not alone, never will be.
Hugs with Love,
~Chrissie (Christine Damon - Epsom, New Hampshire on the adhesions quilt)